Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice Needed, Im Newly Diagnosed


JessicaB

Recommended Posts

JessicaB Explorer

My name is Jessica. I have been through alot since i gave birth to my daughter last year. Since then, which i had a great pregnancy with no problems or sickness, i have had servere stomach pain, bloating etc. I have been to about 5 different doctors and finally

i just got the blood test from my new gastronologist. He was the first one who said that i may have Celiac Disease. I never heard of it. I got my bloodwork back last week and he told me that one of the levels was a 72! Which i think is really high, he said it was. Another level was below normal and he said with those combined that i have celiac disease. I have to get a endoscopy and a biopsy done in January to confirm, but the test said that it is 99% accurate that i have celiac disease. I am worried. I have looked up alot of information but can really use some stories to make me feel like im not alone. Any advice, emails or lists please email me with your stories. Thanks!

lots of luv

jessica

22years old from Maryland


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor

Jessica:

Don't worry. Celiac Disease is not a life sentence, it is a life style change. That change in your hand. No pills, no surgery, just simply, a diet change.

I won't elaborate here as there are many on this forum that are about your age and many other who develope Celiac Disease after childbirth.

I'm sure that they will be very helpful to you now.

For now, keep your food intake simple. Search this site for recipies, lotions, lipstick, shampoos (that can get in your mouth)

This is a time to study this site and ask as many questions of us as you need. There is a national phrase that is often used, "Celiacs Helping Celiacs".

There is most definately a time to adjust with many emotions, but we are here to help. All you need to do is ask.

Other relies will come.

Best of luck

Lisa B.

traveljunkie Rookie

Hello Jessica, and Welcome!! :)

I became gluten intolerant after taking antibiotics in Feb of this year, and like you I had never heard of celiac or gluten. Now with many months of research, and a gluten free diet, I have never felt better. I look back on all the health issues I've had in the past, and can see a pattern that probably was brought on by gluten. I've had on and off diarrhea or constipation, rashes, joint aches, etc., and I believe the antibiotics just pushed my body to it's limits.

I had blood tests done, and they came back negative. I had been gluten free for months, so it was probably false negative. I have tested positive through enterolab, but regardless of those results, I would have remained gluten free anyway. I did find the diet limiting in the beginning, but now it's just natural to me.

I'm not sure where you live, but most health stores and bigger grocery chains, sell gluten free foods. There are also great online stores that ship right to your door. I do alot of my shopping that way. It'll become easier for you as you learn more. This forum is great, just type in the search, for any topic you want info on.

Don't worry, like the other post said it's just a dietary change, you'll be fine.

Charlene :)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,163
    • Most Online (within 30 mins)
      7,748

    Estee
    Newest Member
    Estee
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • DAR girl
      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...