Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Biopsy

averyevansmom

Recommended Posts

averyevansmom Apprentice
averyevansmom
Posted

My son had his biopsy done today and although the results won't be in until next week, the doctor did mention some issues with the small intestine. There was inflammation and three white spots or patches. Has anyone had any mention of this? There were no other noticeable problems seen. I asked what those things could mean and she said it could be from allergy then I asked about celiac and she said yes, it could be that. My son was seen by an allergist last Friday and tested negative for everything tested for (dairy, soy, all nuts, wheat, fish, corn, citrus, and eggs) the usual stuff. We ran the RAST today for these and others as well per the allergist and the GI is running all the celiac tests again. Has anyone heard of this? My little guy is still sleeping off the anesthesia from this a.m. He was awake this afternoon and ate and now he's sound asleep. Poor guy. Just glad it's over. I'm planning to start the gluten-free diet as soon as I'm able to go food shopping and have my lists ready. Any sound advise? My kids are big on snacks. They love goldfish, pretzels, cheeze nips, they eat lots of pasta and bread. Whole foods here does not carry the Kinnikinnk(sp?) and the bread I tried is nasty. It's called Glutino and it's hard as a rock. I wouldn't feed it to my dogs. Yuck. My son loves his bread. How about a butter or spread without dairy or soy? So many questions, so little time.

Thanks.

Becky

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


averyevansmom Apprentice
averyevansmom
Posted
  • Author

Anyone?

bluelotus Contributor
bluelotus
Posted

Enjoy life makes great bagels (even cinnamon raisin), cookies, and breakfast bars.....I don't have kids myself, so I am not sure how their little taste buds would react, but I think the products are tasty. They make bread too, but I haven't tried it. Enjoy life is free of all common allergens, even dairy and soy. Another brand to try is Ener-G, the bread is pretty bad, but they make good pretzels, though I am not sure if they are soy free. Both these brands have websites if your Whole Foods doesn't carry them (my Whole Foods does, but they don't carry the bagels :( ).

I also know that Cranraisins (not the trail mix) are gluten-free and so are Sunmaid raisins. I can't eat these b/c the extra fiber bothers me. I am not sure if your son is too young for these tiny foods, but maybe these will help.

Hmmm.....trying to think of more ideas. EnviroKids gluten-free cereal is good (by Nature's Path). Some (like Gorilla Munch and Panda Puffs) are likely large enough for your son to eat as finger food.

Nana's makes good gluten-free cookie bars. I like the banana kind. If you son likes banana bread, he should like those. They have a website too.

I am sure that others here can help you out with the more mainstream brands. I was having problems with some, so I try to avoid them and stick with the predominantly gluten-free brands. One mainstream product that I have had great luck with is Smucker's Natural Peanut Butter. Very yummy.....great kids snack with celery and raisins.

Hope these ideas help!

katerinvon Rookie
katerinvon
Posted
My son had his biopsy done today and although the results won't be in until next week, the doctor did mention some issues with the small intestine. There was inflammation and three white spots or patches. Has anyone had any mention of this? There were no other noticeable problems seen. I asked what those things could mean and she said it could be from allergy then I asked about celiac and she said yes, it could be that. My son was seen by an allergist last Friday and tested negative for everything tested for (dairy, soy, all nuts, wheat, fish, corn, citrus, and eggs) the usual stuff. We ran the RAST today for these and others as well per the allergist and the GI is running all the celiac tests again. Has anyone heard of this? My little guy is still sleeping off the anesthesia from this a.m. He was awake this afternoon and ate and now he's sound asleep. Poor guy. Just glad it's over. I'm planning to start the gluten-free diet as soon as I'm able to go food shopping and have my lists ready. Any sound advise? My kids are big on snacks. They love goldfish, pretzels, cheeze nips, they eat lots of pasta and bread. Whole foods here does not carry the Kinnikinnk(sp?) and the bread I tried is nasty. It's called Glutino and it's hard as a rock. I wouldn't feed it to my dogs. Yuck. My son loves his bread. How about a butter or spread without dairy or soy? So many questions, so little time.

Thanks.

Becky

I think pancakes are everyone's first effort at gluten free bread substitute. The can be made easily without gluten or dairy, and make great finger food sandwiches. Rice crispy treats can be gluten free. My daughter (age 2 today!) really likes rasins, papaya spears, crasins, rice crackers, rice based graham crackers, frozen peas, popcorn, bananas, chocolate, corn tortillas, french fries. All the peanut butters I have checked are gluten free, and jelly should be. There are rice noodles available. Cornstarch based sauses and gravies are OK. Plain meats, potatoes, rice, and vegies are already gluten free and can be prepared without making a lot of changes in routine. Watch out for processed prepackaged foods, many of them have gluten based fillers or sauses.

Hope this helps. Good luck.

Karen S

taweavmo3 Enthusiast
taweavmo3
Posted

Regarding the inflammation, my daughter had that as well. So, I would definately say that could be a sign of celiac.

Now, in terms of the diet.......I have a few ideas for ya! If you don't have a big selection at your Whole Foods, you may have to do some buying online. I've been extremely lucky in that I have a great selection at stores around me, so we've been able to try lots of different things. The only brand of bread my kids will touch is Kinnikinnick. Another one you may try is Gluten Free Pantry white sandwich bread mix. I haven't tried this yet, but I have loved everything else from them so far.

For Pancakes, our favorite BY FAR has been Gluten Free Pantry Muffin and Scone mix (can't remember if it's dairy free or not, but I know you mix it with OJ instead of milk, and it's delicious). A close second is the Kinnikinnick pancake mix. We don't like Pamela's all that much, but I know others do. It just wasn't sweet enough for us. Can you tell I don't make anything from scratch??? Lol, there are just so many good mixes available, and I know they will turn out!

Snacks I would say are the biggest challenge for us too. My kids used to eat goldfish and all that stuff by the truckload, so it was an adjustment for them in the beginning. But, there is still plenty to choose from. For snacks, Emmie loves the whole line of Envirokidz foods....they make cereal, snack bars (kind of like rice crispie treats) and animal crackers. She also eats fruit w/peanut butter, rice cakes, marshmallows, Craisins (yummy), chips, Midel cookies, and carrots with ranch dip or hummus.

That's all I can think of at the moment, but I know others will have ideas for ya. I try to stick to mainstream products to cut down on cost, but when I splurge I usually stick with Kinnikinnick or Gluten Free Pantry, since those are two brands I can trust that their products will taste pretty good! Nothing sucks more than spending nearly $10 on something that no one will touch. Have fun shopping, and we're here if you need any help!

Guest nini
Guest nini
Posted

I would highly reccommend trying to order the Kinnickinick sandwich bread, as most of the others out there are just nasty. I keep the extra loaves in the freezer and the loaf I am using in the fridge... for sandwiches I nuke the slices for about 30 seconds or toast them... My daughter won't eat any other kind of gluten-free bread.

EnerG has good pretzels and crackers as well as Glutino Brand... Enjoy Life Foods has lots of snacks that are yummy, MiDel Gluten free cookies are also good kid snacks, Fruit snacks (check w/ mfr.) are a good option, fresh fruit, fresh veggies and a dip (like a yummy salad dressing he likes)... I gotta go get ready for work, I'll try to post more ideas later.

debbiewil Rookie
debbiewil
Posted

For snacks, you can use some regular ones that they might already be used to. Lays Stax chips are gluten free (not the regular Lays - some of the regular ones may be cross contaminated, and some of the regual flavored chips may contain gluten). Some of the corn chips and rice cakes are gluten free. My little neice loves to dip food. We get gluten-free ranch dressing, peanut butter, salsa, etc. and put it on a plate with some fresh veggies, fruit, and gluten-free chips and she's happy.

Debbie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


key Contributor
key
Posted

My son loves crunchy cheetos(we use these in place of crackers). They are messy though. We also like Envirokids gluten-free vanilla animal cookies. We keep brown rice cooked and spaghetti noodles from Tinkyada. It helps to have stuff cooked on hand. I also like the personal pizza's made by Kinnikinnick. HE likes these alot. Also cheese sticks if he can have those.

My son also eats quite a bit of yogurt.

Good luck.

Monica

averyevansmom Apprentice
averyevansmom
Posted
  • Author

bluelotus,katerinvon,taweavmo3,nini,debbiwil and key

Thanks so much for the information. My son is 3 and can eat pretty much anything at this point. He doesn't like much meat though. I expect most kids his age don't. I've been trying to find as much info as possible on the regular foods that I can for him. We are all going gluten free even before the results come in. I just want to see if there is any change in him. I assume it will take a little time to see the change. He's such a good little guy. He is such a spaz today, really goofy and giggly. Not the norm for him at all, he's usually quite mellow and laid back except when he's in pain or having some sort of reaction to something. I don't mean to repeat myself but has anyone heard of seeing the white patches in the small bowel as well as the inflammation? I'm wondering if they go hand in hand with celiac. I just received Dangerous Grains from the library and started to read it last night. I was exhausted so didn't get through much.

Again, thanks to everyone.

Going to Trader Joes tonight to see if they have a better selection than Whole Foods. The only problem is TJ's is about 45-50 min as opposed to WF's which is 15-20 min. Oh, well, when it comes to the kiddies, parents will go to the ends of the earth.

Becky

chrissy Collaborator
chrissy
Posted

becky, before we were even suspecting celiac in our kids, one of my twins had an endo with biopsies because she also has reflux. her intestines were fine (no damage, no inflamation) but her esophagus was covered with white patches. the ped gi told me it was either food allergies or a fungal infection. it turned out she had esophageal thrush.

christine

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,549
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.