Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Need Celiac Specialist In Nyc


MatthewKNorton

Recommended Posts

MatthewKNorton Newbie

Help! I have a long history of gastritis.
Now I have such symptoms as- intolerance to dairy products, acute pain over the navel, especially after eating, decrease in appetite, steatorrhea.
My family doctor says that I probably have celiac disease. Please advise me a good specialist in New York.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
22 minutes ago, MatthewKNorton said:

Help! I have a long history of gastritis.
Now I have such symptoms as- intolerance to dairy products, acute pain over the navel, especially after eating, decrease in appetite, steatorrhea.
My family doctor says that I probably have celiac disease. Please advise me a good specialist in New York.

Your family doctor can get the diagnosis process started by ordering the Celiac blood panel.  The GI is going to need that, and it might save you a few weeks time by getting it done before your first GI appointment.  

cyclinglady Grand Master

Here is some testing information:

Open Original Shared Link

Do not go on on gluten free diet until all testing is complete!  

ironictruth Proficient

Columbia has a celiac research center.

MatthewKNorton Newbie
21 hours ago, cyclinglady said:

Here is some testing information:

Open Original Shared Link

Do not go on on gluten free diet until all testing is complete!  

Thank you very much for your advice and recommendations.

MatthewKNorton Newbie

Hi, everybody!  Today I visited Open Original Shared Link, where I passed my blood test. Now I'm waiting for the results. I was impressed with  Dr. Shawn Khodadadian's approach to my problem. As soon as I get my results I'll let You know. 

Jmg Mentor
1 hour ago, MatthewKNorton said:

Hi, everybody!  Today I visited Open Original Shared Link, where I passed my blood test. Now I'm waiting for the results. I was impressed with  Dr. Shawn Khodadadian's approach to my problem. As soon as I get my results I'll let You know. 

Fingers crossed you get the answers you need. :)

The site CyclingLady linked to above is really good if you want to get further information on the diagnostic process and / or celiac in general. 

Best of luck!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MatthewKNorton Newbie
On 6/30/2017 at 0:08 PM, Jmg said:

Fingers crossed you get the answers you need. :)

The site CyclingLady linked to above is really good if you want to get further information on the diagnostic process and / or celiac in general. 

Best of luck!

Thanks)

MatthewKNorton Newbie

I have already got the results of my analyses, thanks GOD I don't have celiac.  I was impressed with  Open Original Shared Link work. If I have some problems with my health I would go to his clinic.

cyclinglady Grand Master

Good news!  Please just make sure that you had the complete celiac panel taken.  I never test positive to the TTG even in follow-up testing.  If my GI had not ordered the entire panel, my diagnosis would have been missed.    Remember, that some celiacs are seronegative (about 10%).  

What was the diagnosis, if you don't mind sharing?  

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,564
    • Most Online (within 30 mins)
      7,748

    larrybrinkley
    Newest Member
    larrybrinkley
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
    • knitty kitty
    • knitty kitty
      Hi, @Ginger38, I've had shingles in the past.  I understand how miserable you're feeling.   Not only do i have the chickenpox virus lurking about, I also have the cold sore virus that occasionally flares with a huge cold sore on my lip when stressed or exposed to gluten.  The virus lives dormant in the nerves on the left side of my face.  It causes Bell's Palsy (resulting in drooling).  The cold sore virus is also in my eye.  My eye swells up and my vision is diminished permanently whenever I have a flare, so it's of the utmost importance to keep flares away and treat them immediately if they do happen so I don't lose any more vision.   I take the amino acid supplement L-Lysine.  Lysine messes with the replication of viruses, which helps the body fight them off.   I haven't had an outbreak for several years until this year when exceptionally stressed and contaminated, it flared up again. Lysine has been shown to be beneficial in suppression of viruses like the cold sore virus (a herpetic virus), the chickenpox virus (also a herpetic virus), as well as the HIV virus, and even the Covid virus.   I also take additional Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) because Thiamine has antiviral properties as well.   For pain, a combination of Thiamine (like TTFD or Benfotiamine or Thiamine Hydrochloride), with B12 Cobalamine, and Pyridoxine B6 have been shown to have analgesic properties which relieve pain and neuropathy.    The combination of Thiamine B1, Pyridoxine B6 and Cobalamine B12 really does work to relieve pain.  I take it for back pain from crushed vertebrae in my back.  This combination also works on other pain and neuropathy.   I usually buy a supplement that combines all three and also Riboflavin B2 called EXPLUS online.  However, it's made in Japan and the price with the tariffs added makes it really expensive now.  But the combination of Thiamine B1, Pyridoxine B6 and B12 Cobalamine (and Riboflavin B2) still work even if taken separately.   I can't take Tylenol or ibuprofen because of stomach upsets.  But I can take the vitamin combination without side effects.  However, you can take the three vitamins at the same time as other pain relievers for added benefit.  The vitamins help other pain relievers work better. I hope you will try it.  Hopeful you'll feel better quickly. Interesting Reading: Thiamine, cobalamin, locally injected alone or combination for herpetic itching: a single-center randomized controlled trial https://pubmed.ncbi.nlm.nih.gov/23887347/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/ Analgesic and analgesia-potentiating action of B vitamins https://pubmed.ncbi.nlm.nih.gov/12799982/ A Narrative Review of Alternative Symptomatic Treatments for Herpes Simplex Virus https://pmc.ncbi.nlm.nih.gov/articles/PMC10301284/
    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.