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News: Menus' “gluten aware” ingredients raise questions


Scott Adams

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Scott Adams Grand Master

Maybe one of those “This gluten-free product is prepared in the same kitchen ... Still, we suspect that people with celiac disease would likely be asking ...

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Awol cast iron stomach Experienced
(edited)

"So they want to make sure that extreme gluten avoiders know that there’s a chance of cross-contamination, whereas those products may be less-toxic for other gluten avoiders.

extreme gluten avoiders aka celiac's

yes,extreme anti gluten people ?

thanks to the community here who taught me with my dh , ataxia celiac "extreme gluten avoiding style" that it's best not to eat out. Even places that had separate grills and separate prep areas -got me. I learned that I fit the celiac community strict don't eat out / whole foods based lifestyle was the best for me. I did go through an emotional mourning for eating  out  was  about more than food for me. The environment, social,  people, and skyline  watching on outdoor patios and rooftop bars are mourned sadly. They are not for me. I have and am still learning to reframe these hobbies or activities with others, but I must.

Thanks for educating me and supporting me -all you " extreme gluten avoiders" .??

 

Edited by Awol cast iron stomach
Grammar

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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