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New and confused

BabyBelladonna

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BabyBelladonna Newbie
BabyBelladonna
Posted

I have had lupus fibromyalgia ibs or spastic colon since 1998. Now i had allergy testing labs on blood. Im allergic to gluten, almonds, oats, barley, cadida yeast, aspiragillys(molds), broccoli, cabbage, clams goats milk, kidney pinto navy and soybeans, pork, sesame, spinach and canola oil. I don't know what to eat now. I've always eaten say at olive garden or anything and had terrible stomach pains like labor. Then run to the bathroom. Or constipation i cant go for a week or so. I tried spark vitamin drink had gluten, soy powder allergic. Health bars larabars gluten. My weight can be 129 one week 120 next or go to 104 fast.  Not sure what to do now. How can regain my life back? Could i have celiac not ibs? I have 3 other auto immune system diseases. Any food resources would be great and vitamins with no soy or gluten. Plus beverages. Ive had hives a month now from my almond butter gluten and vitamin drinks lol steroids and epi pen. Oh and high cholesterol. So everything i ate to lower that im allergic to. Plus a list of secondary allergy foods a mile long.

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cyclinglady Grand Master
cyclinglady
Posted
1 hour ago, BabyBelladonna said:

I have had lupus fibromyalgia ibs or spastic colon since 1998. Now i had allergy testing labs on blood. Im allergic to gluten, almonds, oats, barley, cadida yeast, aspiragillys(molds), broccoli, cabbage, clams goats milk, kidney pinto navy and soybeans, pork, sesame, spinach and canola oil. I don't know what to eat now. I've always eaten say at olive garden or anything and had terrible stomach pains like labor. Then run to the bathroom. Or constipation i cant go for a week or so. I tried spark vitamin drink had gluten, soy powder allergic. Health bars larabars gluten. My weight can be 129 one week 120 next or go to 104 fast.  Not sure what to do now. How can regain my life back? Could i have celiac not ibs? I have 3 other auto immune system diseases. Any food resources would be great and vitamins with no soy or gluten. Plus beverages. Ive had hives a month now from my almond butter gluten and vitamin drinks lol steroids and epi pen. Oh and high cholesterol. So everything i ate to lower that im allergic to. Plus a list of secondary allergy foods a mile long.

Welcome!  

The best way to determine if you have celiac disease is to take a simple blood test, but you need to be consuming gluten daily.  So, do not go gluten free before testing.

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honestly, those allergy tests are not accurate.  

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If you test negative to the celiac tests, then try the gluten free diet then.   It may help your other Autoimmune issues.  

Chronic hives lasting more than six months can be autoimmune related.  Allergies that cause anaphylactic reactions are not common.  What exactly are you allergic to that requires an epi pen?  What does your allergist say about this huge list of foods to avoid?  

 

BabyBelladonna Newbie
BabyBelladonna
Posted
  • Author

Making a appointment with allergist. Just saw gp i had a bad reaction staying at a dr friends home. He suggested the bloodwork. I got home and broke out again after seeing my dr maybe 3 hours after my appointment. He said a lupus sun reaction. Gave me steroid shots. Im always on 20 mg prednisone and azithromyacin every other day. They gave me the epi pen earlier in the day. I never used it. I take steroids and steroid eye drops and steroid inhalers. I just used those everytime i broke out as well as benadryl and promethazine. I keep 3 kinds of allergy meds in my purse. I never know if im going to get hives after i eat or run to the restroom and be ill.  I had lower gi pockets in intestine.

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