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I'm hashimotos,Need some answers


lillybel

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lillybel Newbie

Hello everyone :) 

Before jumping to my question , I think I should tell my story.

3 years ago, I was diagnosed with Hashimoto's (autoimmune thyroiditis) . I didn't have any allergic response to food. But , interestingly, I was running away from food because I was feeling a little bloated when I eat . I was feeling good when I kept my stomach empty , so I lost a huge amount of weight . Everyone thought that I had eating disorder because I became a skeleton . Then , I had some intolerance and allergy tests . It showed that I was gluten intolerant,but not severe.Also it showed that I was severely allergic to dairy.

I didn't mind eating gluten because I wasn't celiac.But last year,I started to get sick too often.I had intestinal inflammation and bacterial overgrowth.Doctor gave me antibiotics which made me even worse than before.I was throwing up once a week and having diarrhea every day.I couldn't go out for 1-2 weeks. Then I made some research. I saw some papers about gluten allerhy,intolerance - hashimotos connection . I gave up on gluten then quickly healed. I was happy and energetic again.But,a month later I went abroad and eat a lot of glutenous food . I had diarrhea everyday. Again when I come back to home I wen back to my diet. Also,my family were trying to make eat bread,they didn't believe me at first.I was biting a little bit then hiding it :( Anyways I started feel better but not much.A month later I ate gluten for a week,again.This time It was even worse ! I got sick . 

Then school started.My family finally understood the problem about gluten so they started to cook gluten free . I'm gluten free for 8-9 months , unfortunately I ate chickpea stew outside which may had gluten :( I got diarrhea when I ate it and thought that It wasnt soaked well so..I asked them later and they said that It may have a little bit of flour in it.

 Soo my question is , should I test for celiac ?? I won't start eating gluten even if tests came negative.I'm happier and healthier.It also helped my thyroid :D I heard that If you don't eat gluten for long time you can't get accurate test results . I also can't have a endoscopy for some reasons  ..

Keep in mind that I ate cross contaminated foods during 9 month period .And a 1-2 month ago something thickened with flour (I had diarrhea  right after eating) :( 

 

 


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Scott Adams Grand Master

If you can maintain a gluten free diet without a piece of paper that tells you that you need to, why bother? It will lead to higher life and health insurance costs, be a pre-existing condition, etc. 

  • 2 weeks later...
Victoria5289 Apprentice
On 5/7/2017 at 1:03 PM, lillybel said:

Hello everyone :) 

Before jumping to my question , I think I should tell my story.

3 years ago, I was diagnosed with Hashimoto's (autoimmune thyroiditis) . I didn't have any allergic response to food. But , interestingly, I was running away from food because I was feeling a little bloated when I eat . I was feeling good when I kept my stomach empty , so I lost a huge amount of weight . Everyone thought that I had eating disorder because I became a skeleton . Then , I had some intolerance and allergy tests . It showed that I was gluten intolerant,but not severe.Also it showed that I was severely allergic to dairy.

I didn't mind eating gluten because I wasn't celiac.But last year,I started to get sick too often.I had intestinal inflammation and bacterial overgrowth.Doctor gave me antibiotics which made me even worse than before.I was throwing up once a week and having diarrhea every day.I couldn't go out for 1-2 weeks. Then I made some research. I saw some papers about gluten allerhy,intolerance - hashimotos connection . I gave up on gluten then quickly healed. I was happy and energetic again.But,a month later I went abroad and eat a lot of glutenous food . I had diarrhea everyday. Again when I come back to home I wen back to my diet. Also,my family were trying to make eat bread,they didn't believe me at first.I was biting a little bit then hiding it :( Anyways I started feel better but not much.A month later I ate gluten for a week,again.This time It was even worse ! I got sick . 

Then school started.My family finally understood the problem about gluten so they started to cook gluten free . I'm gluten free for 8-9 months , unfortunately I ate chickpea stew outside which may had gluten :( I got diarrhea when I ate it and thought that It wasnt soaked well so..I asked them later and they said that It may have a little bit of flour in it.

 Soo my question is , should I test for celiac ?? I won't start eating gluten even if tests came negative.I'm happier and healthier.It also helped my thyroid :D I heard that If you don't eat gluten for long time you can't get accurate test results . I also can't have a endoscopy for some reasons  ..

Keep in mind that I ate cross contaminated foods during 9 month period .And a 1-2 month ago something thickened with flour (I had diarrhea  right after eating) :( 

 

 

Sometimes diseased cause unexpected allergy

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  • Posts

    • Mari
    • trents
      Sorry, I think I got you mixed up with another poster.
    • rei.b
      I hadn't been eating gluten free before having the antibody test done. I started eating gluten free after having the test done because the gastro PA told me to eat gluten-free for 6 months. I'm now 3 months in.
    • trents
      I tend to agree with RMJ. Your doc took the reasonable and practical approach to diagnosis. All things considered, it was the right way to go. However, if you have first degree relatives that show signs of possible celiac disease, urge them to get formally tested before they start the gluten free diet.
    • RMJ
      It sounds like you have a very reasonable GI doctor, who diagnosed you based on family history and symptoms after eating gluten. I would consider you lucky! The other option would be to make yourself very sick by doing weeks of a gluten challenge prior to an endoscopy.
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