Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Levothyroxine question

Victoria1234

Recommended Posts

Victoria1234 Experienced
Victoria1234
Posted

So my new med is generic levothyroxine for hypothyroidism.

it says on the internet to take it first thing, 30 minutes before food, with 8oz of water.

usually my day begins with coffee, which I put milk and sugar in. Is this considered food? Will this be bad? Or should I take the pill and go back to sleep for 30 minutes?

I've also been taking a supplement of magnesium citrate at night, just 1 pill. The internet says avoid milk of magnesia and other magnesium products. I'm assuming I should stop the magnesium?

the website I'm looking at is this: Open Original Shared Link

thanks for any help. I don't want to screw this up!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


PinkyGurl Explorer
PinkyGurl
Posted

When taking thyroid meds yes you need to take on empty stomach with water only 30-60 minutes prior to eating.  You should also avoid dairy or calcium containing things 4 hours around the pill as it decreases absorption.  Magnesium at bedtime will be fine as it leaves plenty of time before your thyroid pill.  Another option is to set an alarm for in the middle of the night to take your thyroid pill.  That way you could have your dairy creamer in the am with your coffee.

Victoria1234 Experienced
Victoria1234
Posted
  • Author
49 minutes ago, PinkyGurl said:

When taking thyroid meds yes you need to take on empty stomach with water only 30-60 minutes prior to eating.  You should also avoid dairy or calcium containing things 4 hours around the pill as it decreases absorption.  Magnesium at bedtime will be fine as it leaves plenty of time before your thyroid pill.  Another option is to set an alarm for in the middle of the night to take your thyroid pill.  That way you could have your dairy creamer in the am with your coffee.

Maybe when I naturally wake up to pee would be good. It's like clockwork.

my dose is 25mg, talk about the doc being cautious, huh? Anyone else taking such a low dose? 

Thank you PinkyGurl!

cyclinglady Grand Master
cyclinglady
Posted

I have been on thyroid replacement for 20 years.   My doctor initially gave me a tiny dose in hopes that my thyroid would not burn out from Hashi's.   That did not work.  My thyroid has since burned out.  I have taken thyroid replacement prior to bedtime, alternating doses throughout the week, splitting the dosage daily -- all under my doctor's care.  I must admit that I experienced a period of wild and unstable swings during menopause.  It drove my doctor crazy.  

I was super cautious in the beginning following the prescription recommendations...but that did not last.  I drink my coffee with cream as soon as I stumble out of bed.  It has not impacted my lab results at all and my thyroid has been tested plenty.    You should be retested in six weeks.  It takes that long for your body to adjust.  

Your mileage may vary!  

Victoria1234 Experienced
Victoria1234
Posted
  • Author
24 minutes ago, cyclinglady said:

I have been on thyroid replacement for 20 years.   My doctor initially gave me a tiny dose in hopes that my thyroid would not burn out from Hashi's.   That did not work.  My thyroid has since burned out.  I have taken thyroid replacement prior to bedtime, alternating doses throughout the week, splitting the dosage daily -- all under my doctor's care.  I must admit that I experienced a period of wild and unstable swings during menopause.  It drove my doctor crazy.  

I was super cautious in the beginning following the prescription recommendations...but that did not last.  I drink my coffee with cream as soon as I stumble out of bed.  It has not impacted my lab results at all and my thyroid has been tested plenty.    You should be retested in six weeks.  It takes that long for your body to adjust.  

Your mileage may vary!  

Thanks for the advice!

hey, how does one know they have hashis vs. simply hypothyroidism? 

Ok so maybe I'll do the coffee thing anyways. My pharmacist who I just called a little while ago said it was all about consistency. So if you take with coffee, always take with coffee.

no big worries about the big menopause. I think I'm done with mine. I think, lol. My hot flashes seem to be over. Now tomorrow I'll get them back, right? That must have been a bear to deal with. 

Alright so maybe my doc is ok starting low. Heck it's still amazing they put me on anything at all!

im one to feel a new med almost as soon as I swallow it, so I've got high hopes to feeling a bit better soon. 

Thanks for the advice, cyclinglady 

 

cyclinglady Grand Master
cyclinglady
Posted

To determine Hashi's or Graves, you need to have your thyroid antibodies tested.  

Over four years past menopause and I STILL get hot flashes.  ? Had one exactly when the nurse was taking my temperature at the start of an office visit.   Hit 101.4, if I recall.  The nurse was amazed.  Within minutes, my temp was normal.  Did I mention he was male?  Told me he is going to be more sympathetic with his wife!  ?

Victoria1234 Experienced
Victoria1234
Posted
  • Author
14 hours ago, cyclinglady said:

To determine Hashi's or Graves, you need to have your thyroid antibodies tested.  

Over four years past menopause and I STILL get hot flashes.  ? Had one exactly when the nurse was taking my temperature at the start of an office visit.   Hit 101.4, if I recall.  The nurse was amazed.  Within minutes, my temp was normal.  Did I mention he was male?  Told me he is going to be more sympathetic with his wife!  ?

Wow, I didn't realize our temp really went up during a hot flash! How amazing!

since my hysterectomy in 2008, I've had hot flashes nearly every day until this summer. Recently started an estrogen patch to help them. Forgot to put one on in June and haven't used them since. I used to be able to feel my ovulation, but that hasn't happened in about a year. So I think all has stopped! The only thing left is the chronic pain from a nerve cluster they damaged during the hysterectomy :( 

so does it matter if I get tested for hashi's or do you think it's unlikely? I don't want to start sounding even more crazy to this particular doctor, lol.

 

fyi in case this is what is needed for hashis 

Free t3 

3.50 pg/mL

2.71-6.16 pg/m 

 

Free t4

 
0.92 ng/dL 0.71-1.40 ng/dL

 

Ena test 

 
0.40 ENA Units <0.70 ENA Units
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    2. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    3. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    4. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    5. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,017
    • Most Online (within 30 mins)
      7,748
    Kayy
    Newest Member
    Kayy
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.