Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Always Hot

MACE

By MACE
in Coping with Celiac Disease

Recommended Posts

MACE Rookie
MACE
Posted

I WAS WONDERING IF ANYONE ELSE FEELS HOT OR FLUSHED AFTER EATING GLUTEN. I USE TO STAY HOT ALL THE TIME. IT HAS BEEN BETTER LATELY, THAT IS UNTIL TONIGHT. I BROKE DOWN AND EAT SOME PASTA FOR DINNER AND RIGHT AWAY I FELT SO HOT AND FLUSHED AGAIN. ALSO DID NOT FINISH EATING THE PASTA, THOUGHT I WAS GOING TO THROW IT UP BEFORE I FINISHED. I USE TO EAT PASTA ABOUT EVERYDAY, WAS SICK ON STOMACH ALOT OF THE TIME AND HAD NOT CONNECTED IT TO THE PASTA. SO MUCH TO LEARN ABOUT THIS GLUTEN THING. ALSO WAS WONDERING I HAVE LOW BLOOD PRESSURE AND MY BODY TEMP. IS ALWAYS BELOW THE NORMAL MARK ( 96.2 ) NORMAL FOR ME. DO ANY OTHERS HERE HAVE THE SAME THING WITH THEIR PRESSURE AND TEMP.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Nancym Enthusiast
Nancym
Posted

One of my symptoms was feeling hot, fast, hard heart beat. It was kind of spooky.

jerseyangel Proficient
jerseyangel
Posted

I definately remember that while I was still eating gluten, I would get hot and nauseous after eating quite often. I used to get night sweats in my 30's. It got so that the heat was mostly in my face. My face felt hot to the touch. My blood pressure tends to run on the high side. The hot face still happens once in a while--much less now, though.

MACE Rookie
MACE
Posted
  • Author
I definately remember that while I was still eating gluten, I would get hot and nauseous after eating quite often. I used to get night sweats in my 30's. It got so that the heat was mostly in my face. My face felt hot to the touch. My blood pressure tends to run on the high side. The hot face still happens once in a while--much less now, though.

YOUR SAYING SOMETHING ABOUT THE NIGHT SWEATS JUST MADE ME THINK, I AM NOT HAVING THEM LIKE I USE TO. IT WAS SO AWFUL WAKING UP SO HOT ALL DURING THE NIGHT. IT WAS MY ENTIRE UPPER BODY THAT WOULD FEEL SO HOT AFTER EATING GLUTEN.

Ann1231 Enthusiast
Ann1231
Posted

I tend to get flushed and very warm for hours. I also sweat a great deal, even if it's cold out, when I have gluten. Without it, I have cold hands, no sweating, and no redness to the face.

Ann

CarlaB Enthusiast
CarlaB
Posted

Broda Barnes MD did a lot of throid research and determined that basal body temps. are a more accurate indication of low thyroid than the current blood tests. Your temp. should be over 97.5 first thing in the morning (Dr. Barnes said 97.8, but after 7 years of teaching natural family planning, that seems high). You can pull up a lot of information on this if you do a search for Broda Barnes. I started taking thyroid from the health food store three years ago, my temps. are now normal and I have much more energy than I used to.

I also have horrible hot flashes and night sweats when I'm consuming gluten. In fact, it was a result of these that I bought a book called something like, "What Your Doctor Won't Tell You About Premenopause." In this book she brings up food allergies, and as a result I discovered my gluten problem. I would have continued on sick for years had I not read this book.

CeliaCruz Rookie
CeliaCruz
Posted

I didn't even realize that the "hot flashes" and rapid heartbeat were a symptom of Celiac until I eliminated gluten from my diet and noticed that they went away shortly thereafter.

I used to have sweating issues to beat the band. You know how Whitney Houston sweats whenever she performs? That's me. Only I couldn't even blame stage lights, crack cocaine or the demands of performing for a live audience. I'd sweat from the tiniest exertion -- walking the dogs, shopping for groceries, you name it. One of my doctors wanted to give me a prescription strength anti-perspirant but I argued that the "sweat" wasn't really the problem. I was sweating because I was always hot.

These days, it's really interesting because I actually have a normal body temperature and now that it's winter, I actually have to turn the radiators on in my apartment and wear sweaters and stuff. Plus I don't have to change my sheets everyday.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


  • 6 years later...
ycomp Newbie
ycomp
Posted

I definately remember that while I was still eating gluten, I would get hot and nauseous after eating quite often. I used to get night sweats in my 30's. It got so that the heat was mostly in my face. My face felt hot to the touch. My blood pressure tends to run on the high side. The hot face still happens once in a while--much less now, though.

Hi, was this no matter what you ate? or only if food contained gluten?

jerseyangel Proficient
jerseyangel
Posted

Hi, was this no matter what you ate? or only if food contained gluten?

Hi--since it was before I was on the gluten-free diet, I don't know exactly what triggered it since at that time I didn't connect it with what I ate. I suspect gluten was a cause at least, since going gluten-free helped immensely. 7 years later, I never get the hot face/skin anymore. I still run a bit on the warm side, and don't tolerate hot weather well, but it is much improved.

ycomp Newbie
ycomp
Posted

Hi--since it was before I was on the gluten-free diet, I don't know exactly what triggered it since at that time I didn't connect it with what I ate. I suspect gluten was a cause at least, since going gluten-free helped immensely. 7 years later, I never get the hot face/skin anymore. I still run a bit on the warm side, and don't tolerate hot weather well, but it is much improved.

perhaps another way to phrase it is, did this hot feeling stop after you immediately eliminated gluten.. i.e. within a day or two... or did it take a number of weeks or longer ?

jerseyangel Proficient
jerseyangel
Posted

It's been a while (I made that post in 2006) but I would say it was a matter of weeks before I saw improvement and many months before it completely stopped.

It's not uncommon for the intestinal issues to clear before the neurological ones.

jerseyangel Proficient
jerseyangel
Posted

Hi Larry Mac, nice to see you again:). Mace started this thread in 2006 and hasn't posted in a long while.

larry mac Enthusiast
larry mac
Posted

Aha, it was in new content with new posts, so I didn't notice the OP was old. Darn! Thank you Patti.

best regards, lm

Lady Eowyn Apprentice
Lady Eowyn
Posted

Hi

Gluten makes me horribly hot especially my face sweating. This can last ages especially if under stress or exercising.

Thought it was just hot flushes but happens like clockwork if I get cc'd then keeps on the rest of the day. In my own mind, it is caused by a rise in cortisol (stress to the body caused by gluten or other problem food) . Like a stressful situation can cause a hot flush. Just my impression - could be a load of rubbish :ph34r: .

Anyway, woohoo - I'm not the only one.

One of the ways I know I've eaten a problem is rapid heartbeat and big hot flush.

GFinDC Veteran
GFinDC
Posted

There have been several threads on night sweats, one is linked below. I sued to have night sweats and they didn't sopt right after going gluten-free. It took quite a while in fact. Many months for them to go away.

https://www.celiac.com/forums/topic/7242-night-sweats/page__view__findpost__p__148443__hl__%2Bnight+%2Bsweat

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lil-oly
      - lil-oly replied to Jmartes71's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Gluten tester

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye.
    2. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thanks so much!
    3. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      I have osteopenia and have cracked three vertebrae. Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins. Blood tests don't reveal the amount of vitamins stored inside cells. The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four...
    4. JudyLou
      - JudyLou replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician? Have you been checked for nutritional deficiencies? Osteoporosis? Thyroid? Anemia? Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the...
    5. knitty kitty
      - knitty kitty replied to JudyLou's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Seeking advice on potential gluten challenge

      @JudyLou, I have dermatitis herpetiformis, too! And...big drum roll... Niacin improves dermatitis herpetiformis! Niacin is very important to skin health and intestinal health. You're correct. dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,155
    • Most Online (within 30 mins)
      7,748
    Beccad611
    Newest Member
    Beccad611
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • lil-oly
      Gluten tester

      By lil-oly · Posted

      Hey there, have you been tested for allergies? You may not only have celiac disease but be allergic. I have celiac disease and am allergic to Barley, wheat and rye. 
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thanks so much! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      I have osteopenia and have cracked three vertebrae.  Niacin is connected to osteoporosis! Do talk to your nutritionist and doctor about supplementing with B vitamins.  Blood tests don't reveal the amount of vitamins stored inside cells.  The blood is a transportation system and can reflect vitamins absorbed from food eaten in the previous twenty-four to forty-eight hours.  Those "normal limits" are based on minimum amounts required to prevent disease, not levels for optimal health.   Keep us posted on your progress.   B Vitamins: Functions and Uses in Medicine https://pmc.ncbi.nlm.nih.gov/articles/PMC9662251/ Association of dietary niacin intake with osteoporosis in the postmenopausal women in the US: NHANES 2007–2018 https://pmc.ncbi.nlm.nih.gov/articles/PMC11835798/ Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/   Nutritional Imbalances in Adult Celiac Patients Following a Gluten-Free Diet https://pmc.ncbi.nlm.nih.gov/articles/PMC8398893/ Nutritional Consequences of Celiac Disease and Gluten-Free Diet https://www.mdpi.com/2036-7422/15/4/61 Simplifying the B Complex: How Vitamins B6 and B9 Modulate One Carbon Metabolism in Cancer and Beyond https://pmc.ncbi.nlm.nih.gov/articles/PMC9609401/
    • JudyLou
      Seeking advice on potential gluten challenge

      By JudyLou · Posted

      Thank you so much for the clarification! Yes to these questions: Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, or vitamins? I’m within healthy range for nutritional tests, thyroid and am not anemic. I do have osteopenia. I don’t take any medications, and the dietician was actually a nutritionist (not sure if that is the same thing) recommended by my physician at the time to better understand gluten free eating.    I almost wish the gluten exposure had triggered something, so at least I’d know what’s going on. So confusing!    Many thanks! 
    • knitty kitty
      Seeking advice on potential gluten challenge

      By knitty kitty · Posted

      @JudyLou,  I have dermatitis herpetiformis, too!  And...big drum roll... Niacin improves dermatitis herpetiformis!   Niacin is very important to skin health and intestinal health.   You're correct.  dermatitis herpetiformis usually occurs on extensor muscles, but dermatitis herpetiformis is also pressure sensitive, so blisters can form where clothing puts pressure on the skin. Elastic waist bands, bulky seams on clothing, watch bands, hats.  Rolled up sleeves or my purse hanging on my arm would make me break out on the insides of my elbows.  I have had a blister on my finger where my pen rested as I write.  Foods high in Iodine can cause an outbreak and exacerbate dermatitis herpetiformis. You've been on the gluten free diet for a long time.  Our gluten free diet can be low in vitamins and minerals, especially if processed gluten free foods are consumed.  Those aren't fortified with vitamins like gluten containing products are.  Have you consulted dietician?  Have you been checked for nutritional deficiencies?  Osteoporosis? Thyroid? Anemia?  Do you take any supplements, medicine, or vitamins? Niacin deficiency is connected to anemia.  Anemia can cause false negatives on tTg IgA tests.  A person can be on that borderline where symptoms wax and wane for years, surviving, but not thriving.  We have a higher metabolic need for more nutrients when we're sick or emotionally stressed which can deplete the small amount of vitamins we can store in our bodies and symptoms reappear.   Exposure to gluten (and casein in those sensitive to it) can cause an increased immune response and inflammation for months afterwards. The immune cells that make tTg IgA antibodies which are triggered today are going to live for about two years. During that time, inflammation is heightened.  Those immune cells only replicate when triggered.  If those immune cells don't get triggered again for about two years, they die without leaving any descendents programmed to trigger on gluten and casein.  The immune system forgets gluten and casein need to be attacked.  The Celiac genes turn off.  This is remission.    Some people in remission report being able to consume gluten again without consequence.   However, another triggering event can turn the Celiac genes on again.   Celiac genes are turned on by a triggering event (physical or emotional stress).  There's some evidence that thiamine insufficiency contributes to the turning on of autoimmune genes.  There is an increased biological need for thiamine when we are physically or emotionally stressed.  Thiamine cannot be stored for more than twenty-one days and may be depleted in as little as three during physical and emotional stresses. Mitochondria without sufficient thiamine become damaged and don't function properly.  This gets relayed to the genes and autoimmune disease genes turn on.  Thiamine and other B vitamins, minerals, and other nutrients are needed to replace the dysfunctional mitochondria and repair the damage to the body.   I recommend getting checked for vitamin and mineral deficiencies.  More than just Vitamin D and B12.  A gluten challenge would definitely be a stressor capable of precipitating further vitamin deficiencies and health consequences.   Best wishes!    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.