Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Extreme Hunger


jojoe72

Recommended Posts

jojoe72 Rookie

Is it normal to be extremely hungry all the time? I can eat a really big meal and an hour later I'm totally starved again. It dosen't matter how much I eat...I'm still hungry. I'm an athletic 175lb guy and strictly sticking to the diet (but have slipped up a couple of times). Just can't figure it out. I get really hungry late at night but if I eat before I go to bed I wake up with nightmares. I thought it might be my blood sugar but all the levels have been totally normal. I've also been craving carbs in a huge way...I'd pretty much kill for a thick crust Pizza Hut pizza and a beer...(nice dream huh?). Any ideas.

Thanks

Joe


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

If you haven't been gluten-free for very long and are still healing this is completely normal. Your body is craving those calories and minerals and vitamins it hasn't been getting.

richard

RiceGuy Collaborator

If you haven't already, make sure you are getting enough fiber in your diet. That really helps to fill you up, besides being good for the digestive system. Apples are one example of a good source of soluable fiber. There are plenty of fruits and veggies that can help. I find I am more satisfied if I eat a regular diet of dark green leafy veggies like spinach, broccoli, brussel sprouts, etc. I'm still always hungry though, but not as bad as without the fiber.

Try not to eat too soon before bedtime, as that only impedes digestion. Your intestines need to heal, so give them all the help you can. The digestive system doesn't really operate when we sleep, at least from what I've read. That means your body will be fighting against shutting down digestion, so you will likely be restless, which means you will find it difficult to enter proper REM sleep. That's what causes the nightmares. However, I have found I can sleep more soundly if I eat a handfull of peanuts about 30 minutes before going to sleep. It seems this is because of the tryptophan, which among other things helps the body produce serotonin and melatonin. Those are well established as important for proper sleep/wake cycles.

BTW, you can still have a nice thick crust pizza, just make it a gluten-free one.

kevsmom Contributor

I just can't stop eating...but I think my problem is depression. I have been gluten free for 8 months until this past weekend. Somehow I accidently got glutened, I think it may have been because my son made a grilled cheese sandwich on the George Foreman Grill. After the grill was cleaned, I used it. (Well the grill looked clean). I was sick as a dog for the whole weekend. It's a real shame, because if I was going to get glutened, it should have been for some good reason like Christmas cookies.

I feel so deprived of the foods that I can't have, that when I find things that I can have I eat them until past the point of fullness. :(

I found Gluten Free blueberry muffins at Whole Foods. A serving should be 1 muffin...I will eat 2. They also have these wonderful Cranberry Orange Scones. Again, I will eat 2 of them. I usually bring leftovers for lunch, but I pack a much larger container than I need to be eating.

I really need to get this under control.

jojoe72 Rookie

Thanks for the input. Im just starting to add fiber foods into my diet...hopefully that will help. Kevsmom, isn't the depression a major symptom of Celiac? I've only been gluten free for about 4-5 months and I'm very very slowly getting better. The worst part of this whole disease for me is the mental rollercoaster...all the physical pains are almost bareable. If I screw up on the diet I will be up and down for a week with anxiety and depression. Its really strange, I'll be horribly depressed 1 minute and then feel fine the next. For awhile I thought I had a problem with depression and/or anxiety but it's very clear to me now that it's caused by reaction to foods. Depression and anxiety are not diseases themselves, they are indicators of something else going on in your body.

Thanks

Joe

I just can't stop eating...but I think my problem is depression. I have been gluten free for 8 months until this past weekend. Somehow I accidently got glutened, I think it may have been because my son made a grilled cheese sandwich on the George Foreman Grill. After the grill was cleaned, I used it. (Well the grill looked clean). I was sick as a dog for the whole weekend. It's a real shame, because if I was going to get glutened, it should have been for some good reason like Christmas cookies.

I feel so deprived of the foods that I can't have, that when I find things that I can have I eat them until past the point of fullness. :(

I found Gluten Free blueberry muffins at Whole Foods. A serving should be 1 muffin...I will eat 2. They also have these wonderful Cranberry Orange Scones. Again, I will eat 2 of them. I usually bring leftovers for lunch, but I pack a much larger container than I need to be eating.

I really need to get this under control.

StrongerToday Enthusiast

I have to admit the one thing I'd practically sell my soul for is a Pizza Hut stuffed crust pizza! I'm also dairy free right now - and the thought of trying to make a "pizza" with soy cheese-like product just isn't doing it for me! Maybe one day I'll brave real cheese on a gluten-free crust.

For the hunger, another celiac disease friend recommended that I should be sure to have a serving of nuts with each meal. Something about the fat and protein in the nuts helps food to stay around a little longer and helps to keep me from getting so hungry so quickly. It seems to have helped me.

Guest kim07
I just can't stop eating...but I think my problem is depression. I have been gluten free for 8 months until this past weekend. Somehow I accidently got glutened, I think it may have been because my son made a grilled cheese sandwich on the George Foreman Grill. After the grill was cleaned, I used it. (Well the grill looked clean). I was sick as a dog for the whole weekend. It's a real shame, because if I was going to get glutened, it should have been for some good reason like Christmas cookies.

I feel so deprived of the foods that I can't have, that when I find things that I can have I eat them until past the point of fullness. :(

I found Gluten Free blueberry muffins at Whole Foods. A serving should be 1 muffin...I will eat 2. They also have these wonderful Cranberry Orange Scones. Again, I will eat 2 of them. I usually bring leftovers for lunch, but I pack a much larger container than I need to be eating.

I really need to get this under control.

Hello Kev's mom,

I just wanted to tell you, that you are not alone. I unfortunately am going through the exact same thing that you are going through right now. I have been gluten free for about 4 weeks now, and I'm still mourning really un-healthy items now like (cup-cakes, german chocolate cake, sweets that most anyone else can eat without any problem). I think I'm still having a Giant Pity Party in a lot of ways, but making myself, for my long term health, and because I'm tired of being sick, stay Gluten Free! It has not been an easy road, as you know, and every member here at Celiac.com knows to stay gluten free.

I just wanted to let you know that I do the same thing when I find things I can eat, for instance, there is this Gluten Free Banana Bread and Cookies that are so good!!!, from gluten free pastry, and I swear I eat almost the whole loaf in 2 days, or the whole bunch of cookies almost in one day. I never used to eat that much before, when I could eat anything I wanted.

I think that it's so difficult to find those foods that taste so much like the foods we used to be able to eat on the market, that when we do, we go CRAZY :blink: , and eat the whole bunch. Also in terms of depression, I'm praying that being gluten free will help my depression as well, I've been gluten free for such a short time that I really haven't given it enough time to see if it is going to help with improving my mood or not, it sure can't make it worse.

I'm trying to stay clear now of the banana bread, and the cookies, because they are so fattening!!!!! It's difficult, especially when you're in a 'blue' mood, but I do not want to have to lose a huge amount of weight. I have noticed that a lot of the snack type foods that are gluten free are so much more fattening then the regular cookies and stuff we used to eat out on the market that do contain gluten. IT's NOT FAIR!!!

But then again, in the end, we'll be healthier eventually, I Hope! :)

Kim 07


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jerseyangel Proficient

I find myself doing the same thing. Since there is so much I can't have that I used to take for granted, I compansate by eating the safe goodies more than I should. Gluten free or not, I've always had this problem--and the extra 20 lbs. to show for it :(

key Contributor

I am actually the opposite most of the time. I just don't eat sometimes, because I get sick of eating the same stuff day in and day out! I am vegetarian along with being gluten-free and I gave up alot of meat substitutes and don't know how to cook now! I eat a ton of Mexican food, because at least when I make that it feels like a complete meal.

As far as depression goes, I am just amazed at myself when I get gluten. Extreme fatigue, exhaustion, bone pain in my legs and my mood is up and down. When I don't have gluten, I am so happy and normal. It is really sad actually. It is SO hard having three kids and then being a grump at them and then my house starts to fall apart until I feel better.

Just out of curiousity, is anyone perfect at not getting gluten? I would be alot better at this if I didn't have other family members to cook regular food for and I think that I need new pots and spoons for my one son and I.

Extreme hunger, I have that problem after being gluttened especially. If you eat dairy, that helps. Like someone else said, eating nuts helps. Fiber doesn't really work a 100% for me. SOmetimes I think it makes me hungrier! Fat is what gives you satiety to some degree and protein. Eating only veges will make you very hungry, at least for me that is.

EAting right before bed isn't a good idea. It doesn't help you rest well and doesn't allow your stomach a rest. Makes you dream more, etc.

Monica

RiceGuy Collaborator
Just out of curiousity, is anyone perfect at not getting gluten? I would be alot better at this if I didn't have other family members to cook regular food for and I think that I need new pots and spoons for my one son and I.

I'm hoping I am. I only have to cook for myself, and I make everything from scratch. So as long as there aren't hidden ingredients in the margarine or something, then I haven't gotten glutened. If the margarine has some then I'm getting a certain constant amount, which would be aweful of course. I still have some fluid retention which mysteriously came some weeks ago and hasn't gone, but without any new foods I am left with the one time I tried some soy cheese. Nothing ever did that before (except a whole bunch of salty chips) so I don't know, and why hasn't it gone away, I just can't figure.

I might suggest either seporate cooking utencils, toaster, etc, or gluten-free for all. Do make sure that all items in the fridge are well covered. I know it's common sense to us gluten-free folks, but I know some people who never seem to bother covering anything, and they're always throwing stuff out all the time.

Extreme hunger, I have that problem after being gluttened especially. If you eat dairy, that helps. Like someone else said, eating nuts helps. Fiber doesn't really work a 100% for me. SOmetimes I think it makes me hungrier! Fat is what gives you satiety to some degree and protein. Eating only veges will make you very hungry, at least for me that is.

Yeah, I find peanuts hit the spot too, though they are pricey, so I can't munch as much as I'd like. They are a good source of fiber too, and yes the fat helps. We do need fat in our diets, but vegetable fat, not animal fat.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Recovery from gluten challenge

    2. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Brain fog

    3. - trents replied to Scatterbrain's topic in Sports and Fitness
      2

      Feel like I’m starting over

    4. - cristiana replied to Scatterbrain's topic in Sports and Fitness
      2

      Feel like I’m starting over

    5. - Scatterbrain posted a topic in Sports and Fitness
      2

      Feel like I’m starting over


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,281
    • Most Online (within 30 mins)
      7,748

    newlife213
    Newest Member
    newlife213
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While the positive endoscopy confirms the diagnosis, it's important to be skeptical of the idea that your daughter will simply "bounce back" to a pre-challenge state. The gluten challenge was essentially a controlled, prolonged exposure that likely caused significant inflammation and damage to her system; it's not surprising that recovery is slow and that a subsequent exposure hit her so hard. The persistent fatigue is a major red flag that her body is still struggling, potentially indicating that the initial damage hasn't fully healed or that her system is now in a heightened state of reactivity. Rather than seeking anecdotal timelines from others, her experience underscores the critical need for close follow-up with her gastroenterologist to rule out other nutrient deficiencies commonly caused by celiac flare-ups, like iron or B12, and to consult with a dietitian to scrutinize her diet for any hidden sources of cross-contamination that could be perpetuating her symptoms. The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.      
    • Scott Adams
      The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Brain fog, like other celiac disease symptoms, does improve after you to 100% gluten-free, and supplementation will also help.      
    • trents
      Were you doing any of the new home construction yourself? Drywall compounds and adhesives used in construction have been known to cause problems for some celiacs.
    • cristiana
      Hello @Scatterbrain and welcome to the forum I am sorry to hear you have had a return of your symptoms.  My first thoughts were that stress can cause IBS-like symptoms - a friend of mine has been suffering a huge amount of stress and when that happens she gets diarrhea.  But you say that you haven't got any bad abdominal issues, so perhaps you could share what other symptoms you are having? Cristiana  
    • Scatterbrain
      Hello, I was newly diagnosed in January of this year (2025).  Since then I have been strict about staying gluten free and only cooking at home.  I started feeling better in July while gradually resuming close to my normal routine of activities and athletics. September and October were extremely stressful due to a new home build being finished and moving.  My spouse and I take care of his mom who has advanced dementia and have been since 2021.  We did all the moving as well as get the other house on the market for the month of October.  Since earlier this month I feel like I did back in the early stages of my diagnosis.  Almost all of my symptoms have come back except for the bad abdominal issues.  I haven’t changed my diet or supplements since January and wonder if the stress has caused a set back? Any thoughts are helpful.  Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.