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Gluten vs. Fructan

Lex-

By Lex-
in Super Sensitive People

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Lex- Explorer
Lex-
Posted

Hi everyone. 

I was just wondering if anyone knew of an easy way to determine whether one's gastrointestinal reaction is to gluten or to fructan.

Cheers,

Lex

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Jmg Mentor
Jmg
Posted
3 hours ago, Lex_ said:

Hi everyone. 

I was just wondering if anyone knew of an easy way to determine whether one's gastrointestinal reaction is to gluten or to fructan.

Cheers,

Lex

Hi Lex,

First step would be to eliminate celiac. Gluten is well established as the cause of celiac.

If you eliminate celiac but still react to gluten foods then it becomes trickier. Non Celiac Gluten sensitivity NCGS is still not universally accepted and there are differing views on whether gluten, or another part of the grain may be causing symptoms. Fructan, polyols and more are cited. There's some research that suggests Fodmaps are a liklier cause in those with IBS like symptoms. 

But first things first. Have you eliminated celiac? :)

 

cyclinglady Grand Master
cyclinglady
Posted

Symptoms from many illnesses often overlap, so you can not diagnose celiac disease based on them (not to mention that there are over 200 possible symptoms).    Best to get a simple blood test.  Learn more about testing:

Open Original Shared Link

Lex- Explorer
Lex-
Posted
  • Author
15 hours ago, Jmg said:

Hi Lex,

First step would be to eliminate celiac. Gluten is well established as the cause of celiac.

If you eliminate celiac but still react to gluten foods then it becomes trickier. Non Celiac Gluten sensitivity NCGS is still not universally accepted and there are differing views on whether gluten, or another part of the grain may be causing symptoms. Fructan, polyols and more are cited. There's some research that suggests Fodmaps are a liklier cause in those with IBS like symptoms. 

But first things first. Have you eliminated celiac? :)

 

Hi Jmg, and thanks for your response.

 

2 weeks ago I went gluten free without having tested for celiac. I know now that that was a mistake but unfortunately I did not know at the time. As I have been informed, to do a blood test one have to be on gluten for at least 6 weeks prior to the test.

 

In any case, by the end of the first gluten free week, I felt exceptional improvements in typical IBS symptoms. I had higher energy, and I generally felt much better. By the end of the second week, however, some of the symptoms began to recur, like fatigue and upset stomach. 

 

I know I am a noob and probably I should wait longer for my system to stabilise, so, I apologise if my post is noobish.

Lex- Explorer
Lex-
Posted
  • Author
13 hours ago, cyclinglady said:

Symptoms from many illnesses often overlap, so you can not diagnose celiac disease based on them (not to mention that there are over 200 possible symptoms).    Best to get a simple blood test.  Learn more about testing:

Open Original Shared Link

Unfortunately it's too late for the blood test unless I go back on gluten again, which is not something I want to do.

 

Thanks for the link you shared. It is instructive.

Jmg Mentor
Jmg
Posted
18 hours ago, Lex_ said:

 2 weeks ago I went gluten free without having tested for celiac. I know now that that was a mistake but unfortunately I did not know at the time. As I have been informed, to do a blood test one have to be on gluten for at least 6 weeks prior to the test.

In any case, by the end of the first gluten free week, I felt exceptional improvements in typical IBS symptoms. I had higher energy, and I generally felt much better. By the end of the second week, however, some of the symptoms began to recur, like fatigue and upset stomach. 

I know I am a noob and probably I should wait longer for my system to stabilise, so, I apologise if my post is noobish.

A mistake that many of, myself included, made! Don't feel bad about it, feel good that you've at least identified a possible cause. :)

I was faced with a similar choice a few years ago and opted to go back onto gluten for a 'challenge' to see if I had celiac. I kept a food diary during this time and tracked the reappearance of symptoms, some gastro intestinal but primarily neurological. I tested negative for celiac much to my surprise, but the challenge confirmed gluten as an issue, so NCGS is best diagnosis I'm likely to get for now at least. 

Your question re fructans is a good one and not easy to answer. The fact you've asked it suggests you've done some research and are aware of the unclear science once celiac is excluded. For what its worth I think that what may happen is that some people who get IBS relief from a gluten free diet are indeed correct to avoid the foods, but incorrect in identifying gluten as the cause.  Open Original Shared Link, polyols, or other parts of the wheat,carbs rather than proteins. 

However there are also well documented cases where gluten itself is the culprit, some more info on this here and I believe this is where I sit.  

You need to decide what level of uncertainty you can live with. Medical assistance will depend on reintroducing gluten. If you do it with a food diary you may learn more about your reactions, maybe even be able to customise your diet to your own body. Most importantly, you would properly exclude celiac as a cause, which is important because its a serious condition and if you do have it, far better to know for both you and your family who may also want to be tested. 

Finally, I collected some links and info here some time ago, it may be useful. 

Best of luck :)

Matt

Lex- Explorer
Lex-
Posted
  • Author
On 11/21/2017 at 11:26 AM, Jmg said:

A mistake that many of, myself included, made! Don't feel bad about it, feel good that you've at least identified a possible cause. :)

I was faced with a similar choice a few years ago and opted to go back onto gluten for a 'challenge' to see if I had celiac. I kept a food diary during this time and tracked the reappearance of symptoms, some gastro intestinal but primarily neurological. I tested negative for celiac much to my surprise, but the challenge confirmed gluten as an issue, so NCGS is best diagnosis I'm likely to get for now at least. 

Your question re fructans is a good one and not easy to answer. The fact you've asked it suggests you've done some research and are aware of the unclear science once celiac is excluded. For what its worth I think that what may happen is that some people who get IBS relief from a gluten free diet are indeed correct to avoid the foods, but incorrect in identifying gluten as the cause.  Open Original Shared Link, polyols, or other parts of the wheat,carbs rather than proteins. 

However there are also well documented cases where gluten itself is the culprit, some more info on this here and I believe this is where I sit.  

You need to decide what level of uncertainty you can live with. Medical assistance will depend on reintroducing gluten. If you do it with a food diary you may learn more about your reactions, maybe even be able to customise your diet to your own body. Most importantly, you would properly exclude celiac as a cause, which is important because its a serious condition and if you do have it, far better to know for both you and your family who may also want to be tested. 

Finally, I collected some links and info here some time ago, it may be useful. 

Best of luck :)

Matt

Hi Matt,

 

Thank you very much for a thorough response. Your link seems to cover pretty much all the questions one might have in my current situation. I appreciate it.

 

Have a wonderful day,

Lex

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Jmg Mentor
Jmg
Posted
10 minutes ago, Lex_ said:

Hi Matt,

 

Thank you very much for a thorough response. Your link seems to cover pretty much all the questions one might have in my current situation. I appreciate it.

 

Have a wonderful day,

Lex

It's good to know it was of use, thanks for letting me know :) 

All the best,

Matt

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