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Mind blown!


StephanieO’Malley

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StephanieO’Malley Newbie

For 31 years I have suffered from constipation. I would literally not pass stool for weeks at a time. The doctors kept telling me “drink more water” and “eat more fruits and vegetables” and I complied without success. It had recently gotten so bad that I had to take 3 x-lax tabs per every week or so to defecate. 

2 months ago I got food poisoning and as I was attempting to add solid food back into my diet, I would get extremely bloated and nauseous. It would only happen when I ate bread and crackers. I finally put two and two together and started an experimental gluten-free diet. 

I POOPED EVERY DAY!!!! After spending 31 years full of sh&t, I was dumbfounded! ? my daughter had the same symptoms as me so we both are now gluten free and doing AMAZING!

After doing more research I just can’t believe how horrible gluten really is. For 16 years I have been on 2 very high doses of antidepressants at a time and benzodiazepines for anxiety. I am now only on 1 antidepressant and am contemplating slowly tapering off if I get the courage to do so (I have had bad experiences) 

The rash that I got when I was in my mid-twenties and that has flared up intermittently, was thought to be peri-oral dermatitis, I am now positive was Dermatitis Herpetiformus. 

I feel so in control and sharp witted! I am so happy I feel as if a light bulb has just been switched on. 

Needless to say, I will never go back to eating gluten and I feel so blessed to have finally discovered the truth.


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pikakegirl Enthusiast

So happy for you. I had very bad 1 time a week bm and sane advice. Drs also put me on antidepressants , antipstchotics and benzidiazepines. They neither work or made me physically dependant. Now i am only on thyroid supplement and vitamins. I as diagnosed at 39. If you have any problems getting off meds read The Ashtin manuel regarding 30 years research on withdrawl from anti anxiety meds. Www.benzos.uk.org

Ennis-TX Grand Master

Yeah normally we would suggest getting tested, but you have to be eating gluten daily for 12 weeks to be tested. If you just got off less then a few weeks ago you can still be tested for celiac.
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I had many symptoms, but constipation used to be a huge one. 2-3 days most of my life was the standard between BM. Right up to dia. I was getting up to 11 days between BM. Constipation in celiacs if often caused by magnesium deficiency. Look up Natural Vitality Calm and try supplementing it. 1/4tsp (1-2g) starting and up 1/4tsp a day til you get the full dose OR dose to tolerance by upping it that much til you get loose stools then back down a 1/4 or so. Low magnesium can have neurological effects, mood effect, joint, and nerve issues also. Compounded more by spectrum B-vitamins.

I sort of laugh at the exlax thing, I got so desperate some times I recall in highschool trying to eat a entire package of those chocolate exlax with 2 whole bars (not the pieces the whole bar) and no bowl movement til the next day. Enemas did nothing. I found the only thing back then was the fizzy laxatives in the glass bottles....it worked for a nice good BM...hindsight those were full of magnesium citrate, the same thing that Natural Vitality Calm has.

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    • Scott Adams
      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
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      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
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