There Is Hope---but Not Out Of The Water Yet

[chrissy]

i got a call from the doctor about my daughter's biopsy results. her esophagus looked great during the endo---but microscopically, she has a pretty good case of esophagitis--this was a surprise, he said she must be refluxing alot. (she rarely complains of heartburn) he said her small intestine shows no villous atrophy, but in one area it does show raised lymphocites, like you would see with celiac. he said she does not have celiac, yet. we have some hope, but she is not out of the water yet. he told me that her blood work showed that she has tissue damage, but it does not tell what is causing the damage. for now, he wants her to stay on a normal diet while she is treated for the reflux. he wants to do blood work again in 6-12 weeks. he said if she does not have celiac, the antibody levels will drop. i think that i still want to try some gluten free recipes in the meantime---this should not hurt the next test results, should it---as long as most of her diet has gluten in it?

christine

[Rusla]

If you have her go totally gluten-free it can affect the results to a false negative. I am so glad that I do not have to repeat another blood test as I could not take 6-12 weeks of gluten now, nor would I want to, I am lucky/unlucky to have DH. However, I know when I have been glutened my face becomes a mess.

[tarnalberry]

she needs to make sure to get the equivalent of about three slices of wheat bread a day, every day, but other than that, trying gluten free recipes with gluten-based stuff isn't a problem. a lot of stuff you make may already be gluten free.