Cure for celiac, might be in poop?

[Zprime]

I've been following a doctor here in canada who's cured/ fully reversed several cases of celiac disease with fmts  ( fetal matter transplants ).

The patients were able to cure several of their food intolerances, regrow villi and eat gluten again without consequences. 

I've been debating starting a go fund me to get the procedure done, and see if it actually works, if it works I think we may be on the forefront of a possible cure/ treatment , and maybe even eat gluten again worry free.

Anyone here tried a fmt? Had their celiac reversed ?

Would anyone here be interested in me trying this experiment?

 

The treatment here is between 600 - 1000 and not covered by insurance, experimental.

Would the community be interested in helping out?

[Zprime]

Found a second article where someone has cured from celiac with a fmt. This is exciting! 

[ravenwoodglass]

The person referred to in the article had C Diff. and Refactory Celiac. This procedure has had some success with folks that have C Diff and I have to wonder if the infection was what was keeping the patient from healing on the diet. Refactory Celiac is pretty rare from my understanding.

It used to be thought that children would outgrow celiac because after complete healing it can take some time for antibodies and symptoms to show back up.  In studies that show patients 'cured' of celiac I would like to see long term studies done.

If you want to persue the fecal transplant route you should talk to your doctor. Your insurance may cover it if the doc considers it a possible treatment of value.

[Zprime]

1 minute ago, ravenwoodglass said:

The person referred to in the article had C Diff. and Refactory Celiac. This procedure has had some success with folks that have C Diff and I have to wonder if the infection was what was keeping the patient from healing on the diet. Refactory Celiac is pretty rare from my understanding.

It used to be thought that children would outgrow celiac because after complete healing it can take some time for antibodies and symptoms to show back up.  In studies that show patients 'cured' of celiac I would like to see long term studies done.

If you want to persue the fecal transplant route you should talk to your doctor. Your insurance may cover it if the doc considers it a possible treatment of value.

What I found fascinating is that refacing celiac is much much worse than ' average celiac disease ', so if fmt can cure that, entirely , then it would make sense it would also benefit an average celiac diagnosis, I'm going to start making calls tomorrow, wont stop till this disease is cured.

[ravenwoodglass]

Try contacting the doctor you mention. If he is still doing research he might treat you for free if you join the study.

Are you newly diagnosed and still having symptoms? It can take some time to heal and there are many here who can help with that change in lifestyle.

[Zprime]

Just now, ravenwoodglass said:

Try contacting the doctor you mention. If he is still doing research he might treat you for free if you join the study.

Are you newly diagnosed and still having symptoms? It can take some time to heal and there are many here who can help with that change in lifestyle.

Absolutely. I will.

Diagnosed in March  but sicker gluten free than on gluten. Developed all sorts of bowel conditions since I no longer have fibre/ bread. 

On about 8 supplements, stressed and depressed all the time, was fine before, only found it because of a routine endoscopy. I dont feel ' healthy ' without gluten, it's so hard to explain. When I did a one month trial on gluten all my symptoms improved including my stools. Even my anti ttga went down, but I get conflicting reports so for now I'm avoiding gluten.

 

I just feel like I was fine, then my gut got messed up. I was healthy at 31. Now I'm 32 and I feel like I won't make it to 33, my body is literally dying / falling apart. f$#% celiac or whatever it is I have

[cyclinglady]

Are you sure your supplements are actually gluten free?  Have they been tested?  New reports on reveal that even prescription genetic drugs are contaminated.  Almost all come from China and India.  The same China that is smuggling in Fentanyl in quantities that could millions of people.  

https://www.cnbc.com/2019/09/17/schwarzman-im-hearing-china-is-working-to-stop-illicit-fentanyl-shipments.html

https://www.cbsnews.com/news/generic-drugs-manufactured-overseas-may-not-be-as-safe-as-you-think/

That aside, unless you have C. Diff or IBD, considering fecal implants for celiac disease is crazy.  Celiac disease occurs in the small intestine where there is little bacteria.  One case study of a refractory patients does not make it a good idea.  This is still considered experimental.  

https://crohnsandcolitis.ca/Crohns_and_Colitis/documents/treatment-statements/FecalTransplantation_Statement_16Nov2016.pdf

You can get plenty of fiber into your diet without bread.  Try eating vegetables.  What did people consume before they started cultivating crops?  

If your diet is super gluten-free clean (including drugs and supplements), you should see your doctor.  You might have other illnesses.  

 

[GFinDC]

You can try adding psyillium husks to your food for extra fiber.  They can be added to just about any food.  You can also look up lists of foods with high fiber to eat.  Things like peas and sweet potatoes are some examples.

We did have one person several years ago who claimed to be cured of celiac disease.  They had a disease and had their bone marrow replaced as part of the treatment.  I never heard if that worked for anyone else.  But bone marrow replacement is a very expensive and dangerous process anyhow and not something to do unless medically necessary.

The immune system is very effective and doesn't forget things easily.  If you can find a way to retrain your immune systems you can cure celiac disease.  But that is not likely.