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5 year old results came back lower!i don’t understand

Kayleigh

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Kayleigh Newbie
Kayleigh
Posted

Hi there!

 

my son has had coeliac symptoms for a while now also has an aunt with celiac disease his first screening came back with tTg 27 (I know it’s not hugely high but positive for celiac disease he has had a second lot of screening; including a genetic test (which doesn’t come back for another month) but the tTg has come back as 14. My consultant has said he didn’t expect this and that he wants home retested in 3 months. 

 

Im confused as that is still above the normal range. After his bloods we were told to put him on a gluten-free diet as he has been loosing weight and refusing foods besides apples and baked beans. We have seen an improvement after just over a week where is is not being sick in the evenings and less belly aches. 

 

No we are having to to go back to gluten. 

Are these  results still positive at 14? 

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pschwab Enthusiast
pschwab
Posted

It’s my understanding that ttgs below 20 is considered normal. 

RMJ Mentor
RMJ
Posted

It depends on the normal range for the lab where the test was run.  The results are in arbitrary units, not absolute amounts of antibody per milliliter of blood.  Some labs the normal range is 0-19, some are 0-3, etc.

Audrey’s Mom Rookie
Audrey’s Mom
Posted

My daughter’s levels were over 100 when she was tested last summer.  She was also positive on her scoping.  They retested her levels this month and now they are down to 28.  They go down when you stop eating gluten.  

kareng Grand Master
kareng
Posted
On 3/22/2018 at 7:15 AM, Kayleigh said:

Hi there!

 

my son has had coeliac symptoms for a while now also has an aunt with celiac disease his first screening came back with tTg 27 (I know it’s not hugely high but positive for celiac disease he has had a second lot of screening; including a genetic test (which doesn’t come back for another month) but the tTg has come back as 14. My consultant has said he didn’t expect this and that he wants home retested in 3 months. 

 

Im confused as that is still above the normal range. After his bloods we were told to put him on a gluten-free diet as he has been loosing weight and refusing foods besides apples and baked beans. We have seen an improvement after just over a week where is is not being sick in the evenings and less belly aches. 

 

No we are having to to go back to gluten. 

Are these  results still positive at 14? 

If the antibodies were high, and now, while eating gluten-free, they go down, ...that is what is expected,  your antibodies should go down on a gluten-free diet.  That doesn't mean you no longer have Celiac....it means you are treating it.

 For example,  a person with high blood pressure takes a medication that puts the blood pressure into a normal range , that does not mean they no longer have a high blood pressure issue.  The medicine controls it.  Our  medicine is the gluten-free diet. 

ch88 Collaborator
ch88
Posted

I am assuming the second test result was lower than the first, and that the tests were five years apart? (The post title is kindof confusing.)  

You said he was put him on a  gluten free diet after the blood tests. I am assuming this happened five years ago after the first test? 

ch88 Collaborator
ch88
Posted

If you are talking about blood tests on a five year old kid, how far apart were the two tests taken?

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