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I'm hashimotos,Need some answers


lillybel

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lillybel Newbie

Hello everyone :) 

Before jumping to my question , I think I should tell my story.

3 years ago, I was diagnosed with Hashimoto's (autoimmune thyroiditis) . I didn't have any allergic response to food. But , interestingly, I was running away from food because I was feeling a little bloated when I eat . I was feeling good when I kept my stomach empty , so I lost a huge amount of weight . Everyone thought that I had eating disorder because I became a skeleton . Then , I had some intolerance and allergy tests . It showed that I was gluten intolerant,but not severe.Also it showed that I was severely allergic to dairy.

I didn't mind eating gluten because I wasn't celiac.But last year,I started to get sick too often.I had intestinal inflammation and bacterial overgrowth.Doctor gave me antibiotics which made me even worse than before.I was throwing up once a week and having diarrhea every day.I couldn't go out for 1-2 weeks. Then I made some research. I saw some papers about gluten allerhy,intolerance - hashimotos connection . I gave up on gluten then quickly healed. I was happy and energetic again.But,a month later I went abroad and eat a lot of glutenous food . I had diarrhea everyday. Again when I come back to home I wen back to my diet. Also,my family were trying to make eat bread,they didn't believe me at first.I was biting a little bit then hiding it :( Anyways I started feel better but not much.A month later I ate gluten for a week,again.This time It was even worse ! I got sick . 

Then school started.My family finally understood the problem about gluten so they started to cook gluten free . I'm gluten free for 8-9 months , unfortunately I ate chickpea stew outside which may had gluten :( I got diarrhea when I ate it and thought that It wasnt soaked well so..I asked them later and they said that It may have a little bit of flour in it.

 Soo my question is , should I test for celiac ?? I won't start eating gluten even if tests came negative.I'm happier and healthier.It also helped my thyroid :D I heard that If you don't eat gluten for long time you can't get accurate test results . I also can't have a endoscopy for some reasons  ..

Keep in mind that I ate cross contaminated foods during 9 month period .And a 1-2 month ago something thickened with flour (I had diarrhea  right after eating) :( 

 

 


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Scott Adams Grand Master

If you can maintain a gluten free diet without a piece of paper that tells you that you need to, why bother? It will lead to higher life and health insurance costs, be a pre-existing condition, etc. 

  • 2 weeks later...
Victoria5289 Apprentice
On 5/7/2017 at 1:03 PM, lillybel said:

Hello everyone :) 

Before jumping to my question , I think I should tell my story.

3 years ago, I was diagnosed with Hashimoto's (autoimmune thyroiditis) . I didn't have any allergic response to food. But , interestingly, I was running away from food because I was feeling a little bloated when I eat . I was feeling good when I kept my stomach empty , so I lost a huge amount of weight . Everyone thought that I had eating disorder because I became a skeleton . Then , I had some intolerance and allergy tests . It showed that I was gluten intolerant,but not severe.Also it showed that I was severely allergic to dairy.

I didn't mind eating gluten because I wasn't celiac.But last year,I started to get sick too often.I had intestinal inflammation and bacterial overgrowth.Doctor gave me antibiotics which made me even worse than before.I was throwing up once a week and having diarrhea every day.I couldn't go out for 1-2 weeks. Then I made some research. I saw some papers about gluten allerhy,intolerance - hashimotos connection . I gave up on gluten then quickly healed. I was happy and energetic again.But,a month later I went abroad and eat a lot of glutenous food . I had diarrhea everyday. Again when I come back to home I wen back to my diet. Also,my family were trying to make eat bread,they didn't believe me at first.I was biting a little bit then hiding it :( Anyways I started feel better but not much.A month later I ate gluten for a week,again.This time It was even worse ! I got sick . 

Then school started.My family finally understood the problem about gluten so they started to cook gluten free . I'm gluten free for 8-9 months , unfortunately I ate chickpea stew outside which may had gluten :( I got diarrhea when I ate it and thought that It wasnt soaked well so..I asked them later and they said that It may have a little bit of flour in it.

 Soo my question is , should I test for celiac ?? I won't start eating gluten even if tests came negative.I'm happier and healthier.It also helped my thyroid :D I heard that If you don't eat gluten for long time you can't get accurate test results . I also can't have a endoscopy for some reasons  ..

Keep in mind that I ate cross contaminated foods during 9 month period .And a 1-2 month ago something thickened with flour (I had diarrhea  right after eating) :( 

 

 

Sometimes diseased cause unexpected allergy

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    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possibly way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
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    • trents
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    • cristiana
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