Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Celiac Specialist

MLM Mama
 Share

Recommended Posts

MLM Mama Newbie
MLM Mama
Posted

Hi. My 10 year oldd daughter has Celiac. We see a pediatric GI. I am wanting to find a Dr who specializes in Celiac. We live in Charlotte NC and will basically travel anywhere. So tired of watching my daughter suffer even though she is on a gluten free diet. Any recommendations appreciated. Thank you

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted
(edited)

I am sorry that your daughter is unwell.  How long has she been gluten free?  It can take a year or longer for her to heal.  Yes, that long!  Why?  The gluten free diet has a steep learning curve.  Mistakes are made.  That is normal. Glut n can be hidden in so many places. 

Consider feeding her non-processed foods.  Do NOT eat out and if she does eat processed foods, make sure they are gluten free as stated on a label until you get the knack of reading labels down.  Do this until she is feeling better.  Take risks when she is well and healed.  

 

Edited by cyclinglady

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,742
    • Most Online (within 30 mins)
      7,748
    Jessica Biddix
    Newest Member
    Jessica Biddix
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • RMJ
      Help with genetic testing

      By RMJ · Posted

      HLA-DQ2 is NOT a continuum 2.01 to 2.99, but I don’t understand HLA genetics well enough to explain it further.  It is not just one gene that is either this or that.
    • trents
      Help with genetic testing

      By trents · Posted

      Okay, I'm taking a guess here. We are used to hearing in layman terms that having either the HLA-DQ2 or the HLA-DQ8 gene, either heterozygous or homozygous, presents the possibility of developing active celiac disease. So, I'm guessing that the HLA-DQ2 gene is actually a range of variants (2.01-2.99) with HLA-DQ 2.5 being in the centerpiece of the range. I'm also guessing that "permissive" is equivalent to "possessing the possibility" to develop active celiac disease and does not address the issue of hetero vs. homozygus per se. But the fact that 2.01,2.01 is a couplet may indicated homozygousity? All wild guesses.
    • Kirita
      Help with genetic testing

      By Kirita · Posted

      I received the results that my child has the genes for celiac disease (she is still undergoing testing and it has been complicated). Can someone explain if this is homozygous HLA DQ 2.5 or not? The interpretation just says permissive for celiac disease. Thank you! DQ Alpha 1  05:01, 5 DQ Beta 1 02:01, 02:01 DQ serologic equivalent 2,2     
    • Zuma888
      Burning sensation when I wake up

      By Zuma888 · Posted

      I am taking thiamine hydrochloride. It's been over a week, and the burning seems to be gone. I am also taking a lower dose B complex with iron. Thank you so much for your help!
    • trents
      Burning sensation when I wake up

      By trents · Posted

      No. It's over the counter. Readily available on Amazon. Good bio availability but shelf-life is not as good as thiamine mononitrate which is the most common form found in over the counter vitamin products.
×
×
  • Create New...