Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten sensitivity?


Maddi

Recommended Posts

Maddi Community Regular

Hi you guys. 

I came to this website almost 2 years ago. I had so many crazy symptoms and wondered if I had a gluten sensitivity since my Celiac blood test came back negative. Well, slowly most of my symptoms resolved. Then they found I had Epsteins Barr virus which had been reactivated. And was diagnosed with Chronic Fatigue Syndrome. Well about 3 months ago, I started eating gluten again. (I know dumb on my part). I guess I started wondering if maybe I was really sensitive to it to begin with. While on gluten 2 years ago I had panic attacks, anxiety, depression, huge bm's (sorry if tmi), I was starting to have urinary incontinence (I was 25!! No kids!!!), shallow breathing, body aches, body tingling and burning, I had insomnia, nausea, dizziness, and hot flashes and well SEVERE fatigue. I'm sure I'm missing some but that's what I can remember.

Well, 3 months ago I started eating gluten and slowly I started getting that shallow breathing again, increased anxiety, and then in March I started with the panic attacks and the increased bm's and insomnia.  So in March I stopped eating gluten. I felt better and could sleep fine. Fast forward to two weeks ago, I decided to switch to a plant based diet. Welllll I bought pre cooked beans from Whole Foods and also corn tortillas. 2 Sundays ago I felt off. I started feeling weirdly dizzy. Then last Friday I felt very fatigued and faint. I used to feel faint while eating gluten but haven't felt this way in a longggg time. While feeling faint I felt the need to go to the bathroom. So I'm not sure if that was a panic attack or what that was. Well since then I'm having non stop sweating, nausea, body aches, insomnia and this wired feeling I used to have when I ate gluten before. Well I read the labels on the beans. BOOM they say they are processed in the same facility as wheat. Then I read the corn tortillas SAME THING. Could this be from cross contamination that I feel this way? Or could this be something else? I'm so sorry this was so long. I'm feeling desperate. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

I am sorry that you are not feeling well.  It could be cross contamination.  Hard to say.  I avoid grains because I have diabetes (carb really spike me and I might as well have some ice cream), but I feel good about purchasing corn tortillas for my family (marked gluten free) and I do indulge every once-in-a-while.   It might be made in a shared giant factory in Texas, but the lines are never shared.   Beans?  I make my own.  I wash and sort prior to soaking.  Amazing what you can find....wheat, stones, unidentified stuff, etc!  I freeze in small batches.  

You might just be reacting to corn too.  Developed a intolerance along the way.  

I hope you feel better soon.  Sounds like gluten is not for you!  

Maddi Community Regular

Thanks so much for your response! I actually remember you last time I was on this site! 

Also because you have diabetes... could this also be reactive hypoglycemia? Can gluten intolerance cause reactive hypoglycemia? I'm starting to think maybe this is also a problem bc I'm feeling terrible all day. And so sweaty. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    2. - Scott Adams replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    3. - Wheatwacked replied to GlutenFreeChef's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Blood Test for Celiac wheat type matters?

    4. - jenniber replied to tiffanygosci's topic in Introduce Yourself / Share Stuff
      5

      Celiac support is hard to find

    5. - RMJ replied to TheDHhurts's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      need help understanding testing result for Naked Nutrition Creatine please

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,119
    • Most Online (within 30 mins)
      7,748

    anagramcat
    Newest Member
    anagramcat
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Wheatwacked, are you speaking of the use of potassium bromide and and azodicarbonamide as dough modifiers being controlling factor for what? Do you refer to celiac reactions to gluten or thyroid disease, kidney disease, GI cancers? 
    • Scott Adams
      Excess iodine supplements can cause significant health issues, primarily disrupting thyroid function. My daughter has issues with even small amounts of dietary iodine. While iodine is essential for thyroid hormone production, consistently consuming amounts far above the tolerable upper limit (1,100 mcg/day for adults) from high-dose supplements can trigger both hyperthyroidism or hypothyroidism, worsen autoimmune thyroid diseases like Hashimoto's, and lead to goiter. Other side effects include gastrointestinal distress. The risk is highest for individuals with pre-existing thyroid conditions, and while dietary iodine rarely reaches toxic levels, unsupervised high-dose supplementation is dangerous and should only be undertaken with medical guidance to avoid serious complications. It's best to check with your doctor before supplementing iodine.
    • Wheatwacked
      In Europe they have banned several dough modifiers potassium bromide and and azodicarbonamide.  Both linked to cancers.  Studies have linked potassium bromide to kidney, thyroid, and gastrointestinal cancers.  A ban on it in goes into effect in California in 2027. I suspect this, more than a specific strain of wheat to be controlling factor.  Sourdough natural fermentation conditions the dough without chemicals. Iodine was used in the US as a dough modifier until the 1970s. Since then iodine intake in the US dropped 50%.  Iodine is essential for thyroid hormones.  Thyroid hormone use for hypothyroidism has doubled in the United States from 1997 to 2016.   Clinical Thyroidology® for the Public In the UK, incidently, prescriptions for the thyroid hormone levothyroxine have increased by more than 12 million in a decade.  The Royal Pharmaceutical Society's official journal Standard thyroid tests will not show insufficient iodine intake.  Iodine 24 Hour Urine Test measures iodine excretion over a full day to evaluate iodine status and thyroid health. 75 year old male.  I tried adding seaweed into my diet and did get improvement in healing, muscle tone, skin; but in was not enough and I could not sustain it in my diet at the level intake I needed.  So I supplement 600 mcg Liquid Iodine (RDA 150 to 1000 mcg) per day.  It has turbocharged my recovery from 63 years of undiagnosed celiac disease.  Improvement in healing a non-healing sebaceous cyst. brain fog, vision, hair, skin, nails. Some with dermatitis herpetiformis celiac disease experience exacerbation of the rash with iodine. The Wolff-Chaikoff Effect Crying Wolf?
    • jenniber
      same! how amazing you have a friend who has celiac disease. i find myself wishing i had someone to talk about it with other than my partner (who has been so supportive regardless)
    • RMJ
      They don’t give a sample size (serving size is different from sample size) so it is hard to tell just what the result means.  However, the way the result is presented  does look like it is below the limit of what their test can measure, so that is good.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.