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Victoria1234

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Victoria1234 Experienced
13 hours ago, Ennis_TX said:

Actually on a ketogenic diet, nothing but fats and protein no carbs, no fruits, no grains, no sugars. I consume massive amounts of protein and moderate fats. I am actually slowly putting on weight....but I am 127-129lbs and 5'11" I have less then 18% body fat. Once you hit ketosis you body burns fat for energy not carbs. So if you are late on a meal, forget a snack, or do not eat enough it eats fat stores first then your own body -_-. Bit brutal actually having to eat every 3-5 hours lol.    NOTE I am on this diet for medical reasons. I have recently learned I got UC so sugars/carbs cause flare ups. Celiac so no gluten, lactose intolerant...,,yeah .....On the bright side I recently found some great breads that are paleo with no carbs or grains then started making my own out of the same ingredients. No bloat starch free gluten-free bread, make my own cheesy garlic, and cheesy cheddar biscuits no grains....diets actually pretty damn good. I love I do not bloat, have so much energy. Just hate the expenses of eating all the nuts, egg whites, seeds, and fresh veggies.

I see! Wow, that sounds really restrictive. But you sound incredibly healthy. Thank you for the info. I will look to see if you've posted any of these great sounding recipes!

  • 2 weeks later...

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Victoria5289 Apprentice
On 5/3/2017 at 1:53 PM, Victoria1234 said:

So in 2007 I started having constant abdominal pain. I had DH for years on my elbows, no reason given by doc other than "allergies". I had many tests done but no celiac panel. I was always anemic and constipated my whole life. I even had my uterus removed in January of 2008, seeking pain relief. The uterus was tested and was actually just fine,

Shortly afterwards we found out about celiac online and I went gluten-free....

i think it was February 2008. My pain immediately went away as well as the dh.

my question to you today is, should I even worry about a doc's diagnosis after this long a time being gluten-free? I'm wondering if there is a purpose for it at this juncture? I am pretty symptom free except for C when I've been glutened, plus some seboritis dermatitis (sp?) flares up as well. No pain, except for the chronic pain for when they botched the hysterectomy and damaged some nerves which is handled by a script.

thanks for any help. I just don't know what to think anymore after reading this board!

 

Gee it could be a pinch nerve alot

Victoria1234 Experienced
3 minutes ago, Victoria5289 said:

Gee it could be a pinch nerve alot

Sadly they don't have any way to treat the nerve cluster except for meds. Tried physical therapy but it just drained my bank account.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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