Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Osteoporosis?

VydorScope

By VydorScope
in Related Issues & Disorders

Recommended Posts

VydorScope Proficient
VydorScope
Posted

I was in a bad car accident in 1994, and somehow along the way I acquired all the actual films and radiologists reports from it. You know, the CAT scans and X-rays, etc. I finally got around to showing them to my doc, well faxed them over this am, and they called back 2 hours later and have me scheduled for a bone scan tomorrow at 3:45pm. Before getting the reports it was "I would like to get you screened for osteoporosis at some point, prbly early next year..." after getting them its now "come in tomorrow for the screening". :o

Would have been nice had the docs at that time mention to us the fractures in my spine that are mentioned in this report. My doc's down here in TN are so much more caring then what I have seen up there. I got the impression from my doc that she could have diag'd celiac disease back in '94 had she been my doctor then! Think of all the damage and trouble I could have been spare... then again I probably would not have listen at that age LOL. Teenagers are immortal! LOL

I hope that osteoporosis is not an issue with me, but if it is , anyone know anything about the treatment?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lauren M Explorer
Lauren M
Posted

I have osteopoenia, but I'm only 24. I was on a prescription level Calcium supplement for awhile. I know I am due for another bone scan, and if things get worse I assume that I'll need to go on Actonel or Fosamax. I've heard about some not-so-great side effects with these drugs however, and I'm sure your doctor will be able to counsel you on your best options. Until then - do what I do (if you can tolerate it): lots of yogurt, and Rainbow Light calcium with D.

Good luck, let me know what your doctor decides to do.

- Lauren

key Contributor
key
Posted

Where do you live in TN? I live in Knoxville, TN. Just curious. What is your health like now?

Monica

VydorScope Proficient
VydorScope
Posted
  • Author
Where do you live in TN? I live in Knoxville, TN. Just curious. What is your health like now?

Monica

As it says under my son picture on every post, Nashville :P:P

I guess slowly getting better hard to tell with this stupid cold I got :(

VydorScope Proficient
VydorScope
Posted
  • Author
I have osteopoenia, but I'm only 24. I was on a prescription level Calcium supplement for awhile. I know I am due for another bone scan, and if things get worse I assume that I'll need to go on Actonel or Fosamax. I've heard about some not-so-great side effects with these drugs however, and I'm sure your doctor will be able to counsel you on your best options. Until then - do what I do (if you can tolerate it): lots of yogurt, and Rainbow Light calcium with D.

Good luck, let me know what your doctor decides to do.

- Lauren

So treatment is calicum and vit d suppliments?

jenvan Collaborator
jenvan
Posted

vin-read this thread on osteo. scroll down to see posts and my experience with treatments etc:

Open Original Shared Link

VydorScope Proficient
VydorScope
Posted
  • Author
vin-read this thread on osteo. scroll down to see posts and my experience with treatments etc:

Open Original Shared Link

did your doc talk to you about options for treating your osteopenia? my mom had it. some docs may try and tell you to go on meds such as fosamax...but my rec is to not do so. since it is osteopenia and you are young, the drug will actually freeze your bone mass, so to speak, thereby freezing depletion, however it can also stop your chances of increasing your bone mass. instead of drugs initially, you can try other things to increase mass, limit alcohol and caffeine (which can deplete bones), start doing weight bearing exercises and begin taking a calcium supplement every day, if you aren't. docs wanted to put my mom on fosomax, she is in her 50s, and she refused. they told her she wouldn't reclaim any bone mass, esp. at her age...BUT she has been working out, lifting weights, taking a supplement, and has increased her bone mass, and is testing okay now. so, it can be done... there's my treatise on bones!!

Intresting, dunno if I can give up coffee! But I bascily dont drink, been years since my last "adult beverage", just not somthing I do much. :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jenvan Collaborator
jenvan
Posted

well, maybe you could 'sneak' a decaf every once in a while. (since they still can have a measure of caffeine). but i'm not endorsing that! :) if you're like my dad, you won't give it up...he is supposed to give up coffee, has barret's espophagus etc., but for christmas he wanted a cappuccino maker. go figure!

VydorScope Proficient
VydorScope
Posted
  • Author
well, maybe you could 'sneak' a decaf every once in a while. (since they still can have a measure of caffeine). but i'm not endorsing that! :) if you're like my dad, you won't give it up...he is supposed to give up coffee, has barret's espophagus etc., but for christmas he wanted a cappuccino maker. go figure!

Decaf has liek 4mg of cafine, you get more from a hersey's bar. :P I might learn to like decaf...ugh! :(

tarnalberry Community Regular
tarnalberry
Posted

particularly for celiacs, magnesium is VITAL for bone formation, and most people don't get enough (healthy diet or not). most doctors overlook it as well. (there are studies - I use pubmed.com - that show that magnesium supplementation is more important, by far, than calcium supplementation in celiacs in order to increase bone density.) weight bearing exercise is also very important, as it provides the stimuli that tells the body to grow more bone than it takes down.

VydorScope Proficient
VydorScope
Posted
  • Author

Wonder how likly it is that I have osteoprosis. I have had cronic back pain as far back as I can remember... I hope its not likly! Last thing I need is another label! :mellow:

Nevadan Contributor
Nevadan
Posted

I was dx'ed w/ osteoporosis 5 yrs ago (@55 yrs old, male). At the time I was referred to an Endocrinologist who prescribed Calcitonin plus a 600mg calcium supplement. It improved my density by about 5% in one yr. At the end of the yr he thought perhaps Fosamax would do better, so he changed me to it and I've been taking it ever since along with the calcium supplement. However, I've had no further increase in bone density. As other posters have said, Fosamax can have some bad effects; it's a new drug so complications are probably not fully recognized(Actonel is in the same category). Plus once you take it, it is incorporated into your bones and remains there essentially forever. I now wish I had never changed to it. I would definitely advise asking your dr about Calcitonin and trying to avoid Fasamax.

Also I agree with Tarnalberry about magnesium being equally as important as calcium. There is also some studies that show zinc is also a key to denser bones.

George

VydorScope Proficient
VydorScope
Posted
  • Author

Well I got the bone scan today, should hear the results on Tuesday...

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents commented on Dr. Ron Hoggan, Ed.D.'s article in Winter 2005 Issue
      1

      New Data on Used Oats

      Thoughtful article. For me the most valuable element of this article is the discussion of IELs. We have many posts on celiac.com from people who have all the symptoms of celiac disease but whose biopsies show no other irregularity than IELs. Perhaps we should be taking that more seriously.
    2. trents
      - trents replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour...
    3. Heatherisle
      - Heatherisle replied to Heatherisle's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      25

      Blood results

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose i...
    4. DAR girl
      - DAR girl posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Celiac and allergic to common subs and adds in prepared foods

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats.
    5. Scott Adams
      - Scott Adams replied to Jmartes71's topic in Doctors
      1

      Disregarded

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,178
    • Most Online (within 30 mins)
      7,748
    Stephanreyes242
    Newest Member
    Stephanreyes242
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Blood results

      By trents · Posted

      Possibly gluten withdrawal. Lot's of info on the internet about it. Somewhat controversial but apparently gluten plugs into the same neuro sensors as opiates do and some people get a similar type withdrawal as they do when quitting opiates. Another issue is that gluten-free facsimile flours are not fortified with vitamins and minerals as is wheat flour (in the U.S. at least) so when the switch is made to gluten-free facsimile foods, especially if a lot of processed gluten-free foods are being used as substitutes, vitamin and mineral deficiencies can result. There is also the possibility that she has picked up a virus or some but that is totally unrelated to going gluten-free.
    • Heatherisle
      Blood results

      By Heatherisle · Posted

      Daughter has started gluten free diet this week as per gastroenterologists suggestion. However says she feels more tired and like she’s been hit by a train. I suggested it could be the change to gluten free or just stress from the endoscopy last week catching up with her. Just wondering if feeling more tired is a normal reaction at this stage. I suppose it’s possible some gluten might have been present without realising. Have tried to reassure her it’s not going to resolve symptoms overnight
    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
×
×
  • Create New...