Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Diagnosed


melsy

Recommended Posts

melsy Newbie

Hi,

This is my first time here. I hope this is the correct place to post this. Sorry if it's not.

I have recently been diagnosed with Celiac disease. I am 25 and live in Australia. For most of my life I have been sick. I catch everything going under the sun. Someone could sneeze at one end of the office building and the next day I'd have caught the cold. I've also had stomach pains since I was a child. I was sent to doctor after doctor and poked and proded and no one could tell me what was wrong until recently. For the last few years I've been on antibiotics every month or so and a few months ago I was on my third lot of antibotics in a month when I was finally tested for celiac disease (which I had never heard of). It's now been 6 months and I haven't been sick or had to take any medication. It's unbelievable. I even have my energy back which has been missing. I had days where I could barely lift my arms above my head. Now youcan't stop me. It's made an amazing difference.

Here in Australia I don't think there is enough awareness made about celiac.

I'm still trialling different foods which has been difficult with gluten-free labeling not great over here.

For any other Australian members I have discovered the cadbury website has a list of their gluten free chocolate. thank goodness, I can't live without my chocolate fix. Also if you email Masterfoods they will send you a very detailed list of their gluten free products.

I hope this helps others.

If anyone has any information about foods, diet etc... I'd really appreciate it.

Thanks for the great forum :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



elonwy Enthusiast

Welcome to the forum. I'm in the US, but I lived in Queensland when I was a kid, so HI.

I myself just got diagnosed in July. Welcome to a whole new world huh?

I accidently found the kraft list for australia one time.

Open Original Shared Link

Foudn this too, thought its for aussies living outside australia

Open Original Shared Link

Is vegemite gluten-free? I suppose not, as its made by Kraft, and I didn't see it on the list. I'm on of those wierd people who likes it with kippers on toast. Its weird here at least.

Hope you fiind good stuff. I have to go feed the cat now before she kills me.

Elonwy

Rusla Enthusiast

I am also a recent diagnosy from Canada. There isn't a lot about in my neck of the woods either. Wish I lived in BC where they have tons more stuff for Celiac's.

Canadian Karen Community Regular

Rusla,

Where is Canada are you?

Karen

Rusla Enthusiast
Rusla,

Where is Canada are you?

Karen

I am in Calgary, AB., Karen.

fisharefriendsnotfood Apprentice

Karen, I'm also in Toronto.

-Jackie

elye Community Regular
Karen, I'm also in Toronto.

-Jackie

And to round it all off nationally, I'm in Ottawa. I've also found that, at least in this part of Canada, there's very little variety in gluten-free foodstuffs. And the prices! Don't get me started! Anyone know where I can get a loaf of gluten-free bread for under five bucks?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



creid Rookie

HI!

I am Australian too, but living in the US. I had been to doctors in Oz and here, 26 years and two countries later I finally have an answer....I'm not a wierdo! Just wanted to say HI.

Elonwy- Thanks for the link to the Australian food website, I will be using it :)

melsy Newbie

Thanks for all the advice, I really appreciate it.

I went to a Christmas Party last night which is hard because trying to work out what I can eat and not does take some of the fun out of it. Anyway we each had to bring a plate of something to share with everyone and I found out there was another girl who also suffers from celias and she brought a gluten free cheesecake. Wow it was fantastic, exaclty like I remember normal cheesecake! I didn't realise how much I missed it until I tried it again. She's sending me the recipe which I'll post on here when I get it.

Thanks again for all the advice and for the links elonwy. :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,164
    • Most Online (within 30 mins)
      7,748

    VGL
    Newest Member
    VGL
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...