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Was recovering. Now New throat issues..?

Alexacourtney01

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Alexacourtney01 Rookie
Alexacourtney01
Posted

Hey, so I have been diagnosed a year now this aug, this part month i have had swelling in my throat, I thought I had scratched it trying to get a popcorn kernel out (also very bad choice) but it just got worse.  Every time I eat it feels like it's swelling till I can barely breath. It's been a few days now where I have basically had water or a snack here or there some soup or very soft fruit.  I went to clinic, hospital then finally family dr who sent me for an ultrasound since she thinks it is a cyst or nodule on my thyroid. She also gave me meds for silent reflux but they havnt dont anything, can barely get them down.   Has anyone else has this?? Help please. 

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cyclinglady Grand Master
cyclinglady
Posted
3 hours ago, Alexacourtney01 said:

Hey, so I have been diagnosed a year now this aug, this part month i have had swelling in my throat, I thought I had scratched it trying to get a popcorn kernel out (also very bad choice) but it just got worse.  Every time I eat it feels like it's swelling till I can barely breath. It's been a few days now where I have basically had water or a snack here or there some soup or very soft fruit.  I went to clinic, hospital then finally family dr who sent me for an ultrasound since she thinks it is a cyst or nodule on my thyroid. She also gave me meds for silent reflux but they havnt dont anything, can barely get them down.   Has anyone else has this?? Help please. 

I am sorry that you are not well.  I am not a doctor, but many members have been diagnosed with EOE?  Has this been ruled out?  

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Alexacourtney01 Rookie
Alexacourtney01
Posted
  • Author

Went to the dr and the ultra sound came back negative, so since the popcorn swelling I guess I created subconsciously that I can't eat without it swelling and have massive panic attacks when doing so.  So, I have to try and over come that and build up eating confidence again, and know that it isn't going to swell closed even tho that's how it feels. If it doesn't go away I'll have to seek a specialist because it doesn't look like anything ?  So now I feel crazy lol. 

knitty kitty Grand Master
knitty kitty
Posted

Hello, 

Was the popcorn contaminated with gluten, maybe a flavoring?  Corn has "stuff" in it that may trigger a reaction.

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Corn is also high in Sulfites which can cause problems for some people if they developed a sensitivity or have asthma.

It's not all in your head. You're body is trying to tell you something....just have to figure out what it's saying.  

Hope this helps.

Alexacourtney01 Rookie
Alexacourtney01
Posted
  • Author

Hey, there was a popcorn shell stuck in my throat so it was swollen for about 2 weeks. But as per the tests they came back normal I don't know what my body is telling me but. Wish I knew because it's making me mental and I'm starving. 

Estes Contributor
Estes
Posted
23 hours ago, Alexacourtney01 said:

Hey, there was a popcorn shell stuck in my throat so it was swollen for about 2 weeks. But as per the tests they came back normal I don't know what my body is telling me but. Wish I knew because it's making me mental and I'm starving. 

I have EOE and I was recently put on an inhaled steroid that I swallowed rather than breathed in.  I felt like it helped quite a bit.  Have you been tested for eosinaphalic esophagitis otherwise known as allergy esophagitis?

TexasJen Collaborator
TexasJen
Posted

About 6 weeks ago, I started to have new symptoms after being gluten-free for 11 months.  I had sore throat, trouble swallowing, chest pain radiating to my back, and the sensation of my food as it went down my esophagus.  I started taking meds for reflux (omeprazole) and it took 4 weeks of taking it daily for the symptoms to subside.  I cut out coffee, alcohol, spicy foods and eating or drinking anything within 2-3 hours of laying down. 

I got in to see my GI and he thinks i have EoE. Scope is scheduled for later this summer (after I stop the omeprazole). 

Good luck figuring it out!

 

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    • marion wheaton
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      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
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