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Does It Get Better?


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key Contributor

Ev,

Good for you!!! Guess I should stop pouting and go cook! LOL! IT does save money not eating out.

Monica


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StrongerToday Enthusiast

It's funny - I was never one to cook either... but... a girls gotta do what a girls gotta do!! Do you have any good cookbooks? I search my library for them and try to make at least one new thing every week or two. A lot of these dishes I'm sure no one could tell they were GFDF either!

jenvan Collaborator

Lisa-

I agree with Tiffany, if you have DH, you have Celiac...and the benefits are just as valuable to you as to the rest of us--and just as crucial. You may not have some of the worse symptoms yet, but it is only a matter ot time before the damage catches up with you...I do believe that. I'm glad I was able to encourage you a bit. Please let us know when you do revisit the subject--many of us care about you and the decision you make!

frustratedneicey Apprentice

I am an anxiety riddled mess most days, so I know how it feels. Sometimes medicines can help, but you did mention maybe therapy. A really good therapist can work with you and teach you some great coping skills. I finally found a good one I just started seeing recently. Find someone who will work with you, that works with people who have chronic illness. As everyone knows, this is a grieving process, and good coping skills will go a long way. I only go once every two weeks, so it is not so bad. I am a divorced mother of 3, with a boyfriend and his child, and I am also ill with what they are coming closer to diagnosing as MS. I go through alot of emotional and physical turmoil to get to my appointments, but,you will find time, believe me. It's worth it!!!

Idahogirl Apprentice

Thank you for all of the encouragement! I have been diagnosed with celiac, I was just saying that if I don't take my dapsone, I would be miserable on the outside, so even if I wanted to cheat or quit, it wouldn't be worth it.

I have a great therapist-Jesus! He gets me through a lot.

Lisa

jenvan Collaborator

Amen to Jesus Lisa :) Your prayer for the new year could be perserverance. Maybe the verse from James 1 can become your verse for 06..."Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the testing of your faith develops perseverance. Perseverance must finish its work so that you may be mature and complete, not lacking anything." Merry Christmas!

key Contributor

Jen,

I try and claim that promise too. Many times when I have reached the end of my rope, I have literally begged GOd to help me and He hasn't failed me yet, but I have been at some pretty low points, so if someone needs a therapist or medicine, then I think they should. Sometimes when I get real low, I believe it is because I am not taking care of myself. I have three small children and homeschool. My daily exercise routine keeps me happy!

monica


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jenvan Collaborator

Monica-

Sounds like you have a full house and a full plate! Glad to hear He hasn't failed you yet...me neither :) I totally agree on not taking care of oneself--when I haven't taken time--I get run down, burned out and moody quickly! (My dh can vouch for that!) Merry Christmas!

christianne Newbie

I would like to add my thoughts on effexor as well. I had tried, I think< just about every pill out there. I didn't want to rely on Xanax b/c it is so addictive. Effexor has been a life saver for me. I function in life without the panic attacks and my moods are more even. If you are having anxiety, don't feel weird about taking medication for it. The difference you will feel in your quality of life will be so much better. Effexor has been great for me, unfortunately, though, there is no generic for it and it can be expensive - even with insurance. Good luck!

darlindeb25 Collaborator

What does steak, cheese, and/or tuna have to do with Celiac disease or gluten intolerance? I'm new to this forum and just recently finding out about Celiac and possibly tying it to my ailments. Are these foods related somehow?

I wanted to add my thoughts to this. I dont eat any beef anymore, it's too hard on my stomach--beef is one of the toughest foods to digest. Cheese can be a problem for anyone with a problem with dairy--thank God I never had that intolerance. Tuna can be bad for the celiac who cant tolerate soy--there are a few brands that do not use soy for their vegetable broth in the tuna--I buy Bumble Bee brand tuna in the foil packets--no soy.

As for the panic, it does get better, if you are meaning true panic attacks. Panic attacks are caused by a chemical imbalance and once you get the gluten out of your system and the vitamins and minerals start working again, usually the chemical imbalance gets better too. My panic is almost gone--rarely I will still have a panic attack, but I think it is more an enviromental problem then chemical. Keep at it, things do get better. Deb

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    • trents
      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
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