Could someone help my with my blood test results?

[Baz-781]

Hi everyone I actually dont know where to start but anyway im kind of excited i think finally fount my problem i have so many symptoms pains nerve pain fatigue severe depression loads more to list i hust hope someone can help i got tested in 2013 for celiacs and it came back positive heres my results

 

2013-  TTG-  iga- POSITIVE- level      20 U/ml the lab range is (0-6.9)

serum endomysium antibodies 

weak positive serology suggestive of celiacs disease

 

 

 

2017 results 

10 U/mL      (0.0-6.9)

(TTG) IgA   Equivocal 

 

 

Theirs lods of others test which i dont what they but i can post them

 

[Jmg]

Hello again. 

It would be interesting to see if there's any other tests that have been ran.  These are the ones in common usage at the moment:

Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

You've had the TTG which I believe is the most accurate and popular, but others here know more about this.

Both tests appear to be above the range you posted, can you recheck to make sure there's not a sliding scale: 

eg 0.6.9 negative, 6.9-xx Weak positive  xx-xx Positive

Given what you posted in your previous thread I think you may be on to something, but you will need to first recheck those tests and then make an appt to see your doctor.  I know this second test hasn't been classed as positive, but you have 2 tests showing elevated antibodies and you have symptoms. That may be enough for a referral to a specialist and maybe an endoscopy to check you out for celiac damage. 

There's some links etc in this post which may be helpful, especially the links to symptoms of celiac/gluten sensitivity...

https://www.celiac.com/forums/topic/115138-suggestion-faq-intro-post-for-the-diagnosis-board-input-requested/?tab=comments#comment-970127

One thing, stay eating gluten! I know you may be anxious to cut it out, but until you finish testing that would be a mistake. 

Best of luck!
Matt

 

[Baz-781]

30 minutes ago, Jmg said:

Hello again. 

It would be interesting to see if there's any other tests that have been ran.  These are the ones in common usage at the moment:

Anti-Endomysial (EMA) IgA
Anti-Tissue Transglutaminase (tTG) IgA
Deamidated Gliadin Peptide (DGP) IgA and IgG
Total Serum IgA

You've had the TTG which I believe is the most accurate and popular, but others here know more about this.

Both tests appear to be above the range you posted, can you recheck to make sure there's not a sliding scale: 

eg 0.6.9 negative, 6.9-xx Weak positive  xx-xx Positive

Given what you posted in your previous thread I think you may be on to something, but you will need to first recheck those tests and then make an appt to see your doctor.  I know this second test hasn't been classed as positive, but you have 2 tests showing elevated antibodies and you have symptoms. That may be enough for a referral to a specialist and maybe an endoscopy to check you out for celiac damage. 

There's some links etc in this post which may be helpful, especially the links to symptoms of celiac/gluten sensitivity...

https://www.celiac.com/forums/topic/115138-suggestion-faq-intro-post-for-the-diagnosis-board-input-requested/?tab=comments#comment-970127

One thing, stay eating gluten! I know you may be anxious to cut it out, but until you finish testing that would be a mistake. 

Best of luck!
Matt

 

Hi matt going back to making an appointment would be totally useless and the doctors wouldn't do a damn thing these test result orint i went in and collect months after the test. I had to request the 2013 test results they literally told me nothing was wrong.

[Jmg]

Ah. You're not the only one to have a lousy experience with doctors but I'm sorry to read that nonetheless...

Ok, so you may need to make some decisions on your best way forward.

You may have celiac, it would explain the symptoms you've written about. You may have a problem with gluten called NCGS, which is what I have. Or you may have neither. If more testing is not available to you then consider going gluten free. Keep a food and symptom diary and give the diet a good length of time to give it a proper chance. Note down how you feel and any changes you notice. If you react positively you have an answer of sorts. It's not a diagnosis, but it may be enough for you to stay honest on the diet in the years to come.

I hope you've found your answers! 

All the best

Matt

[Baz-781]

13 minutes ago, Jmg said:

Ah. You're not the only one to have a lousy experience with doctors but I'm sorry to read that nonetheless...

Ok, so you may need to make some decisions on your best way forward.

You may have celiac, it would explain the symptoms you've written about. You may have a problem with gluten called NCGS, which is what I have. Or you may have neither. If more testing is not available to you then consider going gluten free. Keep a food and symptom diary and give the diet a good length of time to give it a proper chance. Note down how you feel and any changes you notice. If you react positively you have an answer of sorts. It's not a diagnosis, but it may be enough for you to stay honest on the diet in the years to come.

I hope you've found your answers! 

All the best

Matt

Ive just jad a qucim scan over my results again and my serum endomysium antibodies wass was a weak positive aswell i dont know if that indicates anything?

[cyclinglady]

It means you should get a referral to a GI as you have had some positives on the blood panel and it only takes one positive on the panel to move forward to complete the diagnosis.  But it sounded like you were done with doctors.  

[Baz-781]

15 hours ago, Baz-781 said:

Ive just jad a qucim scan over my results again and my serum endomysium antibodies wass was a weak positive aswell i dont know if that indicates anything?

 

6 hours ago, cyclinglady said:

It means you should get a referral to a GI as you have had some positives on the blood panel and it only takes one positive on the panel to move forward to complete the diagnosis.  But it sounded like you were done with doctors.  

Yeah the doctor dont a give a crap they didn't inform me of a positive test in 2013 i have so many symptoms like pind and needles join pain scalp problem stomach pain fluctuating bowels fatigue depression etc i just dont know how to go about im 21