Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I’m new please help


Lovelyjess

Recommended Posts

Lovelyjess Newbie

I need help! I’m not sure if it’s gluten or a fatty intolerance that I have but I can hardly eat anything without having a leaky gut ? even just the smell of fast food can trigger my body, and it can happen up to 3 or 4 times within an hour. I am getting checked for it in April (so far away I know) and it’s always leaky gut never vomiting or anything like that. And it just happens, it’s something I can’t control... this all only started happening in December, I was told celiac but I feel like it’s more then just that. 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
4 minutes ago, Lovelyjess said:

I need help! I’m not sure if it’s gluten or a fatty intolerance that I have but I can hardly eat anything without having a leaky gut ? even just the smell of fast food can trigger my body, and it can happen up to 3 or 4 times within an hour. I am getting checked for it in April (so far away I know) and it’s always leaky gut never vomiting or anything like that. And it just happens, it’s something I can’t control... this all only started happening in December, I was told celiac but I feel like it’s more then just that. 

I am a bit confused- have you been diagnosed with Celiac?  How can you tell you have “ leaky gut”?  I am not sure that is something immediately apparent after eating.  It certainly isn’t triggered by smell as it is a condition where food gets out they the intestinal wall into your body - simple explanation . Do you mean diarrhea?  That is definitely a symptom of Celiac.

If you have been diagnosed as having Celiac, you need to eat a strictly gluten-free diet and give yourself time to heal.  If you have not been tested for it, continue eating some gluten everyday until all testing is complete .

Ennis-TX Grand Master

Celiac requires you to be eating gluten to get tested, you should see about getting tested if you can. Damage from celiac can lead to leaky gut, food intolerance issues, food allergies, etc. It has many symptoms but requires you to "eat" the gluten or somehow have gluten particles get into your intestines by some means to have a reaction.....Open Original Shared Link

Smell, I reacted so badly to things my body started having me feel nauseated by smells it associated with gluten/making me sick. Like that science experiment where they rung a bell every time they fed a dog so when the bell was rung they could make it salivate at it associated the bell with food....you body can do something with nasusa, and smells if it finds them a common factor in something that makes you sick.....Now days this has passed but I do feel disgusted by certain smells now. In order for a celiac to react to a bakery air, flour has to be airborne, inhaled, trapped in the mucus in your nose/throat then drain into the stomach and make its way to the intestines...this takes while to trigger a actual reaction although I have had it trigger lymph reactions much quicker over intestinal.

True leaky gut...odd term to multiple meanings and causes but you often find that the damaged gut is easily permeated by food leading to multiple food intolerance issues....true nightmare. But with a whole foods gluten free diet with common culprits like dairy, gluten, soy, spices, etc. removed and going to a easy, bland, and whole foods diet you can heal it in a few months with the help of a dietician and supplements. Simple, soft, and stewed to mush meals...make digestion as easy as you can with as little irritants as possible. Keep a food diary to track what foods bother you as everyone is different.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.