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artistsl

By artistsl
in Dermatitis Herpetiformis

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artistsl Enthusiast
artistsl
Posted

I have a rash that is suspected DH. The biopsy results won't come back for another 7-10 business days. I am currently recovering from a gluten challenge where my DH had subsequently turned into a very nasty bacterial infection. It is such a miserable situation. If I eat anything with gluten blisters will form underneath the infection sight. So in addition to not eating gluten, I would like to find a lotion that does not contain gluten. Some of the infection is starting to clear up and is really dry. It definitely could use some moisturizer, but I in no way want to use anything that could make my situation worse. Does anyone have a recommendation for a good lotion that they use regularly?

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cyclinglady Grand Master
cyclinglady
Posted

Vaseline Intensive Care (white bottle) is gluten free.  You can use coconut or olive oil.  What about just some Neosporin (antibiotic ointment)?  That might help the infected areas.  

Alwayssomething Contributor
Alwayssomething
Posted

Vanicream works great, they have a Vanicream Light as well.  I like the regular one best as it goes on nice and thick and isn't oily, it is what my dermatologist recommended years ago and at that time you needed the pharmacy to order it for you.    I find it at Target and CVS.   My DH did not fully clear until I also changed out all my body products to gluten free as well as followed a low iodine diet (a very helpful tip I found on this site from another DH sufferer). 

 

 

artistsl Enthusiast
artistsl
Posted
  • Author

Thank you! Words cannot describe how much this sucks. I am about to lose my mind over this rash. I think I'm going to go back to the dermatologist today to have it swabbed again for infection. It seems like either the infection may be coming back, my DH is flaring like crazy or both. While I'm there I'll see if she can prescribe some dapsone. After that I'll run to CVS to find a gluten free lotion. Also, is there a gluten free shampoo you guys recommend?

cyclinglady Grand Master
cyclinglady
Posted

I use the Costco brand (shampoo and conditioner).    Even says gluten free on the label.  The price is good, which is important when you have a very long-haired teenage girl who most likely uses too much!  We also use Suave because Unilever is good about disclosing ingredients on the product label.  Maybe not the best quality, but again, my teen and I tend to leave bottles at the pool!   

squirmingitch Veteran
squirmingitch
Posted

Cyclinglady & I must be long lost sisters or something. I use the Vaseline Intensive Care (white bottle) also. I was also going to suggest coconut oil or even olive oil. We don't have a Costco here so no Costco shampoo for me but I use the Suave Naturals shampoo - cheap & I have hair down past my rear; it works great & I have zero complaints about it. 

At this point ice packs might be your best friend for the rash. Especially at night in bed, so you can get some sleep. Helps to take the heat out of it. I feel for you. Been there, done that. {{{{{{{{{{{{{artistsl}}}}}}}}}}}

Kimg10 Newbie
Kimg10
Posted

Desert Essence has a line of great gluten free lotions, shampoo, conditioner and other products.  I usually get it online at Vitacost.  I find I need to use products that state "gluten free" on the label to know for sure that I am safe.  

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