Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Husband's Symptoms


achiera

Recommended Posts

achiera Rookie

I have a question for all of you here. my husband is a self-diagnosed celiac. he's been gluten free for the past week and most of his symptoms have improved so much. but yesterday at work he ate pizza because their was nothing around, and we couldnt go out because he was so sick. most of his life he's had the brain fog, stomach pains, constipation or d. , headaches, gas, inability to gain weight, sore throats after eating bread/pastat, heart problems, etc... and we were talking last night about his family's medical history and it goes as follows, he can rememebr his mother always having similar symptoms throughout her life, and she died from hodgkins lymphoma about 10 years ago, her mother is now dieing from stomach/liver cancer and has always had similar symptoms, and her father had the same and died from colon cancer. now from what ive been reading, all of those diseases can stem from untreated celiac disease, right? i was just wondering everyone's opinion on the subject. i think he realized that it's possible that celiac disease is what his mother had and he is going gluten free from now on, and doesnt even want a offical diagnosis! i guess at the end of the day we all know whats going on in our own bodies more than any doctor or test. but my second question is what's the chance of 2 people getting married that both have the same disease?!?!? lol

thanks

alexis


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator

I think the chances are pretty slim but anything can happen! I think its very cool and definately makes life easier for both of you not having to worry about having gluten in the house. :)

Guest nini

actually I would think the odds are not that high really... right now they are estimating that one in 133 people have it... I think that as time goes on, they are going to put that number closer to one in say 50... I've been doing a little reasearch into blood type diets and that apparently the only blood type that may be able to digest gluten is AB... that would be the newest blood type on the evolutionary scale... the older blood types aren't capable of digesting the proteins in wheat, but AB types have evolved enough to be able to handle it... Interesting theory, might be something to look into. I know my blood type is A+...

nettiebeads Apprentice
and he is going gluten free from now on, and doesnt even want a offical diagnosis! i guess at the end of the day we all know whats going on in our own bodies more than any doctor or test. but my second question is what's the chance of 2 people getting married that both have the same disease?!?!? lol

thanks

alexis

One - he has dx'd himself through the diet challenge. That was good enough for my dr. 9 yrs ago and I'm not arguing nor have any desire to get a more "official" dx. I know I can't have gluten, period. No other drs since have argued with me on that.

Two - and like nini said, the current estimate is 1 out of 133 probably have celiac, while only 1 in about 4,000 are properly dx'd with it. It just means that you two are more aware of celiac than the average population. Those with northern european ancestry seem to be more likely to carry the gene, so what are your respective backgrounds?

Anyhow, here's to his improved health!

Annette

Nancym Enthusiast

My own personal theory is it isn't slim at all because human beings have only been eating grain for 10,000 years and that isn't necessarily long enough to have completely adapted. Worse yet, we might never adapt because for a lot of us, we live long enough to reproduce and raise children.

Dr. Fine is looking for gluten antibodies in the gut and is finding them in an astonishingly high number of people, something like 60% I believe. I'm guessing only a small percentage of those get sick enough to be classified as celiacs but the rest of us are just somewhat sick to being mostly sick.

My own Mom is 86 years old and I believe she's gluten intolerant. She has a lot of the same symptoms I do, but not as bad. And I did get two of the GI genes, so one had to come from Mom. So I think it is possible to live a long life and just ignore it if your symptoms are light, but the last 10 years or so of your existence might not be so fun.

I think just giving a gluten-free diet a good run and seeing how you feel is a great idea. Why wait until you're so super sick you can't function normally at all? I think doctors are diagnosing the problem way, way too late. The tests are antiquated and they're too conservative in interpreting them and telling people to continue to poison themselves until they're much, much sicker.

I think this is one of those things that in 10-20 years people will look back and laugh at how antiquated and stodgy the doctors were back in the "old days", kind of like how we laugh at the advice they gave mother's in the 1950's to not breast feed and use formula instead because it was healthier.

achiera Rookie

thanks for the repsonses everyone, nettie to answer your question, we are both italian. my husband is a italian citizen and we lived there together for about a year. its funny because when we were there we both ate a gluten free diet and felt fantastic, I was searching for gluten free bread for the longest time while there, and finally found it in the pharmacy of all places! in italy celiac disease is so common that every child is tested for it before their 6th birthday. and gluten free products are considered to be medicinal.

alexis

Rusla Enthusiast

acheira,

I would say the instances are high with the ratios. It must be very high in Italy if they manditorily check every child before 6 years now. I am Scandinavian/Italian so, another high ration. It would be good if every country that has susceptibility to Celiac in its people should.

Sometimes in North America we are so far behind in medical things that, we think we are first.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Related issues

    3. - trents replied to Sarah Grace's topic in Related Issues & Disorders
      21

      Headaches / Migraines and Hypoglycaemia

    4. - Scott Adams replied to jessicafreya's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Tamale ingredients

    5. - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,145
    • Most Online (within 30 mins)
      7,748

    Kundrey
    Newest Member
    Kundrey
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      @Sarah Grace,  Thank you for the update!  It's so good to hear from you!  I'm glad Thiamine, B Complex and magnesium have helped you.  Yes, it's important to take all three together.    I had to quit eating cheese and nuts a long time ago because they triggered migraines in me, too.  They are high in tyrosine, an amino acid, found also in fermented foods like sauerkraut and red wine.   I found taking Tryptophan very helpful with migraines.  Tryptophan is a precursor of serotonin and people with migraines are often low in serotonin.  (Don't take tryptophan if you're taking an SSRI.)     This recent study shows tryptophan really helps. The association between dietary tryptophan intake and migraine https://pubmed.ncbi.nlm.nih.gov/31254181/   For immediate respite from a migraine, try smiling REALLY BIG, mouth closed, tongue pressed against roof of mouth, and crinkle up your eyes like you just heard or saw the funniest thing...  This causes an endorphin release in the brain.  Usually it's the funny event, then the endorphin release and then the smile.  Smiling first makes the endorphin center think it missed something and it catches up quickly by releasing endorphins after the big crinkle eyed smile.  Must make crinkly eyes with smile or it won't work.  If you do this too frequently within a short time frame (several hours), you can deplete your endorphins, but you'll make more in a couple of hours, so no worries. Get your thyroid checked, too.  Migraines are also seen in low thyroid function (Hashimoto's or hypothyroidism).  Celiac and thyroid problems go hand in hand.   Vitamin D helps, too.  Low Vitamin D is found in migraine.   I'm so glad you're doing better.  
    • Jmartes71
      Its been a complete nightmare dealing with all these health issues one thing after another and being told many different things.I am looking for a new primary care physician considering when I told my past doctor of 25 years I was diagnosed before any foods eliminated from my diet and now this year at age 54 no longer able to push considering Im always exhausted, leg pain , stomach,skin and eye issues,high blood pressure to name a few all worsen because I was a  school bus driver and few years until my immune system went to hell and was fired because of it.Im still struggling now, Im sibo positive and been told im not celiac and that I am.I have a hernia and dealing with menopause. Its exhausting and is causing depression because of non medical help. Today I saw another gastrointestinalist and he said everything im feeling doesn't add up to celiac disease since my ITg levels are normal so celiac disease is under control and it's something else. I for got I had Barrett's esophagus diagnosed in 2007 because recent doctors down played it just like my celiac disease. Im currently looking for a pcp in my area because it is affecting me personally and professionally. Im told since celiac looks under control it's IBS and I need to see a therapist to control it. Gastrointestinalist around here think only food consumption and if ITG looks normal its bit celiac disease it's something else. Is this right? This is what im being told. I want medical help but told its IBS.Im feel lost by " medical team "
    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.