Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

speech delay b/c of gluten?


izamo12

Recommended Posts

izamo12 Newbie

My son was diagnosed with celiac disease at about 1 year and hald. Before he started to get sick, he was blabbering alot of making noise. In the months following the dx he lost alot of weight, became less active, and became unitrested in thing, and rarely made noise or said anything. hes is now 2 and a half and he is just now starting to say more words and attempting to talk more. His gross motor skills are above average, thats what his therapist said. I guess my question is, is it possible that his speech delay is because of him being sick before, would eating gluten affect his speech?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master
34 minutes ago, izamo12 said:

My son was diagnosed with celiac disease at about 1 year and hald. Before he started to get sick, he was blabbering alot of making noise. In the months following the dx he lost alot of weight, became less active, and became unitrested in thing, and rarely made noise or said anything. hes is now 2 and a half and he is just now starting to say more words and attempting to talk more. His gross motor skills are above average, thats what his therapist said. I guess my question is, is it possible that his speech delay is because of him being sick before, would eating gluten affect his speech?

YES, i have gluten atexia with my celiac and it can cause nerve issues and brain issues. I sometimes stumble for words and wording. We have another member I talked to who looses much of their speech ability when glutened. They explain it as they know what they should say but the words do not come to them, like they can identify a object the the name does not connect with it. It is hard to explain unless you have it but that about sums it up.

Eating gluten with celiac disease can cause your antibodies to flare for weeks. Side effects especially the neurological ones can linger for months. If you son has these then yes each glutenening could be setting him back weeks if not months on his ability to try to learn to speech and process words. The disinterest, lack of activity, etc. Sounds like he might get the brain fog that many of us get. Our minds just become foggy and do not work right, sorta dazed out of it.  At his age where he should be learning this core and critical skills being like this for a few days or a week could set him back and he has to try learning again.

Victoria1234 Experienced

Hello, I had a son who was speech delayed so I know how scary it can be. Mine is 19 now and He is never quiet anymore! I can hardly remember those days!

Im trying to understand his story. He was ok before he was diagnosed, but afterwards he stopped making progress towards speech? What changed besides going gluten-free, if anything? Was it immediately afterwards or was it weeks or months afterwards? Because it would make much more sense to have symptoms resolve on a gluten-free diet. Unless he was gluten-free for a good amount of time, and then had accidental gluten, and had a temporary setback like Ennis spoke of. But again, being affected by accidental gluten is something that happens once one is on the gluten-free diet for awhile.

Glad you have a good therapist. We had good luck with all of ours and we were so blessed with his treatment. Took awhile to actually get one as our first ped said it was just a boy thing and he'd outgrow not talking. Luckily we moved and the new ped was on top of things!

 

pschwab Enthusiast

My son was two and a half when diagnosed. We didn't notice any speech issues, but we did see a dramatic increase in vocabulary and grammar about a month after going gluten free. My theory is that he was so focused on how terrible he was feeling physically that he couldn't focus on developing his verbal skills until he started to heal. He's four now and his verbal skills are on or above age level.

ch88 Collaborator

Celiac disease can cause the types of symptoms you mentioned.  A speech delay can also be a sign of autism spectrum disorder even without motor or coordination problems. Pku is another common diet related disorder. i don't have the medical knowledge to know if that is what is going on or not in this case.

  • 1 year later...
Ssarahharas Newbie

I have a 5-year-old son with autism who cannot speak and we go to speech therapy to overcome it. Therapy fees are a bit expensive for us and we are looking for alternatives. We have found an app designed for children with autism called Otsimo | Speech Therapy SLP and they have an app about speech. We started using it and it was really useful. I would like to share the app's site with you http://app.otsimo.org/speech, hopefully it will be useful for you.

  • 11 months later...
Zzmama Newbie

I just wanted to mention that I just found this thread. My daughter was diagnosed today with celiac and off the chart inflammation. She suffers from speech delays. I absolutely believe the two are linked after seeing these comments and a study, “Celiac presenting as autism” which outlines cases of improved speech with diet changes . Thank you to the parents for your encouraging references to your own children’s improvements. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Second chance

    3. - Scott Adams replied to elisejunker44's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Schar's products contain wheat!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,601
    • Most Online (within 30 mins)
      7,748

    Dale S
    Newest Member
    Dale S
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
    • Scott Adams
      It’s true that awareness of celiac disease can vary among physicians, particularly outside of gastroenterology, and many patients end up educating their own providers. Reaching out to someone you trusted for 25 years makes sense if you felt heard and supported. That said, celiac disease management often benefits from a team approach, including a knowledgeable primary care provider and, when needed, a gastroenterologist or dietitian familiar with gluten-related disorders. Advocating for yourself is not unreasonable—it’s part of managing a chronic condition. If your current provider relationship isn’t working, it’s appropriate to seek care where you feel respected and properly supported.
    • Scott Adams
      I understand why that feels concerning. Some Schär products use specially processed wheat starch that has had the gluten removed to meet strict gluten-free standards (under 20 ppm in the U.S. and EU), which is why they can legally and safely be labeled “gluten free” for people with celiac disease. However, wheat must still be listed in the ingredients and allergen statement because it is derived from wheat, even though the gluten protein has been removed. For individuals with a true wheat allergy, these products are not appropriate—but for those with celiac disease, properly tested gluten-free wheat starch is considered safe under current medical guidelines. That said, it’s completely reasonable to prefer products made without wheat starch if that gives you greater confidence, and clearer front-of-package communication could certainly help reduce confusion for shoppers.
    • elisejunker44
      I have enjoyed Schar's gluten free products for years. However, some items Do contain Wheat and are not clearly labeled on the front. Indeed the package states 'gluten free' on the front, and it is not until you read the ingredient label that one see's wheat as the first ingredient. Some celiacs may be willing to take a chance on this 'gluten free wheat', but not me. I strongly feel that the labeling for these wheat containing products should be clearly labeled on the front, with prehaps a different color and not using the 'no gluten symbol on the front. The products are not inexpensive, and also dangerous for my health!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.