Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

blood tests

stacieb

Recommended Posts

stacieb Apprentice
stacieb
Posted

after going gluten-free I initially felt better and lost some weight. now I feel fuzzy, foggy, shaky. should I have some blood tests.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
4 hours ago, stacieb said:

after going gluten-free I initially felt better and lost some weight. now I feel fuzzy, foggy, shaky. should I have some blood tests.

Hey did you go gluten free?  And, I would think that feeling like that, you would speak to your doctor.  Lots of reasons to feel that way.

elevenluke Newbie
elevenluke
Posted

As Kareng said, there are numerous reasons for feeling that way. 

The blood tests for celiac disease are not really indicative of exposure in the sense that your levels will be extremely high when you are exposed, and drop down after a few days of gluten free eating. It is possible for levels to be in the elevated range for even a year after going gluten free, in fact it is expected in celiac patients! Continued adherence to a STRICT gluten free diet (including checking medications, condiments, and even things like gum and toothpaste or anything you may swallow is important to ensure gluten is not hidden in). 

As far as your  symptoms go, it could be anything, and you might take comfort in knowing that a lot of times nervousness and anxiety can produce such symptoms. This is not to discredit your symptoms, or to tell you that seeing a doctor is not the best thing to do, as you should always see a doctor if you feel it is necessary--but being aware of whether or not you are continually ingesting gluten, and being conscious of any anxiety you may be feeling for one reason or another is a good place to start in evaluating yourself (worry is a powerful thing). Good luck :)

emma6 Enthusiast
emma6
Posted

i get similar symptoms from low blood sugar, does it stop after you eat something?

ironictruth Proficient
ironictruth
Posted
12 hours ago, stacieb said:

after going gluten-free I initially felt better and lost some weight. now I feel fuzzy, foggy, shaky. should I have some blood tests.

You were negative for celiac you said. How many months ago, 5? Did they do a biopsy? If so, was there any inflammation or damage? 

What symptoms led you to test for celiac? 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,730
    • Most Online (within 30 mins)
      7,748
    Sumac
    Newest Member
    Sumac
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.