Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten/Dairy Free But Still Feeling Sick?


treeoflife06

Recommended Posts

treeoflife06 Newbie

Hi guys!

I have been reading this message board for the past month, but never posting but its now my turn to post I guess.

I am a 27 year old female who woke up one day and just had diarrhea for almost a month straight 7-8 times a day. It was just water. I went to a GI doctor. My blood work came back completely normal and not even a chance of Celiac's. So he told me he thinks I am gluten intolerant. I stopped eating gluten and dairy (which i was allergic to) and its been since February 2nd. 
 

Having diarrhea every day stopped completely once i went gluten & dairy free..but still have been feeling off since then. I had gas really bad for a while that smelt absolutely disgusting and i couldnt help it. My doctor told me to get on a probiotic for that. That has kind of cleared, but every  day my stomach just feels funky. Like almost like you have to poop. And it rumbles, and I still have gas a LOT, just not as much. And I poop quite often but its not water anymore. Also, I have always drank wine, and now even when I have one or two glasses, the next day I poop a ton.

 

Can anyone tell me if this happened to them? Is my stomach just regulating itself? Is this normal? I asked my GI doctor again and he said "if you really want to do an endoscopy or colonoscopy we can, but its unlikely theres anything else wrong" I never had blood in my poop or anything like that. Please give me some advice here. I am feeling completely defeated. It is super frustrating, I just want my life back. I can't go out to eat with my boyfriend cause its always so complicated & now I cant go out and get a drink either? I have to worry about if I have to poop or not or if my stomach will hurt.

 

Side note: I have a naturopathic doctor appointment in two weeks which I am excited about..ive heard good things..anyone have experience with this also? SOrry for the long post, i just need to talk to people who get it! Thank you in advance. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

What do you typically eat?

This could be anything really, from a bad strain of bacteria in your gut, a food intolerance, parasite, allergy, ulcers, or a deficiency.

Start off with a food journal and write down everything your eat. Try removing one food at a time for a week and noting your you feel and any changes. You might find you have a intolerance to something, or a allergy could be causing inflammation in the intestines. 

What is your sugar/carb intake, if your on a gluten-free diet and eating a bunch of processed foods the issue could be your having too much starches, sugars, and carbs and your gut bacteria are just having a field day. In which case adjusting your ratios adding more fiber and fats will help.

It could be the wine as some people react to the sulfates and nitrates in it same wit the vinegar.

I would really suggest dropping all of your current staples and trying a whole foods only diet of simple stewed/baked/grilled meats, eggs. veggies, sweet potatoes, nuts, and small amounts of fruit. See how you feel on that kind of diet. From there do the elimination diet and try removing some and adding something for a week at a time keeping it simple.

Heck you might even have a gluten containg spice or glutened cookware and be getting yourself just a tad with gluten.

PS welcome to the fourm say you have been here for awhile but just going to post the basics introduction links anyway.

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

 

treeoflife06 Newbie

I scan everything i eat. So I know I am not eating gluten.

 

I have been good for like five to six days and then today I have dirreah again. It's super weird. The doctor told me IBS...but he doesnt seem concerned. I am wondering if I should switch doctors to someone who's going to be more apt to trying to find out what is wrong. My blood work is all normal and he doesnt seem to want to give me an endoscopy or colonoscopy cause he said it's "possible but probably not" something else.

Ennis-TX Grand Master
10 minutes ago, treeoflife06 said:

I scan everything i eat. So I know I am not eating gluten.

 

I have been good for like five to six days and then today I have dirreah again. It's super weird. The doctor told me IBS...but he doesnt seem concerned. I am wondering if I should switch doctors to someone who's going to be more apt to trying to find out what is wrong. My blood work is all normal and he doesnt seem to want to give me an endoscopy or colonoscopy cause he said it's "possible but probably not" something else.

Might push for the scope just to be sure what it is. Especially if covered by insurance. Most of these autoimmune diseases have a particular diet and foods to avoid that help you to live a more normal life. Just got to nail down what you have.

Your still a bit early into the gluten-free diet also, can takes weeks if not months for your system to settle. Give it more time, and keep on being vigilant with ingredients, and safe prep in a gluten-free environment. Note gluten CC is a real pain first getting into the diet. You will make mistakes with old contaminated cookware, spices, condiments, crumbs in drawers/containers/toaster/oven/counter, getting a untrusted brand etc. Best to stick to whole foods only first few weeks of the diet to jump start your healing and make it simpler.

Start the food journal to see if you can nail down some culprits and get some data on what is causing the issues. You might be able to categorize a certain kind of food (Night shades, legumes, grains)  or a food in particular that is doing it.    Say it could be stuff like sugar carbs, soy, meats, or some random intolarenace you developed. It is very common to get them with this disease, and they can cause all kind of different symptoms.     

cyclinglady Grand Master

Too bad , your lame-sounding doctor advised you to go gluten free without testing you for celiac disease.  Consider getting a new GI doctor who knows about celiac disease and get tested.  Actually any MD can test you.  The catch is you need to be on a gluten diet.  

Open Original Shared Link

IBS really means "I Be Stumped."  You might not have celiac disease, but at least you can rule it out.  

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - DebD5 replied to Bebygirl01's topic in Related Issues & Disorders
      26

      How many people here are aware that there are 9 types of gluten that Celiacs should be aware of?

    2. - DebD5 replied to ohmichael's topic in Super Sensitive People
      12

      Curious if I should quit my job

    3. - DebD5 replied to annirosex's topic in Related Issues & Disorders
      2

      Dealing with celiac and menstrual cycle

    4. - DebD5 replied to Katiexox's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Advice please

    5. - DebD5 replied to StevieP.'s topic in Related Issues & Disorders
      5

      Fodzyme


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,637
    • Most Online (within 30 mins)
      7,748

    Alice 6
    Newest Member
    Alice 6
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DebD5
      I would like to say you saved me. I’ve been so sick the last few years, celiac since 1997. And reading your post about the other glutens/grains that can be sensitive to celiacs, is the only thing that has ever helped me. Since going off a carbohydrates/grains, even gluten-free ones, My chronic pain is  85% better. I’m actually losing weight which, that’s a long story but was impossible. I definitely am like you. Thank you so very much for posting. For some of celiacs I do believe this is the magic key. 
    • DebD5
      I 100% believe if you were sticking gluten items, especially flour, and breathed it in you could be glutened. I’m a celiac for almost 30 years. For the first ten years as a celiac I’d help my polish family make pierogis at Christmas time. I would only cook them at the stove and I didn’t touch anything with my hands using spoons. But the flour is in the air. And I’d get violently ill for 1-2 weeks after the last few years I did it. Wearing a back is a great suggestion and washing your clothes and showering when you get home. Good luck. And I’m so sorry your parents are emotionally supporting you. 
    • DebD5
      Have you had your thyroid checked? I was diagnosed at 24 with celiac. Lost my period permanently at 32. Found out six months after I lost my period that I had 1 ovary with 1 follicle. I had a child already but wanted more. Ended up having two more children with one ovary and one follicle. But my doctors theories are if I would have gotten my thyroid checked sooner and fixed through medication, maybe things would look different. Who knows. I only share my experience so you question your doctors and advocate. Always see an endocrinologist for thyroid care fyi. Actually always see the specific Dr for your specific ailments. I’d also consider seeing a gynecologist that specializes in female hormones/menopausal symptoms. Early ovarian failure happens in celiacs so I read  on the celiac disease center in Chicago website. 
    • DebD5
      This. Scott said it beautifully. Document and start a trial gluten-free diet. I can also recommend an inflammation dietitian I saw last summer if interested. She’s the only one who helped me on a path to healing through an elimination diet. Which is tricky with your little one. But I completely trust her, she’s very expensive though. I figured out I’m sensitive to so many things and follow a gluten-free diet religiously. Just had an upper and lower endoscopy/colonoscopy and zero signs of celiac disease so they said. I’m a celiac since 1997. But my 33 yr old daughter is very gluten intolerant since 20 yrs old. 
    • DebD5
      I so appreciate you talking about this. Honestly I’m so sick the most part of the last 15 years, I’m going to cross reference your list with my own. Celiac since 24 yrs old diagnosed in 1997. I just saw a specific celiac GI specialist at the celiac disease center in Chicago and when I told her all the food reactions I was having she said she believed me but there was no clinical evidence to support my reactions(I felt so unseen, she recommended I see a gut psychologist, what the heck). I react with severe body aches to bloating and dizziness to exhaustion:  most lectins except berries and low lectin veg, no eggs, no nightshade veg, no dairy, all carbohydrates including no gluten-free carbs or grains, though a little coconut flour seems ok now, need to test other non grains, certain alcohols that say gluten-free but looking into their process further I get horribly sick if distilled through a gluten grain example Costco vodka….. Because I had an upper and lower GI in 1997(I was 24 and 84#s) and my GI doc came back with celiac disease, this new doc suggested I may not be a celiac. Is running some blood test. Omg. I can’t even. I’m so beyond frustrated. 
×
×
  • Create New...