Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Keep getting gluten

Daphne do

By Daphne do
in Coping with Celiac Disease

 Share

Recommended Posts

Daphne do Collaborator
Daphne do
Posted

I have gotten all the gluten out of my house I'm sick again and don't know what did it I took ibuprofen 800mls from Dr and I took a zanax(alprazolam) would they cause it? I swear I Googled both and thought they were fine . My boy friend eats gluten food but rare eats it at home once in awhile some one brings him something I don't know why but our neighbors like to bring him food .like one lady said I'm losing my mind when I get gluten I get super angry , and emotional my hands hurt really bad is there something I'm missing 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Bluesapphire57 Newbie
Bluesapphire57
Posted

Are you kissing him after he eats gluten? You can be glutened that way. 

ravenwoodglass Mentor
ravenwoodglass
Posted

The Alprazolam by Sandoz is for sure gluten free. Not all are. I was glutened by one from a different maker and because I don't take it very often it took me a long time to figure it out. I let the Pharmacy know and they got the Sandoz back.

I get the same emotional effect from gluten as you and it can be hard for those around us to deal with when it happens. I also get joint and muscle pain. A hot shower seems to help and for my hands I have a wax bath. My PT told me to do the hot wax for a few minutes and then ice and that seems to help a bit. Black Cherry juice seems to help a lot with my hand pain. It takes a couple days of drinking 8 oz a day to notice a difference but it seems to help a lot with the inflammation. 

I hope you figure out what is getting you soon.

Daphne do Collaborator
Daphne do
Posted
  • Author

Thank you for replying yes I did kiss him and we figured that was part of it it's really hard he wants to kiss me especially when he's drunk but I just won't no more because I'm scared 

I think I will just not take the zanax any more thank you I hate this disease do bad my life was hard enough before and one little mistake and I'm suffering for a week or more 

Ennis-TX Grand Master
Ennis-TX
Posted
19 hours ago, Daphne do said:

I have gotten all the gluten out of my house I'm sick again and don't know what did it I took ibuprofen 800mls from Dr and I took a zanax(alprazolam) would they cause it? I swear I Googled both and thought they were fine . My boy friend eats gluten food but rare eats it at home once in awhile some one brings him something I don't know why but our neighbors like to bring him food .like one lady said I'm losing my mind when I get gluten I get super angry , and emotional my hands hurt really bad is there something I'm missing 

I would get the angry "Mr. Hyde" first few years after a exposure, I would also the crazy emotions, and looping thoughts that would go like a broken record driving me mad. I could not think of stuff I would try, simple task became much harder, motor control issues. The anger and looping have been gone for years, but the motor control issues come back with even tiny exposures and can last months and slowly wane. 
It takes time to adapt and get the diet, and lifestyle down, going to a whole food diet, learning what foods/meds are safe, and building a new routine takes time.

 

16 hours ago, Daphne do said:

Thank you for replying yes I did kiss him and we figured that was part of it it's really hard he wants to kiss me especially when he's drunk but I just won't no more because I'm scared 

I think I will just not take the zanax any more thank you I hate this disease do bad my life was hard enough before and one little mistake and I'm suffering for a week or more 

-_- I keep safe drinks/liquors in my house for guest and family to have.  Austin East Ciders , Redbridge, Gluten Berg, BuckWit, Ghost Fish, and Duck foot for beers, stuff like Admiral Nelson plain and vanilla rum, barefoot wines, Ciroc vodka and generally most tequila is gluten and wheat free. I provide all meals, desserts, snacks, etc.

Daphne do Collaborator
Daphne do
Posted
  • Author

Thank you for replying yes I did kiss him and we figured that was part of it it's really hard he wants to kiss me especially when he's drunk but I just won't no more because I'm scared 

I think I will just not take the zanax any more thank you I hate this disease do bad my life was hard enough before and one little mistake and I'm suffering for a week or more 

I do take Valium (diazapam) thought that it was safe but now I'm not so sure I get it from Walgreens when I googled it it said it was safe but it also said the zanax was safe and it is not so does any one know about Valium (diazepam) ? I'm super stressed just need help to sleep not sure if it does or not I don't use it alot and my boyfriend has been eating out alot then coming home not sure if he wash his hands before touching things I touch sometimes he will drink out of my soda so that is a possible cause but I think I fixed that situation just need to know about the diazepam

Thank you again for taking you time to read this and reply you are the only ones really helpful the Dr is useless 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Ginger38
      - Ginger38 replied to Ginger38's topic in Related Issues & Disorders
      4

      Shingles - Could It Be Related to Gluten/ Celiac

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away
    2. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      18

      My only proof

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of...
    3. Ginger38
      - Ginger38 replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this. He couldn’t guarantee me a negative biopsy meant ...
    4. Scott Adams
      - Scott Adams replied to Xravith's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Challenges eating gluten before biopsy

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until...
    5. Scott Adams
      - Scott Adams replied to emzie's topic in Related Issues & Disorders
      2

      Stomach hurts with movement

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,467
    • Most Online (within 30 mins)
      7,748
    Mike G Army EOD
    Newest Member
    Mike G Army EOD
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Ginger38
      Shingles - Could It Be Related to Gluten/ Celiac

      By Ginger38 · Posted

      It has been the most terrible illness ever! Going on 3 weeks now… I had chicken pox as a kid… crazy how much havoc this dormant virus has caused after being reactivated! No idea what even caused it to fire back up. I’m scared this pain and sensitivity is just never going to improve or go away 
    • Mari
      My only proof

      By Mari · Posted

      OKJmartes. Skin and eyes. Also anxiety and frustration. I have read that Celiacs have more skin problems than people who do not have Celiacs. I take increased levels of Vit. D3, very high levels of B12 and an eating part of an avocado every day. KnittyKitty and others here can add what they take for skin health. A Dermatologist might identify the type of skin condition. By eyes you may mean eyesight problems not just irritated, red eyes. It is not very difficult to get a diagnosis of which eye condition is affecting your vision but much more difficult to find an effective remedy. The ophthalmologists I have seen have been only a little helpful. There seems to have been some advances in eye treatments that most of them are completely ignorant of or just won't add to their treatment plans.  Forcertain you may as well buy some remedy from a facebook ad but that is obviously risky and may actually damafe your eyes. However it is known that certain supplements , taken at the effectivelevels do help with eyesight. Two of them are Luten and zanthamin (spelling?)and certain anti-oxidants such as bilberry..    Hope this helps.
    • Ginger38
      Challenges eating gluten before biopsy

      By Ginger38 · Posted

      I refused to do the gluten challenge for a long time because I knew how sick I would be: I have always had and still have positive antibodies and have so many symptoms my  GI was 💯 sure I would have a positive biopsy. I didn’t want to make myself sick to get a negative biopsy and be more confused by all this.  He couldn’t guarantee me a negative biopsy meant no celiac bc there may not be damage yet or it’s possible to miss biopsies where there’s damage but he was so sure and convinced me I needed that biopsy I went back on gluten. It was a terrible experience! I took pictures of the bloating and swelling and weight gain during the challenge. I gained 9 pounds, looked pregnant, was in pain , couldn’t work or function without long naps and the brain fog was debilitating. And in the end he didn’t get a positive biopsy… so I wish I had never wasted my time or health going through it. I haven’t been truly straightened  out since and I am currently battling a shingles infection at 43 and I can’t help but wonder if the stress I put my body under to try and get an official diagnosis has caused all this. Best of luck to you - whatever you decide. It’s not a fun thing to go through and I still don’t have the answers I was looking for 
    • Scott Adams
      Challenges eating gluten before biopsy

      By Scott Adams · Posted

      It's completely understandable to struggle with the gluten challenge, especially when it impacts your health and studies so significantly. Your experience of feeling dramatically better without gluten is a powerful clue, whether it points to celiac disease or non-celiac gluten sensitivity. It's very wise of you and your doctor to pause the challenge until your holidays, prioritizing your immediate well-being and exams. To answer your questions, yes, it is possible for blood tests to be negative initially and become positive later as the disease progresses, which is why the biopsy remains the gold standard. Many, many people find the gluten challenge incredibly difficult due to the return of debilitating symptoms, so you are certainly not alone in that struggle. Wishing you the best for your exams and for obtaining clearer answers when you're able to proceed.
    • Scott Adams
      Stomach hurts with movement

      By Scott Adams · Posted

      It's smart that you're seeing the gastroenterologist tomorrow. While it's possible this is a severe and persistent inflammatory reaction to gluten, the fact that the pain is movement-dependent and localized with tenderness is important for your specialist to hear. It could indeed be significant inflammation, but it's also worth ruling out other overlapping issues that can affect those with celiac disease. Is it possible you got some gluten in your diet somehow? This could be a possible trigger. Hopefully, tomorrow's appointment will provide clearer answers and a path to relief so you can get back to your lectures and enjoy your weekend. Wishing you all the best for the consultation.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.