Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could someone help my with my blood test results?

Baz-781

Recommended Posts

Baz-781 Rookie
Baz-781
Posted

Hi everyone I actually dont know where to start but anyway im kind of excited i think finally fount my problem i have so many symptoms pains nerve pain fatigue severe depression loads more to list i hust hope someone can help i got tested in 2013 for celiacs and it came back positive heres my results

 

2013-  TTG-  iga- POSITIVE- level      20 U/ml the lab range is (0-6.9)

serum endomysium antibodies 

weak positive serology suggestive of celiacs disease

 

 

 

2017 results 

10 U/mL      (0.0-6.9)

(TTG) IgA   Equivocal 

 

 

Theirs lods of others test which i dont what they but i can post them

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jmg Mentor
Jmg
Posted

Hello again. 

It would be interesting to see if there's any other tests that have been ran.  These are the ones in common usage at the moment:

Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

You've had the TTG which I believe is the most accurate and popular, but others here know more about this.

Both tests appear to be above the range you posted, can you recheck to make sure there's not a sliding scale: 

eg 0.6.9 negative, 6.9-xx Weak positive  xx-xx Positive

Given what you posted in your previous thread I think you may be on to something, but you will need to first recheck those tests and then make an appt to see your doctor.  I know this second test hasn't been classed as positive, but you have 2 tests showing elevated antibodies and you have symptoms. That may be enough for a referral to a specialist and maybe an endoscopy to check you out for celiac damage. 

There's some links etc in this post which may be helpful, especially the links to symptoms of celiac/gluten sensitivity...

https://www.celiac.com/forums/topic/115138-suggestion-faq-intro-post-for-the-diagnosis-board-input-requested/?tab=comments#comment-970127

One thing, stay eating gluten! I know you may be anxious to cut it out, but until you finish testing that would be a mistake. 

Best of luck!
Matt

 

Baz-781 Rookie
Baz-781
Posted
  • Author
30 minutes ago, Jmg said:

Hello again. 

It would be interesting to see if there's any other tests that have been ran.  These are the ones in common usage at the moment:

Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

You've had the TTG which I believe is the most accurate and popular, but others here know more about this.

Both tests appear to be above the range you posted, can you recheck to make sure there's not a sliding scale: 

eg 0.6.9 negative, 6.9-xx Weak positive  xx-xx Positive

Given what you posted in your previous thread I think you may be on to something, but you will need to first recheck those tests and then make an appt to see your doctor.  I know this second test hasn't been classed as positive, but you have 2 tests showing elevated antibodies and you have symptoms. That may be enough for a referral to a specialist and maybe an endoscopy to check you out for celiac damage. 

There's some links etc in this post which may be helpful, especially the links to symptoms of celiac/gluten sensitivity...

https://www.celiac.com/forums/topic/115138-suggestion-faq-intro-post-for-the-diagnosis-board-input-requested/?tab=comments#comment-970127

One thing, stay eating gluten! I know you may be anxious to cut it out, but until you finish testing that would be a mistake. 

Best of luck!
Matt

 

Hi matt going back to making an appointment would be totally useless and the doctors wouldn't do a damn thing these test result orint i went in and collect months after the test. I had to request the 2013 test results they literally told me nothing was wrong.

Jmg Mentor
Jmg
Posted

Ah. You're not the only one to have a lousy experience with doctors but I'm sorry to read that nonetheless...

Ok, so you may need to make some decisions on your best way forward. :)

You may have celiac, it would explain the symptoms you've written about. You may have a problem with gluten called NCGS, which is what I have. Or you may have neither. If more testing is not available to you then consider going gluten free. Keep a food and symptom diary and give the diet a good length of time to give it a proper chance. Note down how you feel and any changes you notice. If you react positively you have an answer of sorts. It's not a diagnosis, but it may be enough for you to stay honest on the diet in the years to come.

I hope you've found your answers! 

All the best

Matt

Baz-781 Rookie
Baz-781
Posted
  • Author
13 minutes ago, Jmg said:

Ah. You're not the only one to have a lousy experience with doctors but I'm sorry to read that nonetheless...

Ok, so you may need to make some decisions on your best way forward. :)

You may have celiac, it would explain the symptoms you've written about. You may have a problem with gluten called NCGS, which is what I have. Or you may have neither. If more testing is not available to you then consider going gluten free. Keep a food and symptom diary and give the diet a good length of time to give it a proper chance. Note down how you feel and any changes you notice. If you react positively you have an answer of sorts. It's not a diagnosis, but it may be enough for you to stay honest on the diet in the years to come.

I hope you've found your answers! 

All the best

Matt

Ive just jad a qucim scan over my results again and my serum endomysium antibodies wass was a weak positive aswell i dont know if that indicates anything?

cyclinglady Grand Master
cyclinglady
Posted

It means you should get a referral to a GI as you have had some positives on the blood panel and it only takes one positive on the panel to move forward to complete the diagnosis.  But it sounded like you were done with doctors.  

Baz-781 Rookie
Baz-781
Posted
  • Author
15 hours ago, Baz-781 said:

Ive just jad a qucim scan over my results again and my serum endomysium antibodies wass was a weak positive aswell i dont know if that indicates anything?

 

6 hours ago, cyclinglady said:

It means you should get a referral to a GI as you have had some positives on the blood panel and it only takes one positive on the panel to move forward to complete the diagnosis.  But it sounded like you were done with doctors.  

Yeah the doctor dont a give a crap they didn't inform me of a positive test in 2013 i have so many symptoms like pind and needles join pain scalp problem stomach pain fluctuating bowels fatigue depression etc i just dont know how to go about im 21  

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748
    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.