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How do you know when you're glutenated ?

KathleenH

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KathleenH Enthusiast
KathleenH
Posted

Hey guys I know i've asked like 1000 questions and I probably getting annoying! So sorry!! But this is a question I cant seem to find the answer to. How do you know if you have been cross contaminated? Since I've only been gluten free for about a week I don't think I know what it feels like to be well yet so it would be hard to tell this early on right? How do you know if you just have an occasional stomachache/headache or you are eating something that was contaminated? I feel like this is going to be really hard to tell for me. For example I tried a new drink that "golden milk" for inflammation... I made sure everything was gluten free but I got a really bad stomachache after. I'm not sure if the new recipe just didn't agree with me or maybe the cup/pan/spoon I used was contaminated? I guess I'm going to be more diligent with actually cleaning the utensils and stuff I use before hand so I can tell the difference. 

Also while I'm at it I was wondering if anyone has any thoughts on leaky gut? I have read books/articles about this before I even knew I might have celiac disease and they say that if you have celiac you most definitely had a leaky gut first. How do you guys treat your leaky gut? Do you not worry about it? Did you talk to a doctor? 

Again thank you all for being so helpful and I'm sorry if I'm being annoying with all the questions I'm posting. 

Kathleen :)

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cyclinglady Grand Master
cyclinglady
Posted

You may or not be able to tell if you have been glutened.  Some celiacs are silent and sometimes your symptoms change.  You will soon figure it out.

Was that Golden milk certified gluten free?  I think it is easier for newbies to just start with certified foods for piece of mind.  Also Whole Foods are best.  We all have intolerances to various foods.  Too many ingredients and you do not know what is causing your symptoms.  I can not tolerate garlic.  Gee, everyone says it is the perfect health food!  But not  for me.  Xanthan Gum.  It is added to all kinds of processed gluten-free foods.  My husband tolerates it, but not me.  I still get sick from it.  (I bake with other gums?) who knows what you might have reacted to in that "milk".  

There is no fast cure.  Time will heal you, along with a clean diet.

Leaky gut is real.  Research zonulin.   Watch this video from Dr. Fasano, a leading celiac disease researching affiliated with Harvard and Mass General:

 

KathleenH Enthusiast
KathleenH
Posted
  • Author
6 minutes ago, cyclinglady said:

You may or not be able to tell if you have been glutened.  Some celiacs are silent and sometimes your symptoms change.  You will soon figure it out.

Was that Golden milk certified gluten free?  I think it is easier for newbies to just start with certified foods for piece of mind.  Also Whole Foods are best.  We all have intolerances to various foods.  Too many ingredients and you do not know what is causing your symptoms.  I can not tolerate garlic.  Gee, everyone says it is the perfect health food!  But not  for me.  Xanthan Gum.  It is added to all kinds of processed gluten-free foods.  My husband tolerates it, but not me.  I still get sick from it.  (I bake with other gums?) who knows what you might have reacted to in that "milk".  

There is no fast cure.  Time will heal you, along with a clean diet.

Leaky gut is real.  Research zonulin.   Watch this video from Dr. Fasano, a leading celiac disease researching affiliated with Harvard and Mass General:

 

Hm I don't know for sure but I did make it from scratch. I'm gonna five it another try but if it keeps upsetting my stomach I'll just assume its not for me. Thanks for the video I'll be sure to watch it. 

RebekahLynn Newbie
RebekahLynn
Posted

Tumeric (curcumin) can be hard on the stomach. I would wonder if it was that.

KathleenH Enthusiast
KathleenH
Posted
  • Author

Also wondering if you can be cross contaminated if you share a straw with someone who ate something with gluten in it? Its pretty frustrating... I thought i was doing good but then I shared a drink with a straw after they had been drinking beer :(

KathleenH Enthusiast
KathleenH
Posted
  • Author
16 hours ago, RebekahLynn said:

Tumeric (curcumin) can be hard on the stomach. I would wonder if it was that.

Hmm yaa maybe that was it

cyclinglady Grand Master
cyclinglady
Posted
21 hours ago, KathleenH said:

Also wondering if you can be cross contaminated if you share a straw with someone who ate something with gluten in it? Its pretty frustrating... I thought i was doing good but then I shared a drink with a straw after they had been drinking beer :(

Yep.  I would say yes.  You can get glutened by kissing, being slobbered on by an adorable baby, dipping a spoon from a pasta pot into a gluten-free pasta pot, swallowing airborne gluten-containing flour while baking, grilling chicken on a grill that has had gluten on it (think burger buns), etc.  

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Ennis-TX Grand Master
Ennis-TX
Posted

Cross contamination....I swear so bloody frustrating, especially when you have no clue what made you sick and you spend a week like randomly getting sick then find it. Or it might end up being  some thing else completely randoms and at time not gluten but something else your intolerant to........Damn what I would not give for a star trek styled tricorder lol

I find I can normally narrow down if gluten or something else within 72 hours of it happening because gluten for me causes nerve and neurological issues. I find a bit more fog and depression, along with I end up burning myself cooking  a LOT more as the mix of daze and numbness makes it where I do not notice the heat and am slower to react. Note this is just the CC issues.   Straight gluten in a meal.....floors me literally I lose comeplete motor control and end up violently puking on the floor unable to move with gut wrenching pains. Followed by either D or C for the next day or so and numbness and fog that last a week or more.

 

Jmg Mentor
Jmg
Posted

I don't, at least not always. I'm pretty careful so for a long time now any issues I've had have been with possible contamination rather than a large ingestion of gluten. There's no flashing light or app notification, just odd symptoms that only later I can perhaps tentatively connect to cross contamination. 

When I ate a gluten containing meal by mistake it was easier to tell, there was a massive rash across my chest, I felt brain fog depression etc. Later I got back ache and some joint pain as well as the return of twitching nerves under eye. 

At Christmas time I felt id probably had some cross contamaintion, probably from the use of shared cookware. A few days later I had another bout of optic neuritis which I'd not had for quite some time. 

To be honest I spend more time trying to prevent it happening then worrying about it once it has, if I can't trace it to one meal choice or establishment I try to put it behind me quickly and focus on recovering and staying we,l. The alternative is spending days on end as Sherlock Holmes in the case of the mystery glutening, a role I've played more than enough already!

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      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
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      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
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