Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Cool Is This?

VydorScope

Recommended Posts

VydorScope Proficient
VydorScope
Posted

Man, every parent always wonders what they are in for when they drop off thier child at a trusted day care when the normal teacher not there. Even worse for us with celiac disease-Kids. Well today is a odd day for us because my wife has extra chior practice for the Church Christmas concert, and I had work so needed to leave our son with the childcare at the church. Normaly we plan at least a few extra mins t breif new teachers, even have a full page printed doc for them to refer to if they have any questions, etc etc. He normaly only goes to Sunday school, and twice a week "pre school" there. I do not knwo the staff that works on Saturdays...

Well I saw the teacher and asked if she was familure with my son, and she said "No, but its okay I have Celiac Diseas"

I was speechless, I was not ready for that :lol: I had in my mind all the things to say about it, and what to durring snack time, and etc. I was not at all prepaired for that answer!

This also shows that we are doing a good job getting the word out to the staff there about him, since I did not have to tell her about celiac disease, she knew he had it.

Felt odd to leave there with out the normal speech on it though... like I was betraying my son's care or somthing. :lol:

Oh and get this... She had her son with her, and as I left I heard him say to her "He has celiac disease too? Cool." LOL celiac disease is cool now? Man guess we are the "in crowd" for a change!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Matilda Enthusiast
Matilda
Posted

..

Guest nini
Guest nini
Posted

That is VERY cool! Yep we are the IN crowd now! LOL

traveljunkie Rookie
traveljunkie
Posted

It's amazing how many people have celiac. There's so many out there suffering out there that also have it and don't know it. Before I became sick, I never heard of gluten or celiac.

You're very lucky to have found daycare with a celiac caregiver. I'm sure it gives you peace of mind. :)

Rusla Enthusiast
Rusla
Posted

Well now everyone will want this, so they can be part of the "IN" crowd.

Believe me, I didn't want years of agony to be part of this.

nettiebeads Apprentice
nettiebeads
Posted

Yep, that is so cool! Not that I think it's great to have celiac disease, but I am so looking forward to the day when it'll be like saying you have diabetes - and get an understanding and/or sympathetic nod instead of the blank stare and endless questions.

Becky6 Enthusiast
Becky6
Posted

That is cool!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Merika Contributor
Merika
Posted

That is cool!

Granted, I live in Los Angeles, city of unusual foods and diets, but at a recent moms meeting we had several new people, about 8-10 moms total plus kids, and at least 3 of the families were wheat free :) :) And, we just found out the boy down the street is gluten free. :) :) So now we know where to go if there is an earthquake and all that's handed out are the dreaded MREs, lol....

Merika

Lauren M Explorer
Lauren M
Posted

Vincent - that must have been so relieving! That is beyond cool! As awareness increases and more people are diagnosed w/celiac disease, I think this will happen more and more. :)

- Lauren

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,078
    • Most Online (within 30 mins)
      7,748
    Deb baker
    Newest Member
    Deb baker
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Colleen H
      Gluten related ??

      By Colleen H · Posted

      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      My only proof

      By AlwaysLearning · Posted

      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      Gluten related ??

      By AlwaysLearning · Posted

      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
    • Russ H
      KAN-101 Treatment for Coeliac Disease

      By Russ H · Posted

      This treatment looks promising. Its aim is to provoke immune tolerance of gluten, possibly curing the disease. It passed the phase 2 trial with flying colours, and I came across a post on Reddit by one of the study volunteers. Apparently, the results were good enough that the company is applying for fast track approval.  Anokion Announces Positive Symptom Data from its Phase 2 Trial Evaluating KAN-101 for the Treatment of Celiac Disease https://www.reddit.com/r/Celiac/comments/1krx2wh/kan_101_trial_put_on_hold/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.