Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Levothyroxine question


Victoria1234

Recommended Posts

Victoria1234 Experienced

So my new med is generic levothyroxine for hypothyroidism.

it says on the internet to take it first thing, 30 minutes before food, with 8oz of water.

usually my day begins with coffee, which I put milk and sugar in. Is this considered food? Will this be bad? Or should I take the pill and go back to sleep for 30 minutes?

I've also been taking a supplement of magnesium citrate at night, just 1 pill. The internet says avoid milk of magnesia and other magnesium products. I'm assuming I should stop the magnesium?

the website I'm looking at is this: Open Original Shared Link

thanks for any help. I don't want to screw this up!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PinkyGurl Explorer

When taking thyroid meds yes you need to take on empty stomach with water only 30-60 minutes prior to eating.  You should also avoid dairy or calcium containing things 4 hours around the pill as it decreases absorption.  Magnesium at bedtime will be fine as it leaves plenty of time before your thyroid pill.  Another option is to set an alarm for in the middle of the night to take your thyroid pill.  That way you could have your dairy creamer in the am with your coffee.

Victoria1234 Experienced
49 minutes ago, PinkyGurl said:

When taking thyroid meds yes you need to take on empty stomach with water only 30-60 minutes prior to eating.  You should also avoid dairy or calcium containing things 4 hours around the pill as it decreases absorption.  Magnesium at bedtime will be fine as it leaves plenty of time before your thyroid pill.  Another option is to set an alarm for in the middle of the night to take your thyroid pill.  That way you could have your dairy creamer in the am with your coffee.

Maybe when I naturally wake up to pee would be good. It's like clockwork.

my dose is 25mg, talk about the doc being cautious, huh? Anyone else taking such a low dose? 

Thank you PinkyGurl!

cyclinglady Grand Master

I have been on thyroid replacement for 20 years.   My doctor initially gave me a tiny dose in hopes that my thyroid would not burn out from Hashi's.   That did not work.  My thyroid has since burned out.  I have taken thyroid replacement prior to bedtime, alternating doses throughout the week, splitting the dosage daily -- all under my doctor's care.  I must admit that I experienced a period of wild and unstable swings during menopause.  It drove my doctor crazy.  

I was super cautious in the beginning following the prescription recommendations...but that did not last.  I drink my coffee with cream as soon as I stumble out of bed.  It has not impacted my lab results at all and my thyroid has been tested plenty.    You should be retested in six weeks.  It takes that long for your body to adjust.  

Your mileage may vary!  

Victoria1234 Experienced
24 minutes ago, cyclinglady said:

I have been on thyroid replacement for 20 years.   My doctor initially gave me a tiny dose in hopes that my thyroid would not burn out from Hashi's.   That did not work.  My thyroid has since burned out.  I have taken thyroid replacement prior to bedtime, alternating doses throughout the week, splitting the dosage daily -- all under my doctor's care.  I must admit that I experienced a period of wild and unstable swings during menopause.  It drove my doctor crazy.  

I was super cautious in the beginning following the prescription recommendations...but that did not last.  I drink my coffee with cream as soon as I stumble out of bed.  It has not impacted my lab results at all and my thyroid has been tested plenty.    You should be retested in six weeks.  It takes that long for your body to adjust.  

Your mileage may vary!  

Thanks for the advice!

hey, how does one know they have hashis vs. simply hypothyroidism? 

Ok so maybe I'll do the coffee thing anyways. My pharmacist who I just called a little while ago said it was all about consistency. So if you take with coffee, always take with coffee.

no big worries about the big menopause. I think I'm done with mine. I think, lol. My hot flashes seem to be over. Now tomorrow I'll get them back, right? That must have been a bear to deal with. 

Alright so maybe my doc is ok starting low. Heck it's still amazing they put me on anything at all!

im one to feel a new med almost as soon as I swallow it, so I've got high hopes to feeling a bit better soon. 

Thanks for the advice, cyclinglady 

 

cyclinglady Grand Master

To determine Hashi's or Graves, you need to have your thyroid antibodies tested.  

Over four years past menopause and I STILL get hot flashes.  ? Had one exactly when the nurse was taking my temperature at the start of an office visit.   Hit 101.4, if I recall.  The nurse was amazed.  Within minutes, my temp was normal.  Did I mention he was male?  Told me he is going to be more sympathetic with his wife!  ?

Victoria1234 Experienced
14 hours ago, cyclinglady said:

To determine Hashi's or Graves, you need to have your thyroid antibodies tested.  

Over four years past menopause and I STILL get hot flashes.  ? Had one exactly when the nurse was taking my temperature at the start of an office visit.   Hit 101.4, if I recall.  The nurse was amazed.  Within minutes, my temp was normal.  Did I mention he was male?  Told me he is going to be more sympathetic with his wife!  ?

Wow, I didn't realize our temp really went up during a hot flash! How amazing!

since my hysterectomy in 2008, I've had hot flashes nearly every day until this summer. Recently started an estrogen patch to help them. Forgot to put one on in June and haven't used them since. I used to be able to feel my ovulation, but that hasn't happened in about a year. So I think all has stopped! The only thing left is the chronic pain from a nerve cluster they damaged during the hysterectomy :( 

so does it matter if I get tested for hashi's or do you think it's unlikely? I don't want to start sounding even more crazy to this particular doctor, lol.

 

fyi in case this is what is needed for hashis 

Free t3 

3.50 pg/mL

2.71-6.16 pg/m 

 

Free t4

 
0.92 ng/dL 0.71-1.40 ng/dL

 

Ena test 

 
0.40 ENA Units <0.70 ENA Units

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    2. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    3. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Guinness, can you drink it?

    4. - trents replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      17

      Taking Probiotics but Still Getting Sick After Gluten – Advice?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    MogwaiStripe
    Newest Member
    MogwaiStripe
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.