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What do these results mean?


Em97

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Em97 Newbie

Hello. I am 20 and was recently diagnosed with hasimotoo's diese. In the round of blood work my endocrinologist did to find out what was going on with me, there was a celic diese panel. The results are attached. Could someone please explain to me what they mean? Thank you. ^_^

Screenshot_2017-05-21-01-25-41.png


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kareng Grand Master

What did e doctor say?  Those say that you have Celiac.  Did he refer you to a GI doctor?  That should usually be the next step.

tessa25 Rising Star

Yep, those results mean you should get an appt with a gastroenterologist for an endoscopy.

cyclinglady Grand Master

Looks like you might be on your way to a celiac disease diagnosis.  As much as I like having easy access to medical records online, it can be unnerving to see results that are potentially scary or life altering.  You need to call your doctor and set up a GI appointment.  Until then, read some reliable celiac websites and learn about this autoimmune condition, testing and treatment.  

The University of Chicago has a vast website to read.  Here is a link and a place to start:

Open Original Shared Link

This is IMPORTANT.....keep eating gluten.  Do not stop.  All the celiac tests require a person to be on gluten.  

Learn about the diet and tips on our thread Newbie 101 under the coping section.  Get to the library and read celiac books.  More knowledge will help you make better choices and you will feel better physically and emotionally.  

Hugs!  You will be okay.  This is one autoimmune disorder (unlike your Hashi's) that can be managed by food alone!  Yeah!  ?

 

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      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
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      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
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      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
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