Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Journey

EmilyLMT

By EmilyLMT
in Coping with Celiac Disease

Recommended Posts

EmilyLMT Rookie
EmilyLMT
Posted

Hello Everyone!

I've been watching the entries these past couple months and really getting a kick out of the responses. My favorite today was, "annoying comments." HAHA! Been there before...sigh!

I thought I would go ahead and make my first entry and become of part of this wonderful support group!

My history starts back when I was a wee little girl belching beyond belief and even embarressing my 3 brothers because of my skills. Aparently they weren't skills but a disorder that I just discovered back around June of 2005. Everything started to get worse, very worse. So, I made an appointment with a holistic doctor to mainly find out why my mentrual cycles were so crazy, and we ended up talking most of the time about all of the digestive disorders I was going through (I was thinking they were just normal). She suggested a book "Eat Right for Your Type" by Peter D'Adamo. So immediately I got the book, and followed the basic steps of 'wheat is your enemy!' and WALAH! Cured! I was amazed after about 24 hours of not eating wheat, bread, pasta etc. I was feeling like a new woman and tickled pink about my new discovery.

I did go through a slight depression and some denial after realizing gluten was in everything. Then I just got tired of feeling so ill and told myself it was time to be true to myself and to my poor abused intestines. Needless to say the menstrual cycles regulated too as a part of my lifestyle change.

My favorite bread I found is Millet Bread by Deland Bakery and I buy it at Health Foods Unlimited here in Dayton, Ohio. You can also buy it online, and their bagels are scrumptious! I also read a book called "Dangerous Grains" by James Braly which REALLY helped my understand the actual physiological effects of what's really going on in our bodies when we eat wheat or gluten. I'm the type of person that wants to know how everything works, even right down to the cellular level. Another book I really enjoy is "Gluten Free Groumet" by Bette Hagman. Every recipe I've tried in there has been fabulous and delicious. She really has discovered ways to make gluten-free bread very moist.

So right now I'm just living my life reading labels and enjoying the act of cooking gluten free meals that my husband will enjoy also. He's been such a blessing in my life and so supportive! Don't get me wrong, I have my bad days of depression and feeling ill if I accidentially ingest it, but I'm trying to maintain the positive attitidue, I guess that's the only way to survive!

But I wanted to thank everyone for their humor and good insight to this new lifestyle we've all been a part of!!

Emily LMT

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hez Enthusiast
hez
Posted

Welcome to the board! I have found this board to be a life saver! It truly is a great group of people.

Hez

Guest Rad
Guest Rad
Posted

Hi Emily . . .

WELCOME to the Board ! ! ! I just joined myself three days ago, and have gotten a real education from this Board. These are intelligent, funny (I'm Gellin') kind of people who are taking Celiac seriously. Thank you for your book recommendations. I've made a list of product recommendations from fellow Board members, and just yesterday picked up some new grocery items I would have never looked for before.

Dianna

Becky6 Enthusiast
Becky6
Posted

Welcome!! This board has been so helpful to me!

Rachel--24 Collaborator
Rachel--24
Posted

Emily,

Welcome to the board :D

Good for you for listening to your body, educating yourself and having a positive attitude about the whole thing. ;)

Jenn2005 Contributor
Jenn2005
Posted

Hi Emily Welcome to the board. It has been a real life saver for me and my husband. There is a lot of helpful information here and a lot of super caring and supportive people to help with your questions and concerns on your "journey". Good Luck.

Jennifer

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,206
    • Most Online (within 30 mins)
      7,748
    juliemt
    Newest Member
    juliemt
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.