Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hand tremors, raised cholesterol levels & chronic SIBO

Barbara Gorman
 Share

Recommended Posts

Barbara Gorman Newbie
Barbara Gorman
Posted

Diagnosed celiac two years ago and have been gluten-free ever since. However, two new symptoms have developed since then. Hand tremors and my cholesterol has gone up to 202 when it has always been low. Has anyone else experienced  hand tremors? I thought staying gluten-free would make celiac related issues disappear. Also I have chronic SIBO and after several rounds of antibiotics and staying on low FODMAP diet, I am still struggling with it. Welcome any helpful comments, knowledge-shares and advice. Be well.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted
(edited)
3 hours ago, Barbara Gorman said:

Diagnosed celiac two years ago and have been gluten-free ever since. However, two new symptoms have developed since then. Hand tremors and my cholesterol has gone up to 202 when it has always been low. Has anyone else experienced  hand tremors? I thought staying gluten-free would make celiac related issues disappear. Also I have chronic SIBO and after several rounds of antibiotics and staying on low FODMAP diet, I am still struggling with it. Welcome any helpful comments, knowledge-shares and advice. Be well.

Two thoughts- 

Perhaps, now that you are digesting and absorbing food properly- you are getting (absorbing)  more cholesterol?  Or it could be unrelated.

with the tremors- the fact that they started 2 years later sounds like they may have a cause other than Celiac.  
 

 

Edited by kareng
cyclinglady Grand Master
cyclinglady
Posted

My cholesterol increased after my diagnosis.  It used to be very, very low and my doctors were happy about that.  Now I know that it was probably due to the fact that I was not absorbing my foods properly.  I do not worry about cholesterol.  I worry more about my blood glucose levels which might just contribute to heart disease rather than cholesterol.  

The tremors sound unrelated to celiac disease in your case.  I would see a doctor. Since my diagnosis,  I have learned that not everything is due to celiac disease.  

Have you had follow-up testing since your diagnosis?  How were you checked for SIBO?  Just a breath test?  Maybe time for another endoscopy to what actually is going on.

Finally, consider a second opinion from a celiac-savyy GI.  It might be worth every penny, even if you must go out of your network.  Take all your medical history.  It is your right to maintain your own personal medical records.  

I wish you well.  

NNowak Collaborator
NNowak
Posted

Many things can raise cholesterol (ie. alcohol, sugar, carbs) and some people are simply genetically predisposed to higher numbers. If your physician isn’t concerned, you can probably avoid that worry. I agree with cyclinglady that you may want to look into a GI that specializes in Celiac. The most reliable test for SIBO is biopsy, and will determine which bacteria you need to treat. SIBO typically is an issue as a result of another problem, such as celiac, gastritis, gastroparesis, colitis, etc. If you’ve been treated with the antibiotics since going gluten-free, perhaps the root cause has not been identified, or the type of bacteria was not treated effectively.  SIBO causes malabsorption, so my thought is that the tremors could be related to nutritional deficiencies.  A GI that specializes in Celiac can separate the issues and get to the bottom of it. 
 

Good luck!

vvicin02 Enthusiast
vvicin02
Posted

I also have experienced the same thing. My cholesterol soared after diagnosis with celiac disease (1 year on GFD). The Doctor wanted to put me on some medication to lower it but I insisted that I wanted to try to control it by diet. After a month or so I reduced my carb intake and red meat and my cholesterol dropped by 50 points. My LDL is still not good and I am not out of the woods. Lot of it might be genetic and age. My Dad had high cholesterol so I suppose I too will share the same fate. I think there is some truth to the fact that we might be absorbing food better - that included cholesterol. 

Posterboy Mentor
Posterboy
Posted
On 12/8/2019 at 11:43 AM, Barbara Gorman said:

Diagnosed celiac two years ago and have been gluten-free ever since. However, two new symptoms have developed since then. Hand tremors and my cholesterol has gone up to 202 when it has always been low. Has anyone else experienced  hand tremors? I thought staying gluten-free would make celiac related issues disappear. Also I have chronic SIBO and after several rounds of antibiotics and staying on low FODMAP diet, I am still struggling with it. Welcome any helpful comments, knowledge-shares and advice. Be well.

Barbara,  I have not had our experience... (I have had "pins and needles" through due to peripheral neuropathy) but I do a lot of research usually now related to my prediabetes and other family/friends medical issues and I am always amazed about how much/many times I find out that there are studies about this or that that most doctor's don't know about...especially recent research....say only 5 years old and newer and I got a hit on your condition Hand tremors that might help you....https://casereports.bmj.com/content/2018/bcr-2017-223945.abstract it less than 2 years old...so it still brand spanking new as research age goes....I hope this is helpful but it is not medical advise...

Posterboy,

knitty kitty Grand Master
knitty kitty
Posted
(edited)
On 12/8/2019 at 11:43 AM, Barbara Gorman said:

Diagnosed celiac two years ago and have been gluten-free ever since. However, two new symptoms have developed since then. Hand tremors and my cholesterol has gone up to 202 when it has always been low. Has anyone else experienced  hand tremors? I thought staying gluten-free would make celiac related issues disappear. Also I have chronic SIBO and after several rounds of antibiotics and staying on low FODMAP diet, I am still struggling with it. Welcome any helpful comments, knowledge-shares and advice. Be well.

Here's a great article on SIBO...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3099351/

From this article, I learned SIBO can cause vitamin B12 deficiency that doesn't show up on regular tests.  There's a section about Celiac Disease and SIBO specifically that's really interesting. 

B12 deficiency alters the metabolic pathways resulting in more cholesterol production

https://www.ncbi.nlm.nih.gov/pubmed/25763114

I found the Autoimmune Paleo Protocol diet helps me fight against SIBO.  I'm allergic to antibiotics, but this diet starves out the bad bacteria allowing the beneficial bacteria to flourish.  

B12 deficiency affects the nerves and tremors can be the result.  I've had hand tremors when my B12 was low.

https://www.livestrong.com/article/363746-what-vitamin-deficiencies-cause-tremors/

Hope this helps!

Edited by knitty kitty
Added more information
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Wheatwacked
      - Wheatwacked replied to bold-95's topic in Introduce Yourself / Share Stuff
      2

      I hate to cook!

      In 70-year-olds, DHEA (Dehydroepiandrosterone) levels are significantly lower than in young adults, typically around 20% of youthful levels, according to the National Institutes of Health (NIH) | (.gov). This decline is a natural part of aging, with DHEA production decreasing from its peak in the third decade of life. While some studies suggest potential...
    2. Wheatwacked
      - Wheatwacked replied to bold-95's topic in Introduce Yourself / Share Stuff
      2

      I hate to cook!

      Welcome @bold-95. That's a tough situation. Understanding DHEA Deficiency in Menopausal Women A major cause of hypothyroid is iodine deficiency. In the 60's bread had 90 mcg, milk 100 mcg per cup and we used iodized table salt. A sandwich and glass of milk supplied 300 mcg, Now in the US bread does not use iodine as dough condition...
    3. Wheatwacked
      - Wheatwacked replied to Mrs Wolfe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Cartilage and rib pain.

      For minor aches and pains, my go to is Original Alka-Seltzer. Aspirin and bicarbonate. It is dissoved in water before you swallow it so no tablets to aggravate the stomach wall. The bicarbonate buffers the stomach acid for upset stomach. Willow bark contains a chemical called salicin, which is similar to aspirin. It has pain and fever reducing effects...
    4. knitty kitty
      - knitty kitty replied to Mrs Wolfe's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      Cartilage and rib pain.

      @bold-95, welcome to the forum. Rib pain can be caused by Chondritis, an inflammation of the cartilage in the ribcage or breastbone. Vitamin D deficiency causes this condition and Osteopenia. Celiac disease damages the lining of the small intestine, making absorption of nutrients like vitamins difficult. Nutritional deficiencies result. Diseases...
    5. bold-95
      - bold-95 replied to Diana Swales's topic in Introduce Yourself / Share Stuff
      4

      Recently qualified Nutritionist looking for support

      Diana, I replied “ready,” but I’m brand new to the site and don’t know if I replied via the correct place. I would like to participate.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,390
    • Most Online (within 30 mins)
      7,748
    Natalia Benza
    Newest Member
    Natalia Benza
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      I hate to cook!

      By Wheatwacked · Posted

      In 70-year-olds, DHEA (Dehydroepiandrosterone) levels are significantly lower than in young adults, typically around 20% of youthful levels, according to the National Institutes of Health (NIH) | (.gov). This decline is a natural part of aging, with DHEA production decreasing from its peak in the third decade of life. While some studies suggest potential benefits of DHEA replacement in older adults, particularly in women, results are not consistently positive across all studies. 
    • Wheatwacked
      I hate to cook!

      By Wheatwacked · Posted

      Welcome @bold-95.   That's a tough situation.   Understanding DHEA Deficiency in Menopausal Women A major cause of hypothyroid is iodine deficiency.  In the 60's bread had 90 mcg, milk 100 mcg per cup and we used iodized table salt.  A sandwich and glass of milk supplied 300 mcg,  Now in the US bread does not use iodine as dough condition, milk has a bad name and table salt is avoided.  Net reduction from 1970 to 1984 of 50% of iodine intake.   Urinary iodine levels (mg/dL) in the United States, 6-74 years of age NHANES I, 1971-74 Median 32.00 2NHANES III, 1988-91 Median 14.5 NHANES 2000 Median 16.1 There has been a trend for increased prescribing of levothyroxine (LT4) in the United States.  LT4 was the tenth and seventh most commonly prescribed drug based on the number of prescriptions in 2005 and 2006, respectively. From 2008 to 2011 the number of LT4 prescriptions rose from 99 million to 105 million, with LT4 being the second most prescribed medication.1 From 2012 to 2016 the number of annual LT4 prescriptions increased steadily from 112 million to 123 million, with LT4 being the most prescribed medication.2,3 During 2017 and 2018 LT4 was the third most prescribed medication, with 98 million Levothyroxine prescriptions trends may indicate a downtrend in prescribing. DHEA and hypothyroidism are linked, with some evidence suggesting that low DHEA levels may be associated with hypothyroidism.
    • Wheatwacked
      Cartilage and rib pain.

      By Wheatwacked · Posted

      For minor aches and pains, my go to is Original Alka-Seltzer.  Aspirin and bicarbonate.  It is dissoved in water before you swallow it so no tablets to aggravate the stomach wall.  The bicarbonate buffers the stomach acid for upset stomach. Willow bark contains a chemical called salicin, which is similar to aspirin. It has pain and fever reducing effects in the body. The last time I took Advil for serious pain it spiked my BP to 190. Some blood pressure medications have been linked to rib pain or musculoskeletal pain as a side effect.  I had to stop Atnenolol because it had me bent over like a 90 year old with a walker.  Another med prescribe by my doctor left my knees unstable.  Currently, Losartan has weakened my back and thighs.  Can't walk to my mailbox at the street and back without having to rest my legs.  Upper body is however increasing muscle mass.  No one believes me though; think I'm malingering.  Those blood pressure meds also had no effect on my BP, but doctor wants me to continue on (man up, its good for you, with the Losartan + clonidine.  What has been working is Clonidine.  It has lowered my BP. but it is considered third tier BP med.  No side effects and it lowers my BP from 160+ to between 115 and 139.  
    • knitty kitty
      Cartilage and rib pain.

      By knitty kitty · Posted

      @bold-95, welcome to the forum. Rib pain can be caused by Chondritis, an inflammation of the cartilage in the ribcage or breastbone.  Vitamin D deficiency causes this condition and Osteopenia. Celiac disease damages the lining of the small intestine, making absorption of nutrients like vitamins difficult.  Nutritional deficiencies result.  Diseases can be caused by not having enough of certain vitamins and minerals. Vitamins are chemical compounds that our bodies cannot make, so we must get them from food or supplements.  Vitamins are crucial to our bodies functioning properly.  Eating a nutritionally dense diet is important, but to correct nutritional deficiencies, supplemental vitamins are needed.   Over the counter pain relievers like NSAIDs and PPIs can cause additional inflammation and damage to the small intestine.  OTC pain relievers worked for me but they hurt my digestive system worse.  Yes, Cobalamine Vitamin B12, Pyridoxine B 6, and Thiamine B 1 have an analgesic effect when taken together.   I'm leaving links below so you can see for yourself.   Analgesic and analgesia-potentiating action of B vitamins.     https://pubmed.ncbi.nlm.nih.gov/12799982/#:~:text=Disregarding pain resulting from vitamin,three are given in combination.   Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/   B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/   Role of B vitamins, thiamine, pyridoxine, and cyanocobalamin in back pain and other musculoskeletal conditions: a narrative review https://pubmed.ncbi.nlm.nih.gov/33865694/   The Combination of Neurotropic Vitamins B1, B6, and B12 Enhances Neural Cell Maturation and Connectivity Superior to Single B Vitamins https://pmc.ncbi.nlm.nih.gov/articles/PMC11987730/  
    • bold-95
      Recently qualified Nutritionist looking for support

      By bold-95 · Posted

      Diana, I replied “ready,” but I’m brand new to the site and don’t know if I replied via the correct place.  I would like to participate.
×
×
  • Create New...