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Recovery


travelthomas

What is your approximate percentage of recovery?  

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travelthomas Apprentice

Please add an expiation to you answer in a post. Thank you for your time. B)


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travelthomas Apprentice

I voted 100% to the recovery of my celiac disease. Now when I eat a meal, the food gives me energy, and when I have "not" eaten, I feel worse. I am now left with the clean up of the resulting problems from being sick for so long (arthritis, allergies, etc.). B)

plantime Contributor

I was very fortunate to have caught it before any severe damage occured. It only took a month gluten-free to feel better and be able to eat without getting sick to my stomach. I have lots of extra energy, but my joints are very stiff and achy. The muscles feel like they are full of fluid. The doctor put me on 25 mg of Vioxx a day because blood test revealed the protein for ostearthritis. I have had this since I was 14 <_< . Ah, well. Cleaning up the body takes time!

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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