Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Levothyroxine question


Victoria1234

Recommended Posts

Victoria1234 Experienced

So my new med is generic levothyroxine for hypothyroidism.

it says on the internet to take it first thing, 30 minutes before food, with 8oz of water.

usually my day begins with coffee, which I put milk and sugar in. Is this considered food? Will this be bad? Or should I take the pill and go back to sleep for 30 minutes?

I've also been taking a supplement of magnesium citrate at night, just 1 pill. The internet says avoid milk of magnesia and other magnesium products. I'm assuming I should stop the magnesium?

the website I'm looking at is this: Open Original Shared Link

thanks for any help. I don't want to screw this up!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



PinkyGurl Explorer

When taking thyroid meds yes you need to take on empty stomach with water only 30-60 minutes prior to eating.  You should also avoid dairy or calcium containing things 4 hours around the pill as it decreases absorption.  Magnesium at bedtime will be fine as it leaves plenty of time before your thyroid pill.  Another option is to set an alarm for in the middle of the night to take your thyroid pill.  That way you could have your dairy creamer in the am with your coffee.

Victoria1234 Experienced
49 minutes ago, PinkyGurl said:

When taking thyroid meds yes you need to take on empty stomach with water only 30-60 minutes prior to eating.  You should also avoid dairy or calcium containing things 4 hours around the pill as it decreases absorption.  Magnesium at bedtime will be fine as it leaves plenty of time before your thyroid pill.  Another option is to set an alarm for in the middle of the night to take your thyroid pill.  That way you could have your dairy creamer in the am with your coffee.

Maybe when I naturally wake up to pee would be good. It's like clockwork.

my dose is 25mg, talk about the doc being cautious, huh? Anyone else taking such a low dose? 

Thank you PinkyGurl!

cyclinglady Grand Master

I have been on thyroid replacement for 20 years.   My doctor initially gave me a tiny dose in hopes that my thyroid would not burn out from Hashi's.   That did not work.  My thyroid has since burned out.  I have taken thyroid replacement prior to bedtime, alternating doses throughout the week, splitting the dosage daily -- all under my doctor's care.  I must admit that I experienced a period of wild and unstable swings during menopause.  It drove my doctor crazy.  

I was super cautious in the beginning following the prescription recommendations...but that did not last.  I drink my coffee with cream as soon as I stumble out of bed.  It has not impacted my lab results at all and my thyroid has been tested plenty.    You should be retested in six weeks.  It takes that long for your body to adjust.  

Your mileage may vary!  

Victoria1234 Experienced
24 minutes ago, cyclinglady said:

I have been on thyroid replacement for 20 years.   My doctor initially gave me a tiny dose in hopes that my thyroid would not burn out from Hashi's.   That did not work.  My thyroid has since burned out.  I have taken thyroid replacement prior to bedtime, alternating doses throughout the week, splitting the dosage daily -- all under my doctor's care.  I must admit that I experienced a period of wild and unstable swings during menopause.  It drove my doctor crazy.  

I was super cautious in the beginning following the prescription recommendations...but that did not last.  I drink my coffee with cream as soon as I stumble out of bed.  It has not impacted my lab results at all and my thyroid has been tested plenty.    You should be retested in six weeks.  It takes that long for your body to adjust.  

Your mileage may vary!  

Thanks for the advice!

hey, how does one know they have hashis vs. simply hypothyroidism? 

Ok so maybe I'll do the coffee thing anyways. My pharmacist who I just called a little while ago said it was all about consistency. So if you take with coffee, always take with coffee.

no big worries about the big menopause. I think I'm done with mine. I think, lol. My hot flashes seem to be over. Now tomorrow I'll get them back, right? That must have been a bear to deal with. 

Alright so maybe my doc is ok starting low. Heck it's still amazing they put me on anything at all!

im one to feel a new med almost as soon as I swallow it, so I've got high hopes to feeling a bit better soon. 

Thanks for the advice, cyclinglady 

 

cyclinglady Grand Master

To determine Hashi's or Graves, you need to have your thyroid antibodies tested.  

Over four years past menopause and I STILL get hot flashes.  ? Had one exactly when the nurse was taking my temperature at the start of an office visit.   Hit 101.4, if I recall.  The nurse was amazed.  Within minutes, my temp was normal.  Did I mention he was male?  Told me he is going to be more sympathetic with his wife!  ?

Victoria1234 Experienced
14 hours ago, cyclinglady said:

To determine Hashi's or Graves, you need to have your thyroid antibodies tested.  

Over four years past menopause and I STILL get hot flashes.  ? Had one exactly when the nurse was taking my temperature at the start of an office visit.   Hit 101.4, if I recall.  The nurse was amazed.  Within minutes, my temp was normal.  Did I mention he was male?  Told me he is going to be more sympathetic with his wife!  ?

Wow, I didn't realize our temp really went up during a hot flash! How amazing!

since my hysterectomy in 2008, I've had hot flashes nearly every day until this summer. Recently started an estrogen patch to help them. Forgot to put one on in June and haven't used them since. I used to be able to feel my ovulation, but that hasn't happened in about a year. So I think all has stopped! The only thing left is the chronic pain from a nerve cluster they damaged during the hysterectomy :( 

so does it matter if I get tested for hashi's or do you think it's unlikely? I don't want to start sounding even more crazy to this particular doctor, lol.

 

fyi in case this is what is needed for hashis 

Free t3 

3.50 pg/mL

2.71-6.16 pg/m 

 

Free t4

 
0.92 ng/dL 0.71-1.40 ng/dL

 

Ena test 

 
0.40 ENA Units <0.70 ENA Units

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Xravith's topic in Related Issues & Disorders
      2

      Do Gluten Enzymes actually work?

    2. - Scott Adams replied to Jmartes71's topic in Doctors
      1

      Not validated

    3. - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      My Journey Continues some notes

    4. - Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Going for upper endoscopy today

    5. - Midwesteaglesfan replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Going for upper endoscopy today

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,189
    • Most Online (within 30 mins)
      7,748

    Atl222
    Newest Member
    Atl222
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Your approach makes a lot of sense — focusing on balanced meals and being cautious about cross-contamination is smart, especially when you’re traveling or unsure of a kitchen’s gluten-free practices. Many GF foods do lean toward higher sugar or processed ingredients, so prioritizing whole foods (lean protein, fruits, veggies, healthy fats) at meals can help keep energy steady. For snacks that fill you up, look for protein bars with simple ingredients, higher protein, and lower added sugars — reading labels is key on GF bars since “gluten-free” doesn’t always equal healthy. Pairing a salad with a quality protein bar when you’re unsure about a restaurant’s GF safety is a great strategy to avoid symptoms while still feeling nourished. 
    • Scott Adams
      I agree, unfortunately a gluten challenge means intentional gut damage and inflammation to those with celiac disease, and taking lots of AN-PEP enzymes could potentially decrease this and skew the results, although I've not seen specific studies on this idea.
    • Scott Adams
      I’m really sorry you’re going through this — what you’re describing is, unfortunately, something many long-term celiac patients encounter. A negative blood test after decades gluten-free does not rule out biopsy-proven celiac disease, and it’s frustrating that your documented history isn’t being taken seriously. Being dismissed while you’re dealing with menopause-related changes, neurological concerns, and recovery from a demanding job would exhaust anyone, and it’s understandable that this is affecting your mental health. You deserve care that looks at the full picture, not quick conclusions, and it’s okay to keep advocating for yourself or seek a provider who truly understands complex autoimmune cases. You’re not imagining this, and you’re not alone.
    • Scott Adams
      It sounds like you’re doing a really thoughtful, disciplined job listening to your body and tightening things up where needed. Tracking symptoms alongside foods in MyFitnessPal is a smart next step, especially since bloating and gas can come from specific GF ingredients (like gums, fibers, or certain flours) rather than gluten itself. Your approach to eating out, avoiding places that can’t confirm safety, and planning ahead for travel is exactly how many people stay well long-term. It’s also very common to discover that even “certified” or restaurant GF pizza doesn’t agree with you, so trusting that pattern makes sense. Overall, this reads like progress, not restriction—and the fact that you’re feeling better most of the time suggests you’re on the right path.
    • Scott Adams
      Just be sure that she continues eating lots of gluten daily for at least 2 weeks before the endoscopy, otherwise going gluten-free beforehand could create false negative results.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.