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Glutened Or Dairied?


celiachap

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celiachap Apprentice

I ran low on Lactaid (lactase enzyme supplement supplement) earlier this week, and missed taking them several times. I also had some kefir that had a questionable expiration - the date on the bottle was OK, but I did not drink it within the recommended 3 days, and the last time I had it was at least three days ago.

I also found out, because my wife called, that the off-brand Senseo coffee pods (JaVaNa One available at Stop N Shop) that I've been enjoying for a couple of weeks MAY contain gluten, but I find this hard to believe because it's only coffee, and not the flavored types - which are almost uniformly suspect, if not outright, gluten-containing.

Hopefully, my sickness last night, (D, feeling faint, nauseous, etc.) was due to the dairy - which affects the large intestine. My stomach sounded like a washing machine when it goes through it's cycles. It's now 8 hours later, and I'm somewhat better having taken immodium and Pepto Bismol last night, but I just ate and the growling is still there, albeit a lot less.

I also weighed about 3 or 4 lbs. less today.

Anybody have any advice? I’d much rather think that it was the dairy that caused this illness.


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    • par18
      Thanks for the reply. 
    • Scott Adams
      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
    • Seaperky
      I found at Disney springs and Disney they have specialist that when told about dietary restrictions they come and talk to you ,explain cross contamination measures tsken and work with you on choices. Its the one place I dont worry once I've explained I have celiac disease.  Thier gluten free options are awesome.
    • Churley
      Have you tried Pure Encapsulations supplements? This is a brand my doctor recommends for me. I have no issues with this brand.
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