Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly diagnosed and living abroad with Celiac


Waitwhathm

Recommended Posts

Waitwhathm Newbie

Hello all, I'm new to this website and figured it would be in my best interest to go ahead and make a small post about myself, mostly because I'm having a lot of trouble trying to adapt to my new lifestyle, and it is irritating me to no end.

I lived in South Korea for three years previously, moved home for ~8 months (during which time I was diagnosed with celiac) and have returned to Korea. When I was diagnosed, I was already planning on returning and I was highly positive that I'd be able to handle living in Asia with celiac. Well......... it has been 2 months now and it's much harder than I imagined. However, it is much easier (and way cheaper) to order gluten-free foods online here than I could have imagined, so that's one perk!

I am mostly just hoping to receive some positive vibes from you all.... I'm trying my best but it doesn't really seem like my best is good enough. I've got separate sponges for dishes (no dish washer), separate pans for cooking (gluten-free pasta is more expensive than in the states so I don't let my bf eat it..ha), use steel wool if I'm ever in doubt, clean my countertops religiously, take daily (gluten-free) vitamins, check labels like never before, and eat out as little as possible, and yet.. I still manage to make myself sick at least once a week. Usually on the weekend when I try to eat out, but sometimes when I try cooking, as well. That's probably the most irritating thing... putting effort into cooking and then making myself sick.

One of my favorite things about Korea is it's food and eating at restaurants with my friends, so it has been realllyyyy tough for me to let go of that part of my life. Luckily my boyfriend has been incredible about my struggles and is always willing to help (he even found me fried chicken with 100% rice flour!), which has been huge for me. Probably would be headed home right now if it weren't for him, quite honestly, which is super depressing to think about because I always thought I was so 'adaptable' and capable of making changes, persevering, etc..and I also really love living abroad and Korea in general!!

Anyway.. sorry for the ramble here! I'm so glad there is a community like this. I definitely need it! Especially from across the world. I don't particularly know what kind of replies I'm expecting, if any, but if anyone has had any similar experiences (travel, living abroad, etc) please share!!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Gemini Experienced

I am sorry you are getting sick more often than you should or would like, but I would imagine it would be extremely difficult living in a foreign country like Korea while trying to learn the diet and heal.  You are also in the early stages of healing so you will have ups and downs for awhile.  I give you credit for trying because I know I wouldn't be that ballsy myself!  ;)  However.......you seem to be grasping the cross contamination thing well by having separate everything.  What about your pots and pans?  Cast iron has to be dedicated gluten free only because of all the nooks and crannies, along with scratched teflon.  No good.  You can use teflon but it has to be new or unscratched.  Stainless steel or hard metals are the best as you can use them for both ( they are not porous) because you can clean them well with steel wool.  The only thing I would not use for both, no matter what you have for cookware is a spaghetti pot.  That stuff is just so hard clean off so I would suggest dedicated pasta cookware, including the ever important colander.

I am sorry to have to say this to you but you really need to stop eating out for awhile.  :(  I know how hard that is when you are young and like to socialize with friends.  It is hard enough eating out in the States, depending on where you live, but you are in Korea.  Not a hotbed of Celiac activity, I am sure.  I know it is not as fun but can you eat first and then go out and just have a drink while they eat?  Yeah, I know, I won't even do that myself. I have found that many people become very uncomfortable when the thin Celiac like me isn't eating while they are.  Honestly, some think I have an eating disorder, I am sure.  I have no idea what Korean food is like so don't know what would contain gluten.  I am sorry I cannot be of much help with that.  You can resume eating out after some healing has taken place but it is imperative that you find a place were you can do that successfully.  Do you have the dining cards that explain Celiac and your needs in different languages?  They are given to staff so they can understand better in their native tongue...which is extremely helpful.

Open Original Shared Link  The site I have accessed is called:

findmeglutenfree.com.  I checked for Seoul because you did not say where you were and everyone seems to go to Seoul.  There are some places listed there, with reviews.  I have found this site invaluable for finding safe food when traveling.  Who knew there would be 3 places listed for Seoul?

Also: Open Original Shared Link  I am not sure if this will link you directly to Facebook but at least you have the address to look it up yourself.  You will have to use your computer to do searches to find what you need.  I have to say.......what the hell did we do without the internet???????    :o

BTW....kuddos to your boyfriend for being supportive.  That alone means he is a keeper!  Let us know if you need any more help!

marren27 Apprentice

Waitwhathm, great to hear you are finding some products--cool that you found chicken like that! Kudos to you being proactive and finding products online and cooking.

Just know you're not alone. I'm in a similar boat to you (Russia, ordered off gluten a week before leaving). I miss eating out too.

If you haven't already, look for Tamari sauce (soy sauce without wheat). It would be a great staple for stir fries. You've probably heard this already, but cooking with basics: rice, vegetables, plain chicken, minimizes risk.

I'm finding I need to read labels really thoroughly, even on things that don't seem like gluten products (for example, wheat in yogurt sometimes). 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748

    Dorfor
    Newest Member
    Dorfor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.