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Waiting for biopsy results

Jayl
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Jayl Rookie
Jayl
Posted

Hi everyone,

I had my biopsy on Friday and my phone appointment for follow up was scheduled on Wednesday. He said he should have the results by that day. Well, he did call but he said the results were still not in. How long do the results usually take and is there a different processing time it takes whether the results are positive or negative, or is the same no matter what? He said that no matter what the biopsy shows, he wants me to go on a gluten free diet at least for a couple of months to see if I feel any improvement. He also explained that Celiac can be patchy and that's why it can be difficult to get the right spot on biopsy, which is why he wants me to try it regardless. He said the my lab results were the highest he has seen in a long time and that you don't get those numbers for no reason. Has anyone else heard this? 

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RMJ Mentor
RMJ
Posted

Sounds like a good doctor who understands celiac disease! My biopsy results only took 2 or 3 days, but you never know how busy the lab is. Positive vs negative should take the same amount of time - the pathologist has to look at slides under a microscope either way.  

Jayl Rookie
Jayl
Posted
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2 minutes ago, RMJ said:

Sounds like a good doctor who understands celiac disease! My biopsy results only took 2 or 3 days, but you never know how busy the lab is. Positive vs negative should take the same amount of time - the pathologist has to look at slides under a microscope either way.  

This doctor had been a gift from God. I have been suffering for many years with these symptoms, along with additional issues from Sjogren's syndrome. All the doctors, specifically Rheumatologists, I have delt with are not usually very compassionate and I feel very brushed off most of the time. From my first visit with him, even though he didn't have an answer, he acknowledged that what I was feeling was real. I am hoping that they are back soon!

Jayl Rookie
Jayl
Posted
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Well, got my results today; he said my biopsy showed changes to my small bowel consistent with Celiac disease, so I guess it's finally official. I am just so relieved to finally have an answer.

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