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I'm hashimotos,Need some answers


lillybel

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lillybel Newbie

Hello everyone :) 

Before jumping to my question , I think I should tell my story.

3 years ago, I was diagnosed with Hashimoto's (autoimmune thyroiditis) . I didn't have any allergic response to food. But , interestingly, I was running away from food because I was feeling a little bloated when I eat . I was feeling good when I kept my stomach empty , so I lost a huge amount of weight . Everyone thought that I had eating disorder because I became a skeleton . Then , I had some intolerance and allergy tests . It showed that I was gluten intolerant,but not severe.Also it showed that I was severely allergic to dairy.

I didn't mind eating gluten because I wasn't celiac.But last year,I started to get sick too often.I had intestinal inflammation and bacterial overgrowth.Doctor gave me antibiotics which made me even worse than before.I was throwing up once a week and having diarrhea every day.I couldn't go out for 1-2 weeks. Then I made some research. I saw some papers about gluten allerhy,intolerance - hashimotos connection . I gave up on gluten then quickly healed. I was happy and energetic again.But,a month later I went abroad and eat a lot of glutenous food . I had diarrhea everyday. Again when I come back to home I wen back to my diet. Also,my family were trying to make eat bread,they didn't believe me at first.I was biting a little bit then hiding it :( Anyways I started feel better but not much.A month later I ate gluten for a week,again.This time It was even worse ! I got sick . 

Then school started.My family finally understood the problem about gluten so they started to cook gluten free . I'm gluten free for 8-9 months , unfortunately I ate chickpea stew outside which may had gluten :( I got diarrhea when I ate it and thought that It wasnt soaked well so..I asked them later and they said that It may have a little bit of flour in it.

 Soo my question is , should I test for celiac ?? I won't start eating gluten even if tests came negative.I'm happier and healthier.It also helped my thyroid :D I heard that If you don't eat gluten for long time you can't get accurate test results . I also can't have a endoscopy for some reasons  ..

Keep in mind that I ate cross contaminated foods during 9 month period .And a 1-2 month ago something thickened with flour (I had diarrhea  right after eating) :( 

 

 


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Scott Adams Grand Master

If you can maintain a gluten free diet without a piece of paper that tells you that you need to, why bother? It will lead to higher life and health insurance costs, be a pre-existing condition, etc. 

  • 2 weeks later...
Victoria5289 Apprentice
On 5/7/2017 at 1:03 PM, lillybel said:

Hello everyone :) 

Before jumping to my question , I think I should tell my story.

3 years ago, I was diagnosed with Hashimoto's (autoimmune thyroiditis) . I didn't have any allergic response to food. But , interestingly, I was running away from food because I was feeling a little bloated when I eat . I was feeling good when I kept my stomach empty , so I lost a huge amount of weight . Everyone thought that I had eating disorder because I became a skeleton . Then , I had some intolerance and allergy tests . It showed that I was gluten intolerant,but not severe.Also it showed that I was severely allergic to dairy.

I didn't mind eating gluten because I wasn't celiac.But last year,I started to get sick too often.I had intestinal inflammation and bacterial overgrowth.Doctor gave me antibiotics which made me even worse than before.I was throwing up once a week and having diarrhea every day.I couldn't go out for 1-2 weeks. Then I made some research. I saw some papers about gluten allerhy,intolerance - hashimotos connection . I gave up on gluten then quickly healed. I was happy and energetic again.But,a month later I went abroad and eat a lot of glutenous food . I had diarrhea everyday. Again when I come back to home I wen back to my diet. Also,my family were trying to make eat bread,they didn't believe me at first.I was biting a little bit then hiding it :( Anyways I started feel better but not much.A month later I ate gluten for a week,again.This time It was even worse ! I got sick . 

Then school started.My family finally understood the problem about gluten so they started to cook gluten free . I'm gluten free for 8-9 months , unfortunately I ate chickpea stew outside which may had gluten :( I got diarrhea when I ate it and thought that It wasnt soaked well so..I asked them later and they said that It may have a little bit of flour in it.

 Soo my question is , should I test for celiac ?? I won't start eating gluten even if tests came negative.I'm happier and healthier.It also helped my thyroid :D I heard that If you don't eat gluten for long time you can't get accurate test results . I also can't have a endoscopy for some reasons  ..

Keep in mind that I ate cross contaminated foods during 9 month period .And a 1-2 month ago something thickened with flour (I had diarrhea  right after eating) :( 

 

 

Sometimes diseased cause unexpected allergy

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    • cristiana
      Thank you for the update @Rejoicephd it is good to know that you may have some answers.  Keep up the good work with your diet, and do let us know if you do get a firm diagnosis.  I took so long to feel better and for my TTG levels to normalise,  but got there in the end, so also bear in mind it does take longer for some of us.
    • StuartJ
      Well, three months later and a startling revelation!  After going gluten free (and nearly bankrupt buying special foods), my wife made a lunch of meat potatoes and gravy made with Bertolli white sauce - no wheat there right?  Big flare up withing hours and I was really wiped out with it.  She rechecks the label on the sauce bottle and right at the bottom of the ingredients XANTHAN GUM. There's our #1 suspect again!  So by way of experimenting, she decided to try making a loaf of bread with just regular white flour like she used to do and see what happened; the familiar smell hit me when I walked in the door last night and I sat down to eat this still warm, fresh goodness - I thought even if I have to take Imodium sandwiches, it will be worth it 😋 No ill effects, either overnight or today!  Half the loaf is now gone because I had some for supper, saving just one last slice for breakfast in the morning` - I've used the bathroom once and that was normal, so maybe it is not the gluten after all? Can't wait to try a beer! 😁
    • trents
      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
    • Celiacpartner
      Thanks so much for the responses. I will urge him to go for further investigation. To be 48yrs old and develop a new allergy.. ugh, As if celiac disease isn’t enough! 
    • trents
      This does not seem to be an anaphylactic response but I agree it would be wise to seek allergy-food sensitivity testing. You might look into ALCAT food sensitivity testing.
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