Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seeing Small Improvements!


dlp252

Recommended Posts

dlp252 Apprentice

I've been noticing a few improvements since going gluten-free and I thought it might be helpful to list them...it's easy for me to get caught up in looking for the major improvements and miss the smaller ones. So while I'm waiting for some of the major issues to resolve, I wanted to note the other changes. Now some of these may have nothing to do with gluten-free or casein-free, but I've noticed them since going gluten/casein free. (As a reference I went gluten-free in November (although didn't obsess about cross-contamination), then added casein-free and became more cautious of cross-contamination around the middle of December after I got my Enterolab results.)

Sense smell: I haven't had sense of smell in years, I mean years--something has to be incredibly strong for me to smell it. Since going gluten and/or casein-free I've been catching whifs of stuff here and there--like my shampoo, soap, lotion which aren't really scented, lol. It's been kind of fun.

Nasal congestion/constriction: My nasal passages were always slightly swollen...they've been clearer than they have in years in the past few weeks--not completely clear yet, but definitely better.

Knee pain: a few months ago I developed a pain in both knees, with the right being the worst. It was bad enough to stop me from taking another step a couple of times and for my GP doctor to refer me to a surgeon who didn't think surgery would help. The pain is virtually gone--I've only felt it once in the last 4 weeks, and that was only slightly.

Dizziness/lightheadedness: I've suffered from dizziness and lightheadedness for at least a couple of years now--even while sitting, eyes open and not moving, I could sometimes feel it, and it would get much worse when I'd get one of my chronic sinus infections. I haven't felt it at all in the last 4 weeks.

Sleep: I've had insomnia for years, and have always been a light sleeper--getting up at least once per night to go to the bathroom. In the last two or three weeks, I've actually slept straight through--nearly 8 hours without waking or getting up--at least three or four times!

I was so happy, I just wanted to share! Thanks for letting me ramble on! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



i canary Rookie

Hi Donna,

Thanks for sharing! We all need to hear good news like yours, it is encouraging. And it reminds me to quit harping on what I still can't do and look at the many many small improvements in my life. :)

Regina

Becky6 Enthusiast

That's great!! I went gluten-free a month ago and too have noticed some improvement! Isn't it exciting???

Guest nini

I am so excited for all of you "newbies" that are seeing results from your efforts! I'm coming up on almost 3 years into this and I am still amazed with things that I always just assumed I would have to live with that have just vanished! Chronic sinusitus being one of them! Oh on the sense of smell returning, I think mine is now in OVERDRIVE! And cheap perfumes REALLY irritate me! It makes me aware of just how much CRAP is out there in our consumer driven society! I'm thinking they make these horrible cheap perfumes so strong because most people CAN'T smell the subtle fragrances! I absolutely LOVE essential oils now.

dlp252 Apprentice

One more thing I noticed today:

Itching - I am having much less itching on my legs and bottom of my foot!

Nini - it's funny because I'd be out in public with a friend, and my eyes would start burning and my nose would feel funny...and then my friend would turn around and say "someone is wearing perfume"...I couldn't smell it, but I'd react nonetheless.

Guest nini

oh the itching! I used to get really really bad itching on my upper arms and the tops of my feet... I'm so glad that is gone!

jerseyangel Proficient

How the heck long does it take for the itching to go? My back, sides, upper arms, upper legs still itch--although I notice it much more if I'm sitting still or lying down.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest nini

I don't remember how long it took, I just know that one day I realized that I wasn't itching anymore...

GC1 Rookie

Love this thread... Good to see more people finding relief from wheat. I've been gluten-free only 5 months, so some of these issues are still with me, or many have just become non-problematic. The itching (especially scalp), burning eyes/nose, smell, even my hearing was to a point that I called myself an "old fart". I [really] don't miss the knee problem at all... having the joint slide out, and having to stop, put my foot up on something, and bend my leg until the knee popped back into place. Haven't have that thanks to gluten-free, even using a 'stair-stepper' as exercise... granted, the knees got/still get sore if I overdo, but nothing like before. Looking forward to doing squats and lunges, but that's "down the road".

Good luck, and glad you're feeling better.

GC

dlp252 Apprentice

I am so thrilled to see people experiencing some improvements, even if not major.

I found another one yesterday...color in my cheeks! I haven't had color to my face in ages and yesterday (granted I had just cleaned the stove a bit before that, but still NOTHING has given me rosy cheeks--not even working out, lol) I noticed a little color in my cheeks!

teebs in WV Apprentice

This is a really encouraging thread to read! My biggest issue has been itching - more so than GI issues. I was diagnosed with dh before celiac disease. My itching initially got better, but the past week has been horrific. I have tried so hard to be careful about cross-contamination. I just read this morning that iodine, including iodized salt, can irritate people with dh. I am a salt addict - maybe that is my problem?

The color in my face - that was something my co-workers commented to me about. And they also commented that my face had looked swollen over the past year, and now it doesn't anymore.

I really appreciate hearing everyone's experiences - it makes what I am going through a little easier. Thanks!

StrongerToday Enthusiast
I am so thrilled to see people experiencing some improvements, even if not major.

I found another one yesterday...color in my cheeks! I haven't had color to my face in ages and yesterday (granted I had just cleaned the stove a bit before that, but still NOTHING has given me rosy cheeks--not even working out, lol) I noticed a little color in my cheeks!

Now that you mention it, I've been getting a lot of compliments on my skin "glowing" - people even asking me if I'm in love (ha!). While my skin has usually been clear and blemish free - I couldn't understand why I was getting all the "glowing" compliments. Not that I was complaining mind you :D

Rusla Enthusiast

When I was gluten-free for two weeks people at work started telling me I looked better. I have now been gluten-free slightly over a month and I, the person who got up minimum of 6 times a night since being a child now only gets up a couple of times or not at all. Also my butt and other places used to itch like mad, especially in the middle of the night and it doesn't happen anymore unless I have been glutened. Another noticable thing is my head which itched and broke out in sores does not do that any more. I have a lot less instances of the big "d" now also.

Lovinglife Rookie

I'm glad, so glad, to hear about people's improvements. THANK GOD!

dlp252 Apprentice
I'm glad, so glad, to hear about people's improvements. THANK GOD!

Yes, I agree!!! I thought of another one while posting to the poll thread about personality...I am finding that I am in a lighter mood much more often than I was a few weeks ago. Now, that's something my friends can get behind, lol. :P

sillyyak Enthusiast

I am actually seeing some improvements also. Generally speaking, I feel as if my head was lifted off of my glutened body and placed onto a non-gluten one. I no longer feel dizzy and lightheaded. I do have a slight hunchback and some back and bone pain but I feel "lighter" bodywise. It is amzing to me what a change of diet can do.

Todaywas hard though -a group of people were eating bread. Hard but then I reminded myself that I could eat bread too BUT I would have to pay the price of major diarrhea and a return of all my symptoms. I decided it was too hard a price to pay and reminded myself I could still eat chocolate and also that I was eating healthier now.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,211
    • Most Online (within 30 mins)
      7,748

    Rhp746
    Newest Member
    Rhp746
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.