Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Can U Get Dh After Dx?

Moongirl

By Moongirl
in Dermatitis Herpetiformis

Recommended Posts

Moongirl Community Regular
Moongirl
Posted

i was just dx with celiac disease, i was wondering if its possible to develop dh after going gluten-free?

thanks

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


traveljunkie Rookie
traveljunkie
Posted

Do you mean if you accidentally get glutened?

Charlene

Guest CD_Surviver
Guest CD_Surviver
Posted

i do not believe so

Lauren

Moongirl Community Regular
Moongirl
Posted
  • Author
Do you mean if you accidentally get glutened?

Charlene

No, just in general, is it something that can develop?

Drew Newbie
Drew
Posted
i was just dx with celiac disease, i was wondering if its possible to develop dh after going gluten-free?

thanks

Well, even if you had full blown DH to begin with, it would dissapear after you went gluten free. So no, if you are truly gluten-free then DH should not be a problem. There is a mechanism in the body that causes gluten intolerance to actually increase for 7 days after eliminating it. Perhaps you might get some extra symptoms upon accidental ingestion that you did not get before going gluten-free.

If you are getting itchy or painful red bumps on your skin that hang around for days and/or ooze and inflame... its probably a reaction from ingesting gluten. Think of it as a handy visual indicator :D Thats what I do to relieve the depression of seeing them appear.

Good luck being gluten-free

cornbread Explorer
cornbread
Posted

I never had DH, but having gone gluten-free, then casein-free and most recently (following positive antibody testing at Enterolab), soy and yeast free too, I got 'glutened' by yeast (yeasted?!) last week, and developed, for the first time ever, symmetrical, dry, very itchy marks. Both sides of my chest, stomach and inner arms. It looked a lot like some of the photos of DH I've seen. As soon as I tracked down the errant yeast source and cut it out, the marks faded and stopped itching.

Carriefaith Enthusiast
Carriefaith
Posted

Whenever I am glutened now, I usually get chicken pox like spots on my skin, which I never had before going on the diet. I'm not sure if it is dh because I have only had gluten in accidents or cross contamination since going gluten free. I also have a wheat allergy, so the spots could be related to that.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 4 weeks later...
4getgluten Rookie
4getgluten
Posted

Carrie - the same thing happened to me this week after being accidentally glutened. I got these chicken-pox-like spots on my back and chest that started to really itch after a few days. I'm guessing it as to do with the gluten. I have had them before, but I never associated them to gluten until now.

teebs in WV Apprentice
teebs in WV
Posted

I read somewhere (not sure where) that there are some people who always have DH symptoms - even after going gluten free. But, I think this is rare.

Carriefaith Enthusiast
Carriefaith
Posted
Carrie - the same thing happened to me this week after being accidentally glutened. I got these chicken-pox-like spots on my back and chest that started to really itch after a few days. I'm guessing it as to do with the gluten. I have had them before, but I never associated them to gluten until now.
So you never noticed them before going gluten free? I noticed them for the first time about 10 months after going gluten free. Mine can also itch and I usually get them on my legs.
Rusla Enthusiast
Rusla
Posted

I truly don't consider them a pleasant reminder because, mine comes out on my face under my nose, corners of my mouth and below my bottom lip. It makes a mess out of my face. I feel like a leper, but certainly know when the smallest grain of wheat.

teebs in WV Apprentice
teebs in WV
Posted

This was how I was diagnosed with celiac - by the DH. I had it on my arms, legs, stomach and lower back....fortunately never on my face. On one hand, it is a terrible thing to endure, but on the other, it keeps me from cheating.

4getgluten Rookie
4getgluten
Posted
So you never noticed them before going gluten free? I noticed them for the first time about 10 months after going gluten free. Mine can also itch and I usually get them on my legs.

I noticed them for the first time 2 weeks ago when I was glutened. I've been gluten-free for about 10 months now... strange. The last time I was glutened was in August, and I don't remember having this reaction. The weird thing is, I remember having this type of rash years ago before I was gluten-free. So, it may be something else. I guess I'll know for sure next time I accidentally eat gluten.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,530
    • Most Online (within 30 mins)
      7,748
    MARYKOP
    Newest Member
    MARYKOP
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      Shingles - Could It Be Related to Gluten/ Celiac

      By Russ H · Posted

      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Russ H · Posted

      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.