Symptoms caused by gluten intolerance?

[Kirsty40]

Thanks. Will see what the doc has to say next week. 

[Gluten-free-01]

5 hours ago, Kirsty40 said:

Gluten free 01, I totally agree that gluten free light is not good.

I sometimes have to eat every hour. This seems to be related to low cortisol and low female hormones. Maybe also other deficiencies. I don’t think going gluten free is the only solution to this problem. I am sure with the help of a good doctor I will get there.

And yes, so true that the food you get bad withdrawal from is usually very bad for you.

How long did withdrawal last for you?

It depends.. It could be the only solution because when we are gluten intolerant, it can impact us in many different ways. Yes, even female hormones – PMS, menstrual cycle problems, fertility problems, pregnancy complications, miscarriage etc.

Let us know what the holistic doctor says..

Normally, you would want to rule out celiac first and then consider NCGS. I hope you have been tested properly – i.e. the full celiac panel etc. Some doctors don’t know much about it and they would only run one blood test instead of seven, for instance.

My withdrawal lasted for about a month. If you tend to get hypoglycemic, try to eat regularly. But you may get some withdrawal symptoms anyway – that’s just the way it is. If you’re gluten intolerant, it’s like a price you have to pay so that you can feel much better and healthier for the rest of your life..  

And you’re right about other possible deficiencies – many people with this condition do have some vitamin/mineral deficiencies and take supplements.      

[Jmg]

Hello again Kirsty

I think Ennis above and this post from GF01 have said it all:

3 hours ago, Gluten_free_01 said:

Normally, you would want to rule out celiac first and then consider NCGS. I hope you have been tested properly – i.e. the full celiac panel etc. Some doctors don’t know much about it and they would only run one blood test instead of seven, for instance.

My withdrawal lasted for about a month. If you tend to get hypoglycemic, try to eat regularly. But you may get some withdrawal symptoms anyway – that’s just the way it is. If you’re gluten intolerant, it’s like a price you have to pay so that you can feel much better and healthier for the rest of your life..  

If your doctor wants to exclude celiac then at least you're currently eating gluten and the test can be performed. Once testing is complete I think you should properly come off gluten, even if you test negative. Your symptoms remind me a lot of my own before I removed it from the diet. You could be suffering needlessly when a simple diet change could be at the root of all those different symptoms. I hope you get a solution.

Best of luck!

Matt

[Kirsty40]

Celiac has already been excluded. I had a biopsy recently and also about ten years ago. Also the standard blood test several times. 

[Jmg]

1 hour ago, Kirsty40 said:

Celiac has already been excluded. I had a biopsy recently and also about ten years ago. Also the standard blood test several times. 

Celiac was excluded in my case also Kirsty, negative blood and endoscopy.  There are potentially more people out there with a problem with gluten who test negative for celiac than there are celiacs themselves. It's called None Celiac Gluten Sensitive or NCGS. It would explain both many of your symptoms and the reaction you noticed when you reduced yr gluten intake. 

[Gluten-free-01]

I agree with Matt.

Kirsty, the decision is up to you, of course..

[Kirsty40]

Oh I will get off. It’s just that with stage 3 or 4 adrenal fatigue, I need a doctor to monitor things. 

Does anyone of you want to chat with me via Facebook Messenger? Would like to hear more about your stories. If so, send me a private message here.

[Gluten-free-01]

I'm sorry, I'm working on 2 important projects now and the deadlines are tight, so I won't be able to chat. However, if you have any questions, you can ask here on the forum - there are many experienced people who have a lot of knowledge. Or you can read other discussions; search the website for keywords.

I hope you feel better soon.