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speech delay b/c of gluten?


izamo12

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izamo12 Newbie

My son was diagnosed with celiac disease at about 1 year and hald. Before he started to get sick, he was blabbering alot of making noise. In the months following the dx he lost alot of weight, became less active, and became unitrested in thing, and rarely made noise or said anything. hes is now 2 and a half and he is just now starting to say more words and attempting to talk more. His gross motor skills are above average, thats what his therapist said. I guess my question is, is it possible that his speech delay is because of him being sick before, would eating gluten affect his speech?


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Ennis-TX Grand Master
34 minutes ago, izamo12 said:

My son was diagnosed with celiac disease at about 1 year and hald. Before he started to get sick, he was blabbering alot of making noise. In the months following the dx he lost alot of weight, became less active, and became unitrested in thing, and rarely made noise or said anything. hes is now 2 and a half and he is just now starting to say more words and attempting to talk more. His gross motor skills are above average, thats what his therapist said. I guess my question is, is it possible that his speech delay is because of him being sick before, would eating gluten affect his speech?

YES, i have gluten atexia with my celiac and it can cause nerve issues and brain issues. I sometimes stumble for words and wording. We have another member I talked to who looses much of their speech ability when glutened. They explain it as they know what they should say but the words do not come to them, like they can identify a object the the name does not connect with it. It is hard to explain unless you have it but that about sums it up.

Eating gluten with celiac disease can cause your antibodies to flare for weeks. Side effects especially the neurological ones can linger for months. If you son has these then yes each glutenening could be setting him back weeks if not months on his ability to try to learn to speech and process words. The disinterest, lack of activity, etc. Sounds like he might get the brain fog that many of us get. Our minds just become foggy and do not work right, sorta dazed out of it.  At his age where he should be learning this core and critical skills being like this for a few days or a week could set him back and he has to try learning again.

Victoria1234 Experienced

Hello, I had a son who was speech delayed so I know how scary it can be. Mine is 19 now and He is never quiet anymore! I can hardly remember those days!

Im trying to understand his story. He was ok before he was diagnosed, but afterwards he stopped making progress towards speech? What changed besides going gluten-free, if anything? Was it immediately afterwards or was it weeks or months afterwards? Because it would make much more sense to have symptoms resolve on a gluten-free diet. Unless he was gluten-free for a good amount of time, and then had accidental gluten, and had a temporary setback like Ennis spoke of. But again, being affected by accidental gluten is something that happens once one is on the gluten-free diet for awhile.

Glad you have a good therapist. We had good luck with all of ours and we were so blessed with his treatment. Took awhile to actually get one as our first ped said it was just a boy thing and he'd outgrow not talking. Luckily we moved and the new ped was on top of things!

 

pschwab Enthusiast

My son was two and a half when diagnosed. We didn't notice any speech issues, but we did see a dramatic increase in vocabulary and grammar about a month after going gluten free. My theory is that he was so focused on how terrible he was feeling physically that he couldn't focus on developing his verbal skills until he started to heal. He's four now and his verbal skills are on or above age level.

ch88 Collaborator

Celiac disease can cause the types of symptoms you mentioned.  A speech delay can also be a sign of autism spectrum disorder even without motor or coordination problems. Pku is another common diet related disorder. i don't have the medical knowledge to know if that is what is going on or not in this case.

  • 1 year later...
Ssarahharas Newbie

I have a 5-year-old son with autism who cannot speak and we go to speech therapy to overcome it. Therapy fees are a bit expensive for us and we are looking for alternatives. We have found an app designed for children with autism called Otsimo | Speech Therapy SLP and they have an app about speech. We started using it and it was really useful. I would like to share the app's site with you http://app.otsimo.org/speech, hopefully it will be useful for you.

  • 11 months later...
Zzmama Newbie

I just wanted to mention that I just found this thread. My daughter was diagnosed today with celiac and off the chart inflammation. She suffers from speech delays. I absolutely believe the two are linked after seeing these comments and a study, “Celiac presenting as autism” which outlines cases of improved speech with diet changes . Thank you to the parents for your encouraging references to your own children’s improvements. 


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    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
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      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
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