Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Refractory Sprue


sillyyak

Recommended Posts

sillyyak Enthusiast

I was diagnosed with sprue last November. Initially, I started to get better but then this past week has been horrible with nauseau, vomiting, diarrhea and sever abdominal pain. How do I know this could be an indictation or refractory sprue or not? I am very upset and worried that I was getting better and now seem to be not getting better. Any advice would be appreciated! Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

Refractory sprue is very, very rare. It's much more likely that you are making mistakes, that you aren't healed yet (you probably aren't; two months isn't much time), or even that you have bacterial overgrowth (try some probiotics).

richard

tarnalberry Community Regular

or a separate infection - viral or bacterial. has the flu been going around your area?

happygirl Collaborator

or is there any chance that you have had minor, minor amounts of gluten (i.e., through cross contamination, etc?) the only time I get symptoms is if I have been 'glutened.'

Hope you feel better!

LLCoolJD Newbie

I'll tell you straight up - don't worry about refractory sprue. You can spend hours and hours online looking up horrible complications of Celiac Disease (refractory sprue, intestinal t-cell lymphoma, etc.), but it will just lead to unnecessary worrying and will be time wasted.

From what you're describing, you have probably caught a nasty virus, or eaten something that doesn't agree with your system. As someone else mentioned, the more dangerous complications like refractory sprue are very rare. Keep yourself well-fed, well-hydrated, and hang in there. It'll get better.

julie5914 Contributor

I worry about it too because my blood numbers will not get down. It is still early for me too though - just 6 months - and I am not very malnourished or too thin. I wasn't sure if you meant Nov of 2004 or 2005. If you meant 2005, it isn't anything to worry about yet. If you are talking about 2004 and this keeps up, it may be worth getting a endoscopy to see what's going on if you are really concerned.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,484
    • Most Online (within 30 mins)
      7,748

    Miaokang
    Newest Member
    Miaokang
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)

    • There are no registered users currently online

  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      It looks like their most recent clinical trial just finished up on 5-22-2025.
    • Fabrizio
      Dear Scott,  please check the link https://clinicaltrials.gov/study/NCT05574010?intr=KAN-101&rank=1 What do you think about it?
    • Scott Adams
      KAN‑101 is still very much in development and being actively studied. It has not been dropped—rather, it is advancing through Phases 1 and 2, moving toward what could become the first disease‑modifying treatment for celiac disease. https://anokion.com/press_releases/anokion-announces-positive-symptom-data-from-its-phase-2-trial-evaluating-kan-101-for-the-treatment-of-celiac-disease/ 
    • knitty kitty
      Thiamine interacts with all the other B vitamins.  Thiamine and B 6 make a very important enzyme together. With more thiamine and other vitamins available from the supplements your body is absorbing the ones you need more of.  The body can control which vitamins to absorb or not.  You're absorbing more and it's being transported through the blood.   It's common to have both a Thiamine and a Pyridoxine deficiency.  Keep taking the B Complex. This is why it's best to stop taking supplements for six to eight weeks before testing vitamin levels.  
    • badastronaut
      Yes I took a supplement that had B6 in it, low dosage though. I've stopped taking that. B1 doesn't affect other B vitamin levels? 
×
×
  • Create New...