Coping with pain

[Trudy preston]

My 11 year old been coeliac since sep 2017 an now gluten free completely . He still has pain tho an the poos . The specialist dont want to see him for 6 months. Hes tired all the time no colour an im worried sick ....

[cyclinglady]

27 minutes ago, Trudy preston said:

My 11 year old been coeliac since sep 2017 an now gluten free completely . He still has pain tho an the poos . The specialist dont want to see him for 6 months. Hes tired all the time no colour an im worried sick ....

 Am sorry that he is so ill.  There is a steep learning curve for the gluten free diet.  It takes time to learn it well.  As a result, healing time can take much longer than you would think.  Consider reading our Newbie 101 thread located at the top of the “Coping” section of the forum.  Stick to unprocessed foods, even gluten free bread, until you see results.  Avoid gluten free oats.  Test to see if dairy (lactose) is temporarily giving him issues.  Think soups and stews that are easy to digest.  No eating out until he feels better.

Ruling out active celiac disease is important.  

Has he had any follow up celiac antibodies testing?  That can help let you know if he is dietary compliant.  

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[HannahBick]

Have you screened other family members for celiac disease? A lot of doctors are still ignorant about this. I'm trying to get my kids tested (against the will of my husband (who is celiac)) but am losing the battle here.

Make sure he is not getting any gluten. If he complains of pain, perhaps you could ask him if he is complying with the gluten free diet. He may say yes but, even if he does lie to you, it will serve as a useful reminder as teens often don't seem to comply with the diet. I was a teacher so I know.