Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Symptoms After Going Gluten-Free?


crb1998

Recommended Posts

crb1998 Newbie

Hi everybody! I've been searching for answers to some of these things all morning but can't find much.

I was diagnosed with celiac through a biopsy from my last routine colonoscopy (I've also had Crohn's disease for 12 years) and I've been eating gluten free for about 2 or 3 weeks. I've been having some odd symptoms I didn't have before going gluten free (I didn't have any symptoms before at all actually) such as:

- extreme fatigue

- extreme hunger

- anal discharge/itching

- constipation

- stomach pain

Im just wondering if these are normal at first as my body readjusts? Just freaked out that I'm cross-contaminating myself somehow but I've been extremely careful. The anal discharge and itching is what made me finally post here, it's very uncomfortable. Please tell me if any of you have had a similar experience when first changing your diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Welcome!  

I can not say for sure, but the symptoms you listed can be attributed to celiac disease.  There is a period of adjustment and a very steep learning curve to the gluten-free diet.  I would suggest avoiding processed foods as much as possible until you see improvement or become confident.  Read the Newbie 101 thread pinned at the top of the "Coping" section of the forum.  It contains some valuable tips.  With both Crohn's and celiac disease, you probably have developed some food intolerances too.  Best to keep a food and symptom diary.  Avoid eating out, cut out even certified gluten-free oats too.  Eat soft well-cooked foods like stew or soup.  

Why the change when you were feeling okay prior?  Celiac disease is like a chameleon -- always changing.   My symptoms after a glutening have never been identical.  I just had anemia when I was diagnosed, but I knew of  a few food intolerances and was fine if I avoided them (e.g. Milk).  Yet later, I developed all the classic gut issues when exposed to gluten.  Go figure!

We are here to help each other.  No question is to silly to ask!  

Jmg Mentor
2 hours ago, crb1998 said:

Im just wondering if these are normal at first as my body readjusts?

A lot of people go through a rough first few weeks on the diet. There could be lots of reasons, from the celiac damage or a 'withdrawal' from gluten itself: Open Original Shared Link (ignore the stuff about 'tapering' as this is not aimed at celiac patients)

It shouldn't last however and hopefully you'll soon be feeling better. 

All the best :)

 

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,748
    • Most Online (within 30 mins)
      7,748

    Susie Baby Sister
    Newest Member
    Susie Baby Sister
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Beverage
      I order tea from https://www.republicoftea.com/ All gluten free. Sign up for the newsletter and they send discounts regularly. 
    • Gigi2025
      Hi Theresa,  A few of my friends have your same story. You may be right about barley, etc.  18 years ago at a football game while clapping, suddenly my 4th finger was in agony.  It looked like a vein had burst. It was blue for a couple hours, then disappeared.  Finally realized it happened every time when drinking beer.  It's occurred several times over the years when opening a jar, lifting something that was a bit heavy, holding on to tight to something.  Immediate icing stops the pain and discoloration.  Now avoiding wheat in the US, it rarely happens.  Thanks for the reminder.  Will have Entero Labs run another test. Unfortunately they've relocated to Switzerland/Greece.
    • Russ H
      The EMA test is an old and less sensitive test for anti-tTG2 antibodies. It relies on a technician using a microscope to check for fluorescence of a labelled substrate (typically monkey oesophagus or human umbilicus), giving a simple positive/negative result. It is similar to running a standard anti-tTG2 test but with a high cut-off, making it more specific but less sensitive. Transient rises in tTG2 can be caused by e.g. viral infections and inflammation. Very high levels of anti-tTG2 (>x10 standard range) are almost certainly coeliac disease but moderately raised levels can have several causes apart from coeliac disease. Other food allergies can cause villi blunting but that is much rarer than coeliac disease or other non-coeliac causes. Not All That Flattens Villi Is Celiac Disease: A Review of Enteropathies
    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.