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Can you compare your symptoms pre-dx to your villi damage to your symptoms of "getting glutened?"

kg51

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kg51 Explorer
kg51
Posted

I'm wondering if they all relate to one another at all or if it's just random.

-What were your symptoms of celiac disease prior to diagnosis?

-How bad was the damage discovered with your endoscopy/biopsy? (Marsh rating?)

-What's it like when you "get glutened" now? How long have you been gluten-free? Has your reaction changed over time?

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cyclinglady Grand Master
cyclinglady
Posted

I just had anemia and no GI symptoms.  I went for a routine colonoscopy (am over 50) for a normal cancer screening.  The GI ordered a celiac panel due to my anemia.  My biopsies revealed a Marsh Stage IIIB and I only had one positive on the DGP IgA.  

I can get pretty sick (GI issues) now with a glutening because it seems to set off my other autoimmune issues.  Recovery can be very long for me personally as a result.  

I can tell you that after five years, my recent follow-up endoscopy revealed healthy villi!  

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