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Myspace

DragonQueen

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DragonQueen Explorer
DragonQueen
Posted

I was thinking that we could create a group in myspace about celiac disease. It would be known better and we could meet other celiacs on myspace ;) (I just recently got a myspace) Open Original Shared Link Advertisement/kk_is_dragonqueen

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mytummyhurts Contributor
mytummyhurts
Posted

h.

jenvan Collaborator
jenvan
Posted

I'm down too :)

jerseyangel Proficient
jerseyangel
Posted

I would like to be involved, too--but I don't know anything about myspace :(

mookie03 Contributor
mookie03
Posted

Sounds great! i dont know how to join a group on myspace yet though ;)

Moongirl Community Regular
Moongirl
Posted

its really easy go to myspace. com and you can create a profile about yourself....you can put up pictures if you would like too, gives you a lot of options to meet people....here is my link myspace. com /44094908 (without the spaces though)

see you all there B)

Mango04 Enthusiast
Mango04
Posted

I was actually surprised to find about four or five celiac and gluten free groups already on myspace. Just go to the groups homepage and run searches for the words "celiac" and "gluten"

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jenvan Collaborator
jenvan
Posted

Wow--I'm going to ck that out!

ErraticBinxie Explorer
ErraticBinxie
Posted

Open Original Shared Link

Click on that link. This is my favorite celiac group on myspace.

DragonQueen Explorer
DragonQueen
Posted
  • Author

wow :o last time I searched there was nothing. I think we should just make our own group, since we kinda all know eachother and then other people can join our group!

Ya, its really easy to get an account. B)

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

I made a group for us

<a href="Open Original Shared Link Advertisement/glutenfreeforlife" target="external ugc nofollow">Open Original Shared Link Advertisement/glutenfreeforlife</a>

use my space instead of "lame advertisment"

Why does Scott have that control on there???

Scott,

In the decription portion of the group, I mentioned the group met at www.glutenfreeforum.com

If this bothers you, I can remove it.

Bronco

mytummyhurts Contributor
mytummyhurts
Posted

I just joined the group!

Moongirl Community Regular
Moongirl
Posted

cant figure out how to get to it....?

Mango04 Enthusiast
Mango04
Posted

I just joined too! :)

Claire Collaborator
Claire
Posted
cant figure out how to get to it....?

me either. How DO YOU GET TO IT? Claire

mytummyhurts Contributor
mytummyhurts
Posted

h.

Claire Collaborator
Claire
Posted
"Open Original Shared Link space/glutenfreeforlife

If you put in this address (without the space in myspace) it should take you right to it.

For whatever reason, this did not work. Anyone else have trouble with it? Claire

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Open Original Shared Link space.com/glutenfreeforlife <--CUT AND PASTE THIS

---- put the space back between my and space after you paste this ----

Then join the group -- I think we have 4 members so far -- where is KaitiUSA, Jenvan, celiac3270, Lisa baker, Richard, etc etc and everyone else?

My space is free folks and really easy....

jerseyangel Proficient
jerseyangel
Posted

I joined today--can't post for 7 days, though, so see you there then!

Moongirl Community Regular
Moongirl
Posted

Im on too, thanks for starting this up1 :)

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Up to 7 members!!

Keep it up!

DragonQueen Explorer
DragonQueen
Posted
  • Author

Ya, something is wrong with that link. :huh: ZI can't find the group, even when I search myspace, it isn't there. I want to join.

Oh, I got it! :rolleyes: Thanks Broncobux :)

Claire Collaborator
Claire
Posted

I am an experienced computer user but I am lost on this one. The link provided was declined and searches turn up nothing. Help. Claire

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted

Claire,

Don't click on the link above in my previous e-mail

Due to the space between "my" and "space" the link won't let you get all of it.

Rather copy the whole thing (highlight it all and hit "Ctrl and C" at the same time (this will copy it)

OR you can highlight the entire thing and copy it with your mouse (right click then click on copy after it is highlightd)

Then

Paste it to the url area on the top of your screen (where the name of the websitesgo)

You can paste in two ways -- either click on the area you want to paste and then right click your mouse and then left click on paste OR click on the area you want to paste and hit "Ctrl - V" at the same time.

Then put the cursor right before "space.com/" and hit the "backspace" button

then click on "go"

does this help?

:)

jenvan Collaborator
jenvan
Posted

Woo hoo! I'm in! Patti-what’s your my space address?

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      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
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