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''its Not Coeliac''


yorkshire lass

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yorkshire lass Newbie

Not been around for quite a while since about November, when i first posted

and also posted about my son age 12 going through food elimination and tests.

Well he is now back on all food except for wheat, as they think this is now his problem,

but the dietitian stated that 'he is not coeliac like you' so what i want to know is will this

have the same implications at coeliac? he gets the same symptoms when eating gluten/

wheat as i do but they said from his biopsy didn't show it. I guess when we go back in

February i will have to get down to everything with the consultant to spell it all out for me

and explain the differences :unsure:


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Guest nini

just because he doesn't show any damage YET, doesn't mean that he won't. Especially if he is already reacting obviously to wheat. Dr.s are extremely reluctant to diagnose celiac if they don't see any damage. Look at it this way, you have it, he has the genetic predisposition to it and is already showing reactions to wheat/gluten... the diet in this situation is the same whether he has celiac or is just intolerant... In my opinion he does have a higher risk of developing it along down the line, and since he already reacts to wheat, go ahead and treat it as celiac and keep him gluten free. It will keep him healthier in the long run. You do not need Dr.s permission to keep him on the diet, Regardless of if it is Celiac or not, he will be healthier without it, right?

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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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