Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Testing after Gluten exposure

celichris

Recommended Posts

celichris Rookie
celichris
Posted

Every time I get exposed to gluten (4 times this year) my Dr wants to test me. I have always been seronegative. I was confirmed celiac through genetics ( I have two genes and considered extremely high risk) plus endoscopy after a three week exposure. 

Do your Dr's have you tested every time you get exposed? I think for me its a waste of time and money since I always come back negative.  I am going in tomorrow because I ate two slices of pizza that was either full gluten or had A LOT of gluten cross contamination one month ago. I am STILL recovering from this. Nobody else was sick during that time I got sick and we have 6 of us in our home. 

I am just curious if that is standard for Drs to test again after exposure? If it takes months to get a positive test while eating a lot of gluten then why would they request this test after someone has be gluten-free for 5-1/2 years and just exposed to it? It just doesn't make sense to me.

 

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

I haven't had a doctor do a panel on me since I was diagnosed. IMHO your doctor would be better off checking your vitamin levels and for anemia, liver function etc. If your still having D then stool testing to make sure you didn't get food poisoning or something along those lines would be in order. There really isn't anything they can do to help us get over a severe glutening so maybe he/she is doing the test because he/she thinks you want it done? Have you asked why they are doing it?

cyclinglady Grand Master
cyclinglady
Posted
2 hours ago, celichris said:

Every time I get exposed to gluten (4 times this year) my Dr wants to test me. I have always been seronegative. I was confirmed celiac through genetics ( I have two genes and considered extremely high risk) plus endoscopy after a three week exposure. 

Do your Dr's have you tested every time you get exposed? I think for me its a waste of time and money since I always come back negative.  I am going in tomorrow because I ate two slices of pizza that was either full gluten or had A LOT of gluten cross contamination one month ago. I am STILL recovering from this. Nobody else was sick during that time I got sick and we have 6 of us in our home. 

I am just curious if that is standard for Drs to test again after exposure? If it takes months to get a positive test while eating a lot of gluten then why would they request this test after someone has be gluten-free for 5-1/2 years and just exposed to it? It just doesn't make sense to me.

 

 

I do not get it either.  While nice to check on follow-up visits,  the jury is still out on the relationship of antibodies and intestinal damage.  

I test positive to only the DGP IgA.  My GI has ordered the the entire panel a few times and now just orders the DGP IgA if I request it.  It saves money for sure.  I confess that I have mostly returned a month or so for testing after what I think was a hidden gluten exposure.  I go, because my post-glutening symptoms change so much.  In five years I have never had a normal DGP IgA.  For piece of mind, I want to be able to figure out what may have glutened me (but I have never definitively been able to identify a source — lots of speculation).  

So, I plan on getting another endoscopy to make sure I have healed over the past five years or at least confirm that my gluten-free diet is working.  

So, what else could elevate my DGP IgA?  Another AI (I already have Hashimoto’s)?  I find very little on the subject.    Celiac disease does not receive much funding and post diagnosis studies are not in abundance.  

Ask your doctor why.  

 

kareng Grand Master
kareng
Posted
57 minutes ago, celichris said:

Every time I get exposed to gluten (4 times this year) my Dr wants to test me. I have always been seronegative. I was confirmed celiac through genetics ( I have two genes and considered extremely high risk) plus endoscopy after a three week exposure. 

Do your Dr's have you tested every time you get exposed? I think for me its a waste of time and money since I always come back negative.  I am going in tomorrow because I ate two slices of pizza that was either full gluten or had A LOT of gluten cross contamination one month ago. I am STILL recovering from this. Nobody else was sick during that time I got sick and we have 6 of us in our home. 

I am just curious if that is standard for Drs to test again after exposure? If it takes months to get a positive test while eating a lot of gluten then why would they request this test after someone has be gluten-free for 5-1/2 years and just exposed to it? It just doesn't make sense to me.

 

 

Unless its prolonged - like 12 weeks, it probably wouldn't show in a Celiac person's blood test.  Maybe your doctor is trying to convince you you don't have Celiac buy showing you negative tests?  

Actually- how does your doctor even know you were "glutened"?  I don't all my doctor up if it happens.  She can't do anything about it

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Rebeccaj's topic in Super Sensitive People
      4

      symptoms.

      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and...
    2. knitty kitty
      - knitty kitty replied to NCalvo822's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Newly Diagnosed

      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure. These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract. Joints can ache, thyroid problems or the pancreas can develop. Ataxia is just one of over two hundred...
    3. knitty kitty
      - knitty kitty replied to Rebeccaj's topic in Super Sensitive People
      4

      symptoms.

      @Rebeccaj, When you smell toast or pasta cooking, that means that particles of that food are floating around in the air. Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract. If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies...
    4. Rebeccaj
      - Rebeccaj replied to Rebeccaj's topic in Super Sensitive People
      4

      symptoms.

      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour Airbourne without eating.?
    5. knitty kitty
      - knitty kitty replied to CeliacPI's topic in Related Issues & Disorders
      8

      Lymphocytic Colitis with Celiac

      Do discuss this recent article with your doctors. Thiamine Vitamin B 1 is important to intestinal health. Thiamine deficiency can occur in Celiac Disease due to malabsorption. Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms. Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,518
    • Most Online (within 30 mins)
      7,748
    Lois S
    Newest Member
    Lois S
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      symptoms.

      By trents · Posted

      Should not be a problem except for the most sensitive celiacs. The amount of gluten that would get in the air from cooking alone has got to be miniscule. I would be more concerned about cross contamination happening in other ways in a living environment where others are preparing and consuming gluten-containing foods. Thinks like shared cooking surfaces and countertops. And what about that toaster you mentioned?
    • knitty kitty
      Newly Diagnosed

      By knitty kitty · Posted

      Hello, @NCalvo822, Blood tests for Celiac Disease test for antibodies our bodies make in response to gluten exposure.  These Tg IgA 2 antibodies mistakenly attack our own bodies, causing problems in organs and tissues other than just the digestive tract.  Joints can ache, thyroid problems or the pancreas can develop.  Ataxia is just one of over two hundred symptoms of Celiac Disease. Some people with Celiac Disease also make tTg IgA 6 antibodies in response to gluten exposure.  The tTg IgA 6 antibodies attack the brain, causing ataxia.  These tTg IgA 6 antibodies are also found in people with Parkinson's disease, though they may not have Celiac Disease.  First degree relatives (parents, siblings, children) of those diagnosed with Celiac should be tested as well.  Celiac is genetic.  Your mom and sister should be tested for Celiac, too!   Definitely a good idea to keep to a gluten free diet.  
    • knitty kitty
      symptoms.

      By knitty kitty · Posted

      @Rebeccaj,  When you smell toast or pasta cooking, that means that particles of that food are floating around in the air.  Airborne gluten can then be inhaled and swallowed, meaning the food particles get into your digestive tract.   If you're careful to avoid gluten and are still having symptoms, those symptoms could be caused by vitamin deficiencies.  
    • Rebeccaj
      symptoms.

      By Rebeccaj · Posted

      ok thanks for your advice. But my question was what happens when someone you know in a house is cooking pasta or toast that's flour  Airbourne without eating.?
    • knitty kitty
      Lymphocytic Colitis with Celiac

      By knitty kitty · Posted

      Do discuss this recent article with your doctors.  Thiamine Vitamin B 1 is important to intestinal health.  Thiamine deficiency can occur in Celiac Disease due to malabsorption.  Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms.   Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming in macrophages https://pubmed.ncbi.nlm.nih.gov/39890689/#:~:text=Our mechanistic study revealed that,necessary to protect against colitis. "Conclusion and implications: Our study provides evidence linking thiamine deficiency with proinflammatory macrophage activation and colitis aggravation, suggesting that monitoring thiamine status and adjusting thiamine intake is necessary to protect against colitis."
×
×
  • Create New...