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Celiac Prevention

Sare

By Sare
in Related Issues & Disorders

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Sare Newbie
Sare
Posted

I'm getting married soon (8 days) so we've been thinking about future and children and such. Is there anything I can do to prevent my child from getting celiac? I have it and I'm very sensitive. I was diagnosed at 9 after my dad was. Is there any way for me to keep my children from going through that? 

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cyclinglady Grand Master
cyclinglady
Posted

Welcome to the forum.  

Unfortunately, celiac disease is an autoimmune disease that is genetic, but not all people who carry the genes (about 30 to 40% of the population) go on to develop it.   I have a daughter who has two parents (one confirmed celiac and the other not) who can not tolerate gluten.  It would seem as though she would be doomed, but so far, she has tested negative.  Autoimmune disorders run rampant in both our families.  The only thing you can do is hope for the best.  The good news is that you are armed with knowledge and if you do have children who develop celiac disease, you can recongnize it right away.  

We all want to prevent our children from suffering or going through any kind of hardship.  We can not prevent it, but we can teach them the skills necessary for coping with anything life throws at them.  

Best wishes in your upcoming wedding.  Enjoy it!  

Ennis-TX Grand Master
Ennis-TX
Posted

I hate to say it and be Mr. Negative ass here. But I had this exact same thought about having kids, I do not wish any kids I have to have my AI issues, and decided I would wait a few decades if need be for the new gene editing things they are working on so we can have them changed. Call me crazy.

BergieF Explorer
BergieF
Posted
12 hours ago, Sare said:

I'm getting married soon (8 days) so we've been thinking about future and children and such. Is there anything I can do to prevent my child from getting celiac? I have it and I'm very sensitive. I was diagnosed at 9 after my dad was. Is there any way for me to keep my children from going through that? 

My 13 and 7 year old have Celiac Disease and my 4 year old has the genes.  I have a double dose of the genes so no matter what my children will get a gene that could develop into the disease.  I hope that my youngest son doesn't ever develop the disease, but his dr said it could activate later in life.  My kids are thriving, they have normal lives, they are smart and have gained knowledge about food that they can carry with them throughout their life.   They really don't let anything stop them from living a normal life.  I think you'll have the upper hand if you choose to have kids.  You'll have the knowledge of what to do to keep them safe if they do have Celiac Disease.  You'll be able to relate since you were young when you were diagnosed.  How was it for you growing up? 

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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